Article
Medicine, General & Internal
J. Nicholas Odom, Allison Applebaum, Marie A. Bakitas, Tara Bryant, Erin Currie, Kayleigh Curry, Heidi Donovan, Maria E. Fernandez, Betty Ferrell, Andres Azuero, Tamryn F. Gray, Bailey A. Hendricks, Diane Meier, Chandylen Nightingale, Susan Reinhard, Timothy S. Sannes, Katherine Sterba, Heather M. Young
Summary: Family caregivers provide the majority of healthcare to cancer patients in the US, however, many of them lack formal support and training. This study aimed to examine the availability of family caregiver support programs in US cancer centers and their implementation.
Article
Medicine, General & Internal
Shuqin Zhu, Hanfei Zhu, Xintong Zhang, Kouying Liu, Zumei Chen, Xiaowen Yang, Changxian Sun, Weiping Xie, Qin Xu, Weiying Li, Dong Pang, Yan Cui, Hong Wang
Summary: The study aimed to investigate the care needs of dying patients and their family caregivers in hospice and palliative care in mainland China. A total of 18 articles were included, identifying that patients need a comfortable experience and family caregivers need to care for patients and themselves.
Article
Medicine, General & Internal
Kim de Nooijer, Lara Pivodic, Nele Van den Noortgate, Peter Pype, Lieve Van den Block
Summary: This pilot study will assess the feasibility and preliminary effectiveness of the Frailty+ intervention for frail older people discharged from hospital in Flanders, Belgium. The study will evaluate recruitment, randomization, acceptability of the intervention, retention in the program, and data completion.
Article
Medicine, General & Internal
Hsiao-Ting Chang, Ming-Hwai Lin, Wen-Hua Kuo, Chun-Ku Chen, Tzeng-Ji Chen, Shinn-Jang Hwang
Summary: About half of the primary care staff surveyed were willing to participate in compassionate community education and network and palliative care education, but only 19.5% were willing to provide palliative care. Primary care nurses showed significantly more willingness than other staff to participate in education and care provision, while physicians were significantly less willing to participate. The main barriers identified were capability, administrative and manpower concerns, time, age, and motivation.
Article
Primary Health Care
David F. Schmitz, Sharon Casapulla, Davis G. Patterson, Randall Longenecker
Summary: Both research and medical education play a significant role in rural primary care and health, as highlighted by the Scholarly Intensive for Rural Programs. The program successfully achieved its learning objectives, stimulating scholarly activity and fostering a community of practice in rural health professions education, and received positive evaluations from participants.
ANNALS OF FAMILY MEDICINE
(2023)
Review
Medicine, General & Internal
Lucy Pocock, Sarah Purdy, Stephen Barclay, Fliss E. M. Murtagh, Lucy E. Selman
Summary: The study aims to critically overview research on communication of poor prognosis between secondary and primary care through a systematic review and narrative synthesis. By analyzing various types of studies and summarizing findings, it can provide key insights for advancing the sharing of poor prognosis at hospital discharge.
Review
Public, Environmental & Occupational Health
Erin Vernon, M. Courtney Hughes, Monica Kowalczyk
Summary: This article provides the first systematic review of the effectiveness of community-based palliative care (CBPC) programs. The review suggests that CBPC programs can improve end-of-life quality, reduce healthcare costs, and decrease hospitalizations and emergency department visits for seriously ill patients. However, further research is needed to understand the characteristics of successful programs and their impact on low-income and lower-middle-income countries as well as vulnerable and key populations.
SOCIAL SCIENCE & MEDICINE
(2022)
Article
Health Care Sciences & Services
Meng-Ping Wu, Lee-Ing Tsao, Sheng-Jean Huang, Chieh-Yu Liu
Summary: In Chinese or Eastern society, most EOL patients choose to die at home, but primary family caregivers are often not prepared for this. Therefore, a measurement tool, the RHBPCS, was developed to assess the readiness for home-based palliative care for primary family caregivers, with good reliability and validity demonstrated in the study.
Article
Health Care Sciences & Services
Nicola White, Linda Jm Oostendorp, Victoria Vickerstaff, Christina Gerlach, Yvonne Engels, Maud Maessen, Christopher Tomlinson, Johan Wens, Bert Leysen, Guido Biasco, Sofia Zambrano, Steffen Eychmueller, Christina Avgerinou, Rabih Chattat, Giovanni Ottoboni, Carel Veldhoven, Patrick Stone
Summary: The study revealed variations in the consistency of clinicians in using the Surprise Question, with over half of GPs not internally consistent in their responses. Further research with standardized terms and real patients is warranted.
PALLIATIVE MEDICINE
(2022)
Review
Green & Sustainable Science & Technology
Andreia Costa, C. Joana Sousa, Paulo Rosario Carvalho Seabra, Ana Virgolino, Osvaldo Santos, Joaquim Lopes, Adriana Henriques, Paulo Nogueira, Violeta Alarcao
Summary: Social prescribing is an approach that promotes non-clinical activities through referrals by primary health-care professionals. This study aimed to identify domains of intervention and effectiveness of social prescribing programs, but found limited evidence on health-related outcomes. Further research is needed to understand how social prescribing can be efficiently applied.
Article
Oncology
Sindhu Kubendran, Erica Schockett, Erin Jackson, Minh Phuong Huynh-Le, Fabio Roberti, Yuan James Rao, Martin Ojong-Ntui, Sharad Goyal
Summary: Utilization of inpatient palliative care for patients hospitalized with PBM significantly increased between 2007 and 2016, although the service is still underutilized in the context of the severe symptoms and poor prognosis associated with PBM.
SUPPORTIVE CARE IN CANCER
(2021)
Article
Pediatrics
Lourdes Chocarro Gonzalez, Manuel Rigal Andres, Julio C. de la Torre-Montero, Marta Barcelo Escario, Ricardo Martino Alba
Summary: The study aimed to improve theoretical knowledge and practical skills for families caring for children in palliative care through an educational intervention program, showing positive impact on satisfaction and learning effectiveness.
Review
Clinical Neurology
Neal Weisbrod
Summary: Primary palliative care is essential for patients with serious illnesses like dementia. It involves effective communication, counseling, and referral when appropriate. The COVID-19 pandemic adds extra challenges, and clinicians must prioritize patient autonomy while ensuring informed decision making. Pain management and caregiver support are also important aspects of comprehensive care. Palliative care specialists can provide additional assistance in complex cases or when initial management strategies are insufficient.
Review
Nursing
Mina Azimirad, Riina Paloniitty, Ioanna Papathanasiou, Giuseppe Aleo, Gianluca Catania, Francesca Pozzi, Annamaria Bagnasco, Hannele Turunen
Summary: This study aims to identify gaps in existing FCN continuing education programs and investigate if FCN core competencies are adequately covered. The results indicate that FCN core competencies, such as care coordination and patient advocacy, were poorly covered in the programs. E-health had limited involvement, and important areas like ethics, managing change, diversity, and leadership were not addressed.
NURSE EDUCATION IN PRACTICE
(2023)
Article
Public, Environmental & Occupational Health
Catherine Riffin, Jennifer L. Wolff, John Butterworth, Ronald D. Adelman, Karl A. Pillemer
Summary: This study identified three major challenges and three approaches to managing patient-family interactions in primary care. Patients and caregivers generally prefer collaborative discussions over individual discussions.
PATIENT EDUCATION AND COUNSELING
(2021)
Article
Medicine, General & Internal
Patsy Yates, Rob Carter, Robyn Cockerell, Donna Cowan, Cyril Dixon, Anita Lal, Robert U. Newton, Nicolas Hart, Daniel A. Galvao, Brenton Baguley, Nicholas Denniston, Tina Skinner, Jeremy Couper, Jon Emery, Mark Frydenberg, Wei-Hong Liu
Summary: This study evaluated the implementation of a multicomponent survivorship programme for men with prostate cancer and their carers. The results showed that the programme improved the patients' experience of care, but there were barriers such as insufficient integration with existing services and lack of resources.
Article
Nursing
Amanda Fox, Carla Thamm, Fiona Crawford-Williams, Ria Joseph, Lynda Cardiff, Debra Thoms, Lisa Nissen, Patsy Yates, Raymond Javan Chan
Summary: This study explores nurses' preferences for educational preparation and support in expanding nursing practice to include prescribing. The survey results indicate that most nurses prefer education delivered through a blended approach by health services and universities, along with support from authorized prescribers and multidisciplinary collaboration. Course accreditation and formal qualification are identified as the major factors influencing nurses' desire to undertake a specific program.
Review
Nursing
Shirley Chambers, Amy Spooner, Christina Parker, Leanne Jack, Linda Schnitker, Elizabeth Beattie, Patsy Yates, Margaret MacAndrew
Summary: This study aimed to identify the clinical indicators of acute deterioration in residents and the factors that influence residential aged care facility staff's ability to identify them. The findings suggest that subtle changes in residents' health status should be recognized and considered in the design of early warning tools for aged care facilities. It is recommended to develop early warning tools sensitive to the unique needs of residents and provide support for aged care facility staff to improve their ability to identify and manage acute deterioration early and avoid hospitalization.
JOURNAL OF NURSING SCHOLARSHIP
(2023)
Article
Health Care Sciences & Services
Joosun Shin, Kord M. Kober, Melisa L. Wong, Patsy Yates, Bruce A. Cooper, Steven M. Paul, Marilyn Hammer, Yvette Conley, Jon D. Levine, Christine Miaskowski
Summary: This study aimed to identify different profiles of shortness of breath in patients receiving chemotherapy, and evaluate their relationship with demographic and clinical characteristics, as well as quality of life outcomes. Four distinct profiles of shortness of breath were identified through surveys completed by 1338 outpatients, with high occurrence rates associated with smoking history, lung disease, lung cancer, and receipt of more cancer treatments. Compared to other profiles, the high occurrence group experienced more severe shortness of breath and poorer physical, psychological, and social functioning.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2023)
Article
Pharmacology & Pharmacy
Jennifer A. Ong, Joanna Rego, Tina Ung, Shweta Kumar, Kylie Ash, Bandana Saini, Patsy Yates
Summary: This study aimed to examine the self-perceived knowledge, confidence, and preparedness of undergraduate pharmacy students to provide palliative care. The findings revealed that students were confident in managing symptoms and medication-related issues, but less confident in addressing distress or discussing sensitive matters with patients and their families. Therefore, there is a need for greater exposure and practical experience in palliative care settings.
INTERNATIONAL JOURNAL OF PHARMACY PRACTICE
(2023)
Article
Oncology
Julia D. Downing, Angela Adjetey Appiah, Kylie Ash, Stavroula Chante, Elizabeth Eves, Finn Tysoe, Cathy Glennon, Mei Krishnasamy, Ariesta Milanti, Jane Philips, Joanne Power, Winnie K. W. So, Patsy Yates
Article
Oncology
Stella Bialous, Meinir Krishnasamy, Jane Marsh, Julia D. Downing, Winnie K. W. So, Patsy Yates
Article
Oncology
Porawan Wiwaranukool, Patsy Yates, Raymond J. Chan
Summary: This study evaluated an educational intervention based on the Theory of Planned Behavior to increase oncology nurses' exercise advice behaviors. The intervention resulted in significant improvements in all outcomes, including Theory of Planned Behavior constructs, exercise knowledge, and self-reported exercise prescription behaviors. Attitudes and perceived behavioral control were found to be important factors influencing exercise advice intention and behavior.
SEMINARS IN ONCOLOGY NURSING
(2023)
Article
Health Care Sciences & Services
Elise Button, Sara Baniahmadi, Shirley Chambers, Patsy Yates
Summary: This study explored the current and planned processes and outcome measures for implementing end-of-life care actions in Australian healthcare facilities. The study identified barriers and enablers, and highlighted the need for greater resources, support, and system-level approaches to improve the quality of end-of-life care. The study also revealed gaps and uncertainties in addressing certain actions, emphasizing the importance of targeted interventions in these areas.
AUSTRALIAN HEALTH REVIEW
(2023)
Article
Public, Environmental & Occupational Health
Wei-Hong Liu, Jennifer Fox, Patsy Yates
Summary: The work experiences of prostate cancer survivors in Australia are significantly impacted by treatment, with self-employed and long-term survivors facing greater challenges. Support from family, workplace, and community, as well as self-care, are crucial for enhancing work participation experiences.
Article
Nursing
Lindy Willmott, Rachel Feeney, Katrine Del Villar, Patsy Yates, Ben White
Summary: This article explores the implications of voluntary assisted dying (VAD) legislation for nurses, emphasizing the importance of nurses being familiar with relevant laws to ensure practice consistent with their legal roles, obligations, and protections.
Article
Health Care Sciences & Services
Holly Sansone, Stuart Ekberg, Sarah Lord, James Stevenson, Katherine Martinez, Patsy Yates
Summary: This study used conversation analysis to examine how palliative care clinicians manage patients' understandings of palliative care during initial consultations. The findings showed that clinicians frequently addressed the possibility that patients may have a limited understanding of palliative care as care provided immediately before death, and used pre-emptive practices to contradict these narrow understandings.
HEALTH EXPECTATIONS
(2023)
Article
Health Care Sciences & Services
Claudia Virdun, Elise Button, Jane L. Phillips, Patsy Yates, Tim Luckett
Summary: This study provides practical guidance for the selection and implementation of patient reported experience measures (PREMs) to improve care for inpatients with palliative care needs.
PALLIATIVE MEDICINE
(2023)
Article
Health Care Sciences & Services
Rachel Feeney, Lindy Willmott, Penny Neller, Shih-Ning Then, Patsy Yates, Ben White
Summary: The study showed that completion of online training modules on end-of-life law increased Australian health professionals' legal knowledge and self-reported confidence in applying the law in clinical practice. However, participants still had some knowledge gaps after training, indicating that the training should be part of ongoing education on end-of-life law. Future research should examine the long-term outcomes and impacts of the training.
BMC PALLIATIVE CARE
(2023)
Article
Oncology
Joosun Shin, Kord Kober, Patsy Yates, Melisa L. Wong, Bruce A. Cooper, Steven M. Paul, Marilyn Hammer, Yvette Conley, Jon D. Levine, Fay Wright, Christine Miaskowski
Summary: This study examined differences in levels of global, cancer-specific, and cumulative life stress, as well as resilience, among four classes of patients with distinct shortness of breath profiles. It also evaluated differences in the occurrence rates for various stressful life events and the severity of common co-occurring symptoms. The findings showed that the different classes of patients had varying levels of stress, rates of adverse childhood experiences, and scores for depression, anxiety, fatigue, energy, and cognitive function. The study highlights the importance of multimodal interventions in managing shortness of breath in oncology patients.
SEMINARS IN ONCOLOGY NURSING
(2023)
