Article
Clinical Neurology
Suzie Noten, Melissa Selb, Lorenzo A. A. Troenosemito, Deborah E. Thorpe, Elisabet Rodby-Bousquet, Wilma M. A. van der Slot, Marij E. Roebroeck
Summary: Through online consensus, a detailed ICF Core Set with 120 second-level categories was developed for adults with CP, including 33 body functions, 8 body structures, 50 activities and participation, and 29 environmental factors. The most essential 33 categories were selected for the brief ICF Core Set.
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY
(2022)
Article
Health Care Sciences & Services
Suzie Noten, Elisabet Rodby-Bousquet, Chonnanid Limsakul, Suttipong Tipchatyotin, Fay Visser, Anneke Grootoonk, Deborah E. Thorpe, Wilma M. A. van der Slot, Melissa Selb, Marij E. Roebroeck, CF Core Set Adults CP Study Grp
Summary: This international study investigated the functioning and health of adults with cerebral palsy presenting in healthcare services in various countries, identifying common problems in body functions, structures, activities, participation, and environmental factors.
DISABILITY AND HEALTH JOURNAL
(2022)
Article
Health Care Sciences & Services
Suzie Noten, Elisabet Rodby-Bousquet, Chonnanid Limsakul, Suttipong Tipchatyotin, Fay Visser, Anneke Grootoonk, Deborah E. Thorpe, Wilma M. A. van der Slot, Melissa Selb, Marij E. Roebroeck
Summary: This study aimed to identify the most common problems in functioning of adults with cerebral palsy (CP) presenting in healthcare services and the environmental factors affecting them. The results provide a clinical perspective on relevant categories of functioning for developing the International Classification of Functioning, Disability and Health (ICF) Core Sets for adults with CP.
DISABILITY AND HEALTH JOURNAL
(2022)
Article
Clinical Neurology
Suzie Noten, Lorenzo A. A. Troenosemito, Chonnanid Limsakul, Melissa Selb, Vincent de Groot, Manin Konijnenbelt, Danielle M. F. Driessen, Sander R. Hilberink, Marij E. Roebroeck
Summary: This study examined the functioning of adults with cerebral palsy from their perspective to develop an International Classification of Functioning, Disability and Health (ICF) Core Set. The study identified a wide range of body functions and activities that were affected, with emotional function, pain, muscle tone function, family support, products and technology, and health services being the most frequently mentioned categories. Environmental factors were also highlighted as important for functioning in adults with CP.
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY
(2021)
Article
Sport Sciences
Ivan Pena-Gonzalez, Juan F. Maggiolo, Alejandro Javaloyes, Manuel Moya-Ramon
Summary: This study analyzed the goal patterns in cerebral palsy (CP) football by studying the goals in the 2019 IFCPF World Cup matches. The results showed that teams that scored more goals and conceded fewer goals had a better ranking position. The distribution of goals scored was not influenced by halves or 15-minute periods. The team that scored the first goal had a higher chance of winning the match. FT3 players scored more goals, while there were no statistical differences in the distribution of goals conceded by goalkeepers. The goals were mainly scored from organized attacks, from the penalty area, and through individual action. This information is crucial for coaches in CP football to plan their game strategies.
JOURNAL OF SPORTS SCIENCES
(2022)
Article
Nutrition & Dietetics
Israt Jahan, Mohammad Muhit, Mahmudul Hassan Al Imam, Ratul Ghose, Amir Banjara Chhetri, Nadia Badawi, Gulam Khandaker
Summary: A study in Gorkha district, Nepal found high rates of undernutrition among children with cerebral palsy, indicating the need for intervention to improve their nutritional outcomes.
Article
Rehabilitation
Rehan Hall, Surona Visagie
Summary: The aim of this study was to explore the current use of the International Classification of Functioning, Disability and Health (ICF) by healthcare professionals at a neurorehabilitation facility, and to identify its further potential for use. The study found that the current use of the ICF was limited, with gaps in goal-setting practices. Lack of knowledge, problematic interpersonal relationships, and an unsupportive organizational culture hindered the implementation of the ICF. Participants believed that the ICF had the potential to improve patient-centered care. In order to enhance service delivery, the implementation process should be well-structured, practical-oriented, and supported by management.
DISABILITY AND REHABILITATION
(2022)
Article
Rehabilitation
Bhasker Amatya, Alaeldin Elmalik, Krystal Song, Su Yi Lee, Mary P. Galea, Fary Khan
Summary: The study examined the responsiveness of the ICF ClinFIT in routine clinical practice in Australia. The results showed that ClinFIT is useful in evaluating patient functioning and can detect changes in functioning over time and across different health conditions.
JOURNAL OF REHABILITATION MEDICINE
(2022)
Article
Clinical Neurology
Katarina Ostojic, Nicole L. Sharp, Simon P. Paget, Angela M. Morrow
Summary: The study found that children and young people with cerebral palsy have highly individualized experiences of pain, which interfered with their daily life and psychosocial well-being. They used personalized strategies to cope with the pain.
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY
(2022)
Article
Psychology, Clinical
Mark D. Peterson, Paul Lin, Neil Kamdar, Elham Mahmoudi, Christina N. Marsack-Topolewski, Heidi Haapala, Karin Muraszko, Edward A. Hurvitz
Summary: Adults with cerebral palsy or spina bifida have a significantly higher incidence and risk of common psychological morbidities compared to those without these conditions, highlighting the need for improved clinical screening and early interventions to reduce disease onset/progression in higher-risk populations.
PSYCHOLOGICAL MEDICINE
(2021)
Review
Clinical Neurology
Bernard Dan
Summary: Current societal and technological changes have increased the ethical challenges faced by individuals with cerebral palsy, including shifts in disability representations, the International Classification of Functioning, Disability, and Health, changes in laws and international agreements, and advancements in technology such as robotics, brain-computer interface devices, and artificial intelligence. These developments have altered diagnostic approaches, intervention goals, and created new opportunities, impacting both clinical practice and research priorities.
FRONTIERS IN NEUROLOGY
(2021)
Article
Rehabilitation
Andersom Ricardo Frez, Sandra Regina Alouche, Aline Cristiane Binda, Gabrielle Watermann Vieira, Bruna Aparecida Metinoski Bueno, Cristina Maria Nunes Cabral
Summary: A core set for knee dysfunction was proposed, offering a system for disability assessment related to knee dysfunction across all levels of health care. The study identified categories that best explain knee dysfunction and emphasized the importance of including environmental and social factors in assessing functionality. Further analysis of the validity of the core set is necessary.
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION
(2021)
Article
Rehabilitation
Minyoung Lee, Hyun-Hee Heo
Summary: This study aimed to investigate the health needs of adults with disabilities in South Korea based on disability type using the ICF. Environmental Factors were found to be the most mentioned health needs, with Services, Support and Relationships, and Attitudes being identified as the main types of health needs for different disability groups. It is important for government officials and health professionals to tailor healthcare development and provision for people with disabilities based on these identified health need types.
DISABILITY AND REHABILITATION
(2021)
Article
Nutrition & Dietetics
Israt Jahan, Risad Sultana, Mohammad Muhit, Delwar Akbar, Tasneem Karim, Mahmudul Hassan Al Imam, Manik Chandra Das, Hayley Smithers-Sheedy, Sarah McIntyre, Nadia Badawi, Gulam Khandaker
Summary: Malnutrition is a significant issue among children with cerebral palsy in low- and middle-income countries. However, there is a lack of research and guidelines on nutrition interventions for these children.
Article
Environmental Sciences
Kelvin Ying, Hans Van Rostenberghe, Garry Kuan, Mohammad Haris Amirul Mohd Yusoff, Siti Hawa Ali, Nik Soriani Yaacob
Summary: The study found that primary caregivers of children with CP generally have good health-related quality of life and family functioning. Factors such as the mother's education level, family monthly income, sleeping problems in children with CP, and the existence of children with other types of disabilities were identified as key contributors to the HRQOL and family functioning of primary caregivers.
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH
(2021)
Article
Clinical Neurology
Bernard X. W. Liew, Maria Palacios-Cena, Marco Scutari, Stella Fuensalida-Novo, Angel Guerrero-Peral, Carlos Ordas-Bandera, Juan A. Pareja, Cesar Fernandez-de-las-Penas
Summary: Tension type headache (TTH) is a prevalent but poorly understood pain disease. A theoretical model proposes a relationship where psycho-physical and psychological factors result in clinical manifestations of headache and ultimately affect disability. A data-driven model proposes a more complex relationship where poor sleep, psychological factors, and the number of years with pain takes more relevance at influencing disability.
Article
Rehabilitation
Paloma Moro-Lopez-Menchero, Margarita Ines Cigaran-Mendez, Lidiane L. Florencio, Javier Gueita-Rodriguez, Cesar Fernandez-de-las-Penas, Domingo Palacios-Cena
Summary: This study explored the experiences of women with CTS in managing their symptoms and limitations. The findings suggest that women with CTS face daily challenges in various aspects of their lives, and develop strategies to cope with these limitations. The results provide valuable insights for occupational therapists in understanding the difficulties faced by individuals with CTS and the strategies they develop to manage them.
SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY
(2023)
Article
Clinical Neurology
Cristina Garcia-Bravo, Rosa M. Martinez-Piedrola, Sara Garcia-Bravo, Elisabet Huertas-Hoyas, Marta Perez-De-Heredia-Torres, Domingo Palacios-Cena
Summary: This study aims to explore the experiences of parents of children diagnosed with Phelan-McDermid syndrome (PMS) regarding the diagnostic process, treatment, and medical care. A qualitative descriptive study was conducted with 32 parents of children with PMS. Thematic analysis revealed five themes, which can be utilized by healthcare professionals to support parents.
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY
(2023)
Article
Nursing
Angel Lizcano-Alvarez, Jesus Esteban-Hernandez, Almudena Alameda-Cuesta, Gema Cid-Exposito, Domingo Palacios-Cena
Summary: This study aims to explore the perspective of primary care nurses on their role with patients who have chronic cardiovascular disease and to identify cultural elements shared by nurses caring for people with chronic cardiovascular disease. The role of the nurse in primary care is crucial in promoting self-efficacy in cardiovascular self-care. Individuals with chronic cardiovascular disease need to integrate the disease and health recommendations into their lives.
INTERNATIONAL JOURNAL OF NURSING PRACTICE
(2023)
Article
Biotechnology & Applied Microbiology
Umut Varol, Elena Sanchez-Jimenez, Emma Alyette Adelaide Leloup, Marcos Jose Navarro-Santana, Cesar Fernandez-de-las-Penas, Sandra Sanchez-Jorge, Juan Antonio Valera-Calero
Summary: Ultrasound imaging is widely used in healthcare disciplines for assessing muscle metrics. This study found that age is the main factor correlated with ultrasound measurement errors.
BIOENGINEERING-BASEL
(2023)
Article
Medicine, General & Internal
Domingo Palacios-Cena, Carlos Ordas-Bandera, Javier Casas-Limon, Jorge Perez-Corrales, Javier Gueita-Rodriguez, Jose A. Arias-Navalon, Maria-Luz Cuadrado
Summary: This qualitative study aimed to describe the experiences of women with chronic migraine treated with OBT-A. It found that women experienced treatment failures before OBT-A, had unrealistically high expectations, and felt fear and discomfort during the treatment. However, they reported better migraine control and improved quality of life with OBT-A. Follow-up had barriers but also strengths such as effectiveness and few side effects.
ANNALS OF MEDICINE
(2023)
Article
Clinical Neurology
Domingo Palacios-Cena, Javier Gueita-Rodriguez, Antonio Gil-Nagel, Carmen Jimenez-Antona, Cristina Garcia-Bravo, Juan Francisco Velarde-Garcia, Juan Nicolas Cuenca-Zaldivar, Angel Aledo-Serrano
Summary: This study aims to describe the experiences and healthcare needs of parents of children with epilepsy and developmental encephalopathies caused by SCN1A, KCNQ2, CDKL5, PCDH19, and GNAO1 variants. The results show that managing symptoms is challenging and uncertain, medication decisions rest on parents, and the therapeutic relationship and healthcare experience can be influenced by healthcare professionals. Urgent care services should better understand EEDs, support parents, and improve treatment for children.
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY
(2023)
Editorial Material
Medicine, General & Internal
Cesar Fernandez-de-las-Penas
EUROPEAN JOURNAL OF INTERNAL MEDICINE
(2023)
Article
Medicine, General & Internal
Cesar Fernandez-de-las-Penas, Ricardo Ortega-Santiago, Ignacio Cancela-Cilleruelo, Jorge Rodriguez-Jimenez, Stella Fuensalida-Novo, Jose D. Martin-Guerrero, Oscar J. Pellicer-Valero, Margarita Cigaran-Mendez
Summary: This study explored two different graph methods to visualize the prevalence of self-reported post-COVID anosmia and ageusia in a large sample of previously hospitalized individuals. The results showed that the prevalence of anosmia and ageusia decreased in the years following hospitalization, with the female sex and asthma being associated with the development of anosmia. These findings highlight the importance of post-COVID anosmia.
JOURNAL OF CLINICAL MEDICINE
(2023)
Review
Medicine, General & Internal
Cesar Fernandez-de-las-Penas, Lidiane L. Florencio, Ana I. de-la-Llave-Rincon, Ricardo Ortega-Santiago, Margarita Cigaran-Mendez, Stella Fuensalida-Novo, Gustavo Plaza-Manzano, Lars Arendt-Nielsen, Juan A. Valera-Calero, Marcos J. Navarro-Santana
Summary: This study synthesized current evidence on prognostic factors for predicting postoperative pain after knee or hip replacement. The findings suggest that various preoperative factors, including race, opioid use, preoperative function, neuropathic pain symptoms, and anxiety, are associated with postoperative chronic pain. Additionally, certain comorbidities, such as heart disease and lung disease, are not associated with postoperative chronic pain.
JOURNAL OF CLINICAL MEDICINE
(2023)
Editorial Material
Medicine, General & Internal
Cesar Fernandez-de-las-Penas, Domingo Palacios-Cena
JOURNAL OF CLINICAL MEDICINE
(2023)
Article
Biochemistry & Molecular Biology
Tamara del Corral, Raul Fabero-Garrido, Gustavo Plaza-Manzano, Marcos Jose Navarro-Santana, Cesar Fernandez-de-las-Penas, Ibai Lopez-de-Uralde-Villanueva
Summary: The study aimed to determine the minimal clinically important difference (MCID) for the EuroQol-5D questionnaire (EQ-5D-5L) and visual analogic scale (VAS) in individuals with long-term post-COVID-19 symptoms. The results showed that a change of at least 0.262 and 7.5 for the EQ-5D-5L index and VAS represented the MCID, respectively. Only the EQ-5D-5L VAS showed acceptable discrimination between individuals classified as improved and those classified as stable/not improved.
Article
Biochemistry & Molecular Biology
Cesar Fernandez-de-las-Penas, Ignacio Cancela-Cilleruelo, Jorge Rodriguez-Jimenez, Stella Fuensalida-Novo, Jose D. Martin-Guerrero, Oscar J. Pellicer-Valero, Ana I. de-la-Llave-Rincon
Summary: This study aimed to visualize the evolution and trajectory of post-COVID fatigue and dyspnoea symptoms using Sankey plots and exponential bar plots in previously hospitalized COVID-19 survivors. The study found that the prevalence of post-COVID fatigue decreased over time, and dyspnoea decreased after the initial hospitalization. Female sex and experiencing symptoms at the first follow-up were factors associated with subsequent post-COVID fatigue and dyspnoea.
Article
Biology
Jose L. Arias-Buria, Sergio Borrella-Andres, Jacobo Rodriguez-Sanz, Carlos Lopez-de-Celis, Miguel Malo-Urries, Cesar Fernandez-de-las-Penas, Gracia M. Gallego-Sendarrubias, Vanessa Gonzalez-Rueda, Albert Perez-Bellmunt, Isabel Albarova-Corral
Summary: This study compared the accuracy and safety of ultrasound-guided and palpation-guided needling techniques for the patellar tendon. The results showed that ultrasound-guided procedures had higher accuracy and lower rates of puncture and unintentional damage, but they required more time and passes to complete.
