Establishing the values for patient engagement (PE) in health-related quality of life (HRQoL) research: an international, multiple-stakeholder perspective

Recommendations for the Involvement of Patient Research Partners (PRP) in OMERACT Working Groups. A Report from the OMERACT 2014 Working Group on PRP

(2015) Peter P. Cheung et al.   JOURNAL OF RHEUMATOLOGY

Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute

(2015) Lori Frank et al.   QUALITY OF LIFE RESEARCH

Patient and public engagement in health-related quality of life and patient-reported outcomes research: what is important and why should we care? Findings from the first ISOQOL patient engagement symposium

(2014) Kirstie Haywood et al.   QUALITY OF LIFE RESEARCH

Exploring perceived barriers, drivers, impacts and the need for evaluation of public involvement in health and social care research: a modified Delphi study

(2014) D. Snape et al.   BMJ Open

Values associated with public involvement in health and social care research: a narrative review

(2013) Felix Gradinger et al.   HEALTH EXPECTATIONS

Facilitating and inhibiting factors for long-term involvement of patients at outcome conferences—lessons learnt from a decade of collaboration in OMERACT: a qualitative study

(2013) Maarten de Wit et al.   BMJ Open

A Creative Approach to the Development of an Agenda for Knowledge Utilization: Outputs from the 11th International Knowledge Utilization Colloquium (KU 11)

(2012) Joyce E. Wilkinson et al.   Worldviews on Evidence-Based Nursing

European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects

(2011) M. P. T. de Wit et al.   ANNALS OF THE RHEUMATIC DISEASES

The GRIPP checklist: Strengthening the quality of patient and public involvement reporting in research

(2011) Sophie Staniszewska et al.   INTERNATIONAL JOURNAL OF TECHNOLOGY ASSESSMENT IN HEALTH CARE

Avoidable waste in the production and reporting of research evidence

(2009) Iain Chalmers et al.   LANCET