Sharing health-related data: a privacy test?

Registered access: a ‘Triple-A’ approach

(2016) Stephanie O M Dyke et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

A federated ecosystem for sharing genomic, clinical data

(2016)   SCIENCE

Between Openness and Privacy in Genomics

(2016) Effy Vayena et al.   PLOS MEDICINE

Privacy Risks from Genomic Data-Sharing Beacons

(2015) Suyash S. Shringarpure et al.   AMERICAN JOURNAL OF HUMAN GENETICS

Exposing participants? Population biobanks go geo

(2015) Jasper Adriaan Bovenberg et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Benefits and Risks of Sharing Genomic Information

(2015) Dhikshitha Balaji et al.   Genetic Testing and Molecular Biomarkers

Funders must encourage scientists to share

(2015) Martin Bobrow   NATURE

Privacy and human behavior in the age of information

(2015) A. Acquisti et al.   SCIENCE

Epigenome data release: a participant-centered approach to privacy protection

(2015) Stephanie O. M. Dyke et al.   GENOME BIOLOGY

ACMG policy statement: updated recommendations regarding analysis and reporting of secondary findings in clinical genome-scale sequencing

(2014)   GENETICS IN MEDICINE

ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

(2013) Robert C. Green et al.   GENETICS IN MEDICINE

Rare diseases and now rare data?

(2013) Deborah Mascalzoni et al.   NATURE REVIEWS GENETICS

Children, biobanks and the scope of parental consent

(2011) Kristien Hens et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

The Standardization of Race and Ethnicity in Biomedical Science Editorials and UK Biobanks

(2008) Andrew Smart et al.   SOCIAL STUDIES OF SCIENCE

Patients’ attitudes to the summary care record and HealthSpace: qualitative study

(2008) Trisha Greenhalgh et al.   BMJ-British Medical Journal