Parents’ Views on Autopsy, Organ Donation, and Research Donation After Neonatal Death

SARS-CoV-2 infection of airway organoids reveals conserved use of Tetraspanin-8 by Ancestral, Delta, and Omicron variants

(2023) Lisiena Hysenaj et al.   Stem Cell Reports

Meaning Making Following Trauma

(2022) Crystal L. Park   Frontiers in Psychology

Characterizing the Language Used to Discuss Death in Family Meetings for Critically Ill Infants

(2022) Margaret H. Barlet et al.   JAMA Network Open

Project Baby Bear: Rapid precision care incorporating rWGS in 5 California children’s hospitals demonstrates improved clinical outcomes and reduced costs of care

(2021) David Dimmock et al.   AMERICAN JOURNAL OF HUMAN GENETICS

Neonatal donation: are newborns too young to be recognized?

(2021) Alicija Vileito et al.   EUROPEAN JOURNAL OF PEDIATRICS

Opportunities and pitfalls of social media research in rare genetic diseases: a systematic review

(2021) Emily G. Miller et al.   GENETICS IN MEDICINE

Effect of Whole-Genome Sequencing on the Clinical Management of Acutely Ill Infants With Suspected Genetic Disease

(2021) et al.   JAMA Pediatrics

Neonatal Organ and Tissue Donation for Research: Options Following Death by Natural Causes

(2020) Martha Anderson et al.   CELL AND TISSUE BANKING

My child’s legacy: a mixed methods study of bereaved parents and providers’ opinions about collaboration with NICU teams in quality improvement initiatives

(2020) Claude Julie Bourque et al.   BMJ Open

Managing Ambiguity When Caring for Women Who Experience Stillbirth

(2020) Natasha Nurse-Clarke   JOGNN-JOURNAL OF OBSTETRIC GYNECOLOGIC AND NEONATAL NURSING

A narrative review of family members’ experience of organ donation request after brain death in the critical care setting

(2019) Nancy Kentish-Barnes et al.   INTENSIVE CARE MEDICINE

Parents’ experiences of requests for organ and tissue donation: the value of asking

(2019) Anne-Sophie Darlington et al.   ARCHIVES OF DISEASE IN CHILDHOOD

The Value of Autopsy in Neonates in the 21st Century

(2018) Joline L.H. de Sévaux et al.   Neonatology

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(2017)   JOURNAL OF PAEDIATRICS AND CHILD HEALTH

Parents’ experience of perinatal post-mortem following stillbirth: A mixed methods study

(2017) Jane Henderson et al.   PLoS One

Evaluating the “family veto” of consent for organ donation

(2016) Maeghan Toews et al.   CANADIAN MEDICAL ASSOCIATION JOURNAL

What parents want from doctors in end-of-life decision-making for children

(2013) J Sullivan et al.   ARCHIVES OF DISEASE IN CHILDHOOD

The Tie That Binds

(2010) Rana Limbo et al.   MCN-The American Journal of Maternal-Child Nursing

Making sense of the meaning literature: An integrative review of meaning making and its effects on adjustment to stressful life events.

(2010) Crystal L. Park   PSYCHOLOGICAL BULLETIN

The Breadth of Hopes

(2009) Chris Feudtner   NEW ENGLAND JOURNAL OF MEDICINE