期刊
HEALTH & PLACE
卷 46, 期 -, 页码 6-12出版社
ELSEVIER SCI LTD
DOI: 10.1016/j.healthplace.2017.04.001
关键词
Complex care needs; Embodied space; Families; Health geography; Social realities
资金
- Canadian Institutes of Health Research [CIHR MOP - 89895]
- Canadian Institutes of Health Research Applied Chair in Reproductive, Child and Youth Health Services and Policy Research [CIHR APR -126339]
This paper presents research findings that advance knowledge around the power and agency families with children with complex care needs (CCN). Our conceptual framework uses concepts from geography towards situating the experiences and social realities of family carers within the 'embodied space of care'. The data originate from a longitudinal qualitative study of Canadian families with children with CCN. Findings reveal that interactions and decision-making processes relating to health and everyday life were complex and socially interconnected, and emphasize the need for provisions for family-based decision-making and enhanced social inclusion of families and the importance of the renegotiation of power.
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