Measurement of Health-Related Quality of Life in Individuals With Rare Diseases in China: Nation-Wide Online Survey
出版年份 2023 全文链接
标题
Measurement of Health-Related Quality of Life in Individuals With Rare Diseases in China: Nation-Wide Online Survey
作者
关键词
-
出版物
JMIR Public Health and Surveillance
Volume 9, Issue -, Pages e50147
出版商
JMIR Publications Inc.
发表日期
2023-10-06
DOI
10.2196/50147
参考文献
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注意：仅列出部分参考文献，下载原文获取全部文献信息。- Population norms in France with EQ-5D-5L: health states, value indexes, and VAS
- (2023) Laurène Gautier et al. European Journal of Health Economics
- Healthcare access, satisfaction, and health-related quality of life among children and adults with rare diseases
- (2022) Kathleen Bogart et al. Orphanet Journal of Rare Diseases
- Evaluating the Health-Related Quality of Life of the Rare Disease Population in Hong Kong Using EQ-5D 3-Level
- (2022) Yvette N.C. Ng et al. VALUE IN HEALTH
- Comparing EQ-5D-3L and EQ-5D-5L in measuring the HRQoL burden of 4 health conditions in China
- (2022) Guizhi Weng et al. European Journal of Health Economics
- Quality-Adjusted Life Expectancy Norms for the English Population
- (2022) Simon McNamara et al. VALUE IN HEALTH
- Comparing the psychometric properties of EQ-5D-3L and EQ-5D-5L proxy ratings by informal caregivers and a health professional for people with dementia
- (2022) Bernhard Michalowsky et al. Health and Quality of Life Outcomes
- How are you doing in the eyes of your spouse? Level of agreement between the self-completed EQ-5D-5L and two proxy perspectives in an orthopaedic population: a randomized agreement study
- (2021) Maria C. J. M. Tol et al. Health and Quality of Life Outcomes
- Epidemiology of rare diseases is important
- (2021) L. Bruckner‐Tuderman JOURNAL OF THE EUROPEAN ACADEMY OF DERMATOLOGY AND VENEREOLOGY
- The economic and health impact of rare diseases: A meta-analysis
- (2021) Ana Rita Sequeira et al. Health Policy and Technology
- Measurement of health-related quality of life in patients with diabetes mellitus using EQ-5D-5L in Hong Kong, China
- (2020) Eliza Lai yi Wong et al. QUALITY OF LIFE RESEARCH
- How the EQ-5D utilities are derived matters in Chinese diabetes patients: a comparison based on different EQ-5D scoring functions for China
- (2020) Chen-Wei Pan et al. QUALITY OF LIFE RESEARCH
- Health-related quality of life among rural men and women with hypertension: assessment by the EQ-5D-5L in Jiangsu, China
- (2019) Zhuoru Liang et al. QUALITY OF LIFE RESEARCH
- Normative Profile of Health-Related Quality of Life for Hong Kong General Population Using Preference-Based Instrument EQ-5D-5L
- (2019) Eliza Lai-yi Wong et al. VALUE IN HEALTH
- Estimating cumulative point prevalence of rare diseases: analysis of the Orphanet database
- (2019) Stéphanie Nguengang Wakap et al. EUROPEAN JOURNAL OF HUMAN GENETICS
- How Should We Capture Health State Utility in Dementia? Comparisons of DEMQOL-Proxy-U and of Self- and Proxy-Completed EQ-5D-5L
- (2019) Adam Martin et al. VALUE IN HEALTH
- Health-related quality of life among patients with hypertension: population-based survey using EQ-5D-5L in Hong Kong SAR, China
- (2019) Eliza Lai Yi Wong et al. BMJ Open
- A Systematic Review of Studies Comparing the Measurement Properties of the Three-Level and Five-Level Versions of the EQ-5D
- (2018) Ines Buchholz et al. PHARMACOECONOMICS
- DIFFERENTIATION OF HEALTH-RELATED QUALITY OF LIFE OUTCOMES BETWEEN FIVE DISEASE AREAS: RESULTS FROM AN INTERNATIONAL SURVEY OF PATIENTS
- (2018) Olina Efthymiadou et al. INTERNATIONAL JOURNAL OF TECHNOLOGY ASSESSMENT IN HEALTH CARE
- EQ-5D-5L norms for the urban Chinese population in China
- (2018) Zhihao Yang et al. Health and Quality of Life Outcomes
- From scientific discovery to treatments for rare diseases – the view from the National Center for Advancing Translational Sciences – Office of Rare Diseases Research
- (2018) Petra Kaufmann et al. Orphanet Journal of Rare Diseases
- Health-related quality of life among adults with diverse rare disorders
- (2017) Kathleen R. Bogart et al. Orphanet Journal of Rare Diseases
- Estimating an EQ-5D-5L Value Set for China
- (2017) Nan Luo et al. VALUE IN HEALTH
- EQ-5D and the EuroQol Group: Past, Present and Future
- (2017) Nancy J. Devlin et al. Applied Health Economics and Health Policy
- Health-related quality of life measured using the EQ-5D–5L: South Australian population norms
- (2016) Nikki McCaffrey et al. Health and Quality of Life Outcomes
- Recruitment procedures for descriptive socio-economic studies in rare diseases. The BURQOL-RD project
- (2015) Pedro Serrano-Aguilar et al. Expert Opinion on Orphan Drugs
- Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L)
- (2011) M. Herdman et al. QUALITY OF LIFE RESEARCH
- EQ-5D as a Quality of Life Measure in People with Dementia and Their Carers: Evidence and Key Issues
- (2011) Natalia Hounsome et al. VALUE IN HEALTH
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