Article
Critical Care Medicine
Shawn P. E. Nishi, Lisa M. Lowenstein, Tito R. Mendoza, Maria A. Lopez, Laura C. Crocker, Karen Sepucha, Jiangong Niu, Robert J. Volk
Summary: Among patients recently assessed for LCS, the quality of decision-making is highly variable, with patients valuing early cancer detection over concerns about harms. Patients were more likely to receive information on the benefits of LCS than on the risks, and one-third experienced some degree of decisional conflict. However, most patients felt they were adequately involved in the screening decision-making process.
Review
Public, Environmental & Occupational Health
Xuejing Li, Dan Yang, Meiqi Meng, Junqiang Zhao, Yiyi Yin, Hefang Wang, Xiaoyan Zhang, Qian Liu, Mengdi Li, Jianping Liu, Yufang Hao
Summary: Shared decision-making (SDM) is in its early stages in mainland China. There is a lack of comprehensive understanding of decisional needs concepts, and limited research on decision support and decisional outcomes. Uniform standards for developing patient decision aids are lacking. Chinese SDM studies primarily focus on physiological needs.
FRONTIERS IN PUBLIC HEALTH
(2023)
Article
Computer Science, Artificial Intelligence
Diego Garcia-Zamora, Alvaro Labella, Rosa M. Rodriguez, Luis Martinez
Summary: This paper studies the impact of simulating experts' non-linear preferences on Consensus Reaching Processes. By remapping experts' preferences using non-linear deformations, it can help address the difficulty in reaching consensus in large-scale group decision-making situations with extreme opinions.
INTERNATIONAL JOURNAL OF INTELLIGENT SYSTEMS
(2021)
Article
Computer Science, Information Systems
Sergey Motorny, Surendra Sarnikar, Cherie Noteboom
Summary: The emerging trend in healthcare delivery is patient-centered medicine, which focuses on empowering patients and supporting patient-centered care through the use of information technology. Patient decision aids are tools that can help patients become more involved in their care, but current aids do not account for individual variability in information needs and decision-making preferences.
INFORMATION SYSTEMS FRONTIERS
(2022)
Article
Oncology
Ying Wang, Jinna Zhang, Bo Hu, Jizhe Wang, Laixiang Zhang, Xiaohua Li, Xiuli Zhu
Summary: This study investigated the level of participation and perceived importance of shared decision-making in the treatment and care of lung cancer patients. The results showed that lung cancer patients had a low degree of participation in shared decision-making. There were significant differences between actual participation and perceived importance. Factors such as education level, age, gender, income, marital status, personality, the course of the disease, and pathological TNM staging affected patient's level of participation.
JOURNAL OF CANCER RESEARCH AND CLINICAL ONCOLOGY
(2022)
Article
Public, Environmental & Occupational Health
Simon John Stewart, Lisa Roberts, Lucy Brindle
Summary: This study examines how treatment-related preferences expressed by patients with prostate cancer and their partners are organized during clinical consultations. It found that when clinicians did not align with patients' preferences, it caused discordance in the interaction and led to couples silencing themselves. However, two deviant cases were identified where collaboration was maintained. Therefore, clinicians should acknowledge and create opportunities for discussing treatment preferences by recognizing the contributions of patients and their partners.
SOCIAL SCIENCE & MEDICINE
(2023)
Article
Health Care Sciences & Services
Pei-Jung Hsu, Chia-Ying Wu, Lu-Cheng Kuo, Ming-Yuan Chen, Yu-Ling Chen, Szu-Fen Huang, Pao-Yu Chuang, Jih-Shuin Jerng, Shey-Ying Chen
Summary: This study aimed to assess the effectiveness of an online shared decision-making (SDM) process developed through participatory design. The integration of face-to-face communication and online processes allowed patients to access information, self-assess, and receive feedback, leading to improved SDM practice and effectiveness.
JOURNAL OF PERSONALIZED MEDICINE
(2022)
Article
Oncology
Naomi Q. P. Tan, Shawn P. E. Nishi, Lisa M. Lowenstein, Tito R. Mendoza, Maria A. Lopez-Olivo, Laura C. Crocker, Karen R. Sepucha, Robert J. Volk
Summary: The study found that a better shared decision-making (SDM) process was associated with improved affective-cognitive outcomes among patients screened for lung cancer. Patients with higher SDM process scores showed greater knowledge of lung cancer screening, less decisional conflict, and increased intentions to adhere to screening recommendations and undergo screening again.
Article
Public, Environmental & Occupational Health
Ryan S. Paquin, Susana Peinado, Megan A. Lewis, Barbara B. Biesecker, Christine Rini, Myra Roche, Rita M. Butterfield, Cynthia M. Powell, Jonathan S. Berg, Donald B. Bailey Jr.
Summary: Decision aids with values clarification exercises can help reduce opposition and increase support for genomic sequencing for newborns, as shown by a study on parental beliefs and intentions. Participants who engaged in values clarification exercises showed weaker agreement with statements against sequencing and stronger agreement with reasons supporting sequencing, influencing their intentions to have their newborn sequenced.
SOCIAL SCIENCE & MEDICINE
(2021)
Article
Oncology
Mariam Chichua, Eleonora Brivio, Davide Mazzoni, Gabriella Pravettoni
Summary: This commentary reflects on the literature on post-treatment cancer patient regret, identifying three main aspects of shared decision-making that predict patient regret, and providing recommendations for physicians involved in the process.
SUPPORTIVE CARE IN CANCER
(2022)
Article
Public, Environmental & Occupational Health
Ellen A. Lipstein, Maggie Breslin, Cassandra M. Dodds, Michael D. Kappelman, Nicholas J. Ollberding, Peter Margolis, Yingying Xu, William B. Brinkman
Summary: Through a nested, cluster-randomized trial, we found no difference in knowledge improvement with a shared decision making intervention as part of consent. There were no significant differences in knowledge or decisional support between study arms, but there was variation in clinician use of the intervention.
PATIENT EDUCATION AND COUNSELING
(2021)
Article
Oncology
Lena Josfeld, Christian Keinki, Carolina Pammer, Bijan Zomorodbakhsch, Jutta Huebner
Summary: Shared Decision-Making (SDM) aims to increase patient satisfaction with decisions and improve compliance with cancer treatment. Patients have a high need for information but are often overwhelmed by the amount. Most patients prefer SDM and are interested in information on treatment options in patient decision aids (PDAs).
JOURNAL OF CANCER RESEARCH AND CLINICAL ONCOLOGY
(2021)
Article
Health Care Sciences & Services
Anja Fog Heen, Per Olav Vandvik, Linn Brandt, Victor M. Montori, Lyubov Lytvyn, Gordon Guyatt, Casey Quinlan, Thomas Agoritsas
Summary: The systematic addition of practical issues to evidence summaries is feasible and can provide information for guidelines and tools for shared decision-making, enriching discussions about care alternatives.
JOURNAL OF CLINICAL EPIDEMIOLOGY
(2021)
Article
Clinical Neurology
Constanze Stolz-Klingenberg, Claudia Buenzen, Marie Coors, Charlotte Flueh, Nils G. Margraf, Kai Wehkamp, Marla L. Clayman, Fueloep Scheibler, Felix Wehking, Jens Ulrich Rueffer, Wiebke Schuettig, Leonie Sundmacher, Michael Synowitz, Daniela Berg, Friedemann Geiger
Summary: The study examined the sustainability of the SHARE TO CARE (S2C) program in the Neuromedical Center, showing that patients experienced increased shared decision making (SDM) levels and improved preparation for decision making 6-18 months after the initial implementation.
FRONTIERS IN NEUROLOGY
(2022)
Article
Geosciences, Multidisciplinary
Mirka Laurila-Pant, Mia Pihlajamaki, Antti Lanki, Annukka Lehikoinen
Summary: Acute environmental emergencies require multi-organisational collaboration, but differences in operational systems and cultures can hinder the formation of shared situational awareness. This paper proposes that shared situational awareness is crucial for disaster preparedness and suggests a protocol for monitoring its formation and analyzing its significance in operational decision-making. The protocol can be applied in various emergency contexts to support the development of multi-agent and multi-organisational training.
INTERNATIONAL JOURNAL OF DISASTER RISK REDUCTION
(2023)
Article
Health Care Sciences & Services
Holly O. Witteman, Anne-Sophie Julien, Ruth Ndjaboue, Nicole L. Exe, Valerie C. Kahn, Angela (Angie) Fagerlin, Brian J. Zikmund-Fisher
MEDICAL DECISION MAKING
(2020)
Article
Psychology, Clinical
Nicola McCleary, Noah M. Ivers, J-D Schwalm, Holly O. Witteman, Monica Taljaard, Laura Desveaux, Zachary Bouck, Sherry L. Grace, Madhu K. Natarajan, Jeremy M. Grimshaw, Justin Presseau
Article
Health Care Sciences & Services
Rhea Rocque, Selma Chipenda Dansokho, Roland Grad, Holly O. Witteman
MEDICAL DECISION MAKING
(2020)
Article
Medicine, General & Internal
Noah M. Ivers, Jon-David Schwalm, Zachary Bouck, Tara McCready, Monica Taljaard, Sherry L. Grace, Jennifer Cunningham, Beth Bosiak, Justin Presseau, Holly O. Witteman, Neville Suskin, Harindra C. Wijeysundera, Clare Atzema, R. Sacha Bhatia, Madhu Natarajan, Jeremy M. Grimshaw
BMJ-BRITISH MEDICAL JOURNAL
(2020)
Article
Medical Informatics
Nananda Col, Stephen Hull, Vicky Springmann, Long Ngo, Ernie Merritt, Susan Gold, Michael Sprintz, Noel Genova, Noah Nesin, Brenda Tierman, Frank Sanfilippo, Richard Entel, Lori Pbert
BMC MEDICAL INFORMATICS AND DECISION MAKING
(2020)
Article
Clinical Neurology
Constance H. Fung, Jennifer L. Martin, Li-Jung Liang, Ron D. Hays, Nananda Col, Emily S. Patterson, Karen Josephson, Michael N. Mitchell, Maria C. Sanchez, Ravi Aysola, Yeonsu Song, Joseph M. Dzierzewski, David Huang, Michelle Zeidler, Cathy Alessi
Summary: This study evaluated a new decision aid for older adults with newly diagnosed OSA, finding that the Decide2Rest program reduced decisional conflict, increased preparedness for decision-making, and improved OSA knowledge compared to the control group. Future studies are needed to optimize implementation of the program.
JOURNAL OF CLINICAL SLEEP MEDICINE
(2021)
Article
Health Care Sciences & Services
Laura-Mihaela Bogza, Cassandra Patry-Lebeau, Elina Farmanova, Holly O. Witteman, Jacobi Elliott, Paul Stolee, Carol Hudon, Anik M. C. Giguere
JOURNAL OF MEDICAL INTERNET RESEARCH
(2020)
Article
Health Care Sciences & Services
Marie-Claude Tremblay, Maude Bradette-Laplante, Holly O. Witteman, Maman Joyce Dogba, Pascale Breault, Jean-Sebastien Paquette, Emmanuelle Careau, Sandro Echaquan
Summary: This study used talking circles to identify barriers and enablers to cultural safety in health care for Atikamekw individuals living with diabetes in Quebec, Canada. The results highlighted key aspects such as social determinants of health, health services organization, language and communication, and traditional practices and cultural perspectives of health that influence cultural safety. Solutions to address these barriers will require strong political will and policy support to ensure sustainability of interventions.
HEALTH EXPECTATIONS
(2021)
Article
Health Care Sciences & Services
Gisele Diendere, Imen Farhat, Holly Witteman, Ruth Ndjaboue
Summary: This study found that there was a moderate to no alignment between observers' and patients' ratings of shared decision making using both validated and nonvalidated measures. The lack of strong correlation emphasizes that observer and patient perspectives are not interchangeable. It is important to clearly state whose perspectives are reflected when assessing the presence, absence, or extent of shared decision making.
MEDICAL DECISION MAKING
(2021)
Article
Multidisciplinary Sciences
Holly O. Witteman, Jenna Haverfield, Cara Tannenbaum
Summary: During the COVID-19 pandemic, female scientists' productivity decreased due to increased caregiving responsibilities, but funding agencies can support all applicants and ensure research quality by implementing gender equity policies.
PROCEEDINGS OF THE NATIONAL ACADEMY OF SCIENCES OF THE UNITED STATES OF AMERICA
(2021)
Article
Health Care Sciences & Services
Holly O. Witteman, Gratianne Vaisson, Thierry Provencher, Selma Chipenda Dansokho, Heather Colquhoun, Michele Dugas, Angela Fagerlin, Anik M. C. Giguere, Lynne Haslett, Aubri Hoffman, Noah M. Ivers, France Legare, Marie-Eve Trottier, Dawn Stacey, Robert J. Volk, Jean-Sebastien Renaud
Summary: This paper aims to develop a validated measure to assess the human- or user-centeredness of design and development processes for personal health tools. Through psychometric analysis, a 3-factor structure with 11 items was identified, explaining 68% of the variance. The User-Centered Design 11-item measure (UCD-11) can be used to quantitatively document the user/human-centeredness of design and development processes.
JOURNAL OF MEDICAL INTERNET RESEARCH
(2021)
Article
Health Care Sciences & Services
Holly O. Witteman, Kristin G. Maki, Gratianne Vaisson, Jeanette Finderup, Krystina B. Lewis, Karina Dahl Steffensen, Caroline Beaudoin, Sandrine Comeau, Robert J. Volk
Summary: The study summarized the development processes of 283 patient decision aid projects, finding significant variations and authors self-reported ratings being significantly higher than reviewer ratings.
MEDICAL DECISION MAKING
(2021)
Review
Medicine, General & Internal
Rhea J. Rocque, Caroline Beaudoin, Ruth Ndjaboue, Laura Cameron, Louann Poirier-Bergeron, Rose-Alice Poulin-Rheault, Catherine Fallon, Andrea C. Tricco, Holly O. Witteman
Summary: This study provided a systematic synthesis of 94 systematic reviews on the health impacts of climate change. The majority of reviews suggested a deleterious impact of climate change on multiple adverse health outcomes, while also calling for further research.
Review
Health Care Sciences & Services
Holly O. Witteman, Ruth Ndjaboue, Gratianne Vaisson, Selma Chipenda Dansokho, Bob Arnold, John F. P. Bridges, Sandrine Comeau, Angela Fagerlin, Teresa Gavaruzzi, Melina Marcoux, Arwen Pieterse, Michael Pignone, Thierry Provencher, Charles Racine, Dean Regier, Charlotte Rochefort-Brihay, Praveen Thokala, Marieke Weernink, Douglas B. White, Celia E. Wills, Jesse Jansen
Summary: The study found that explicit values clarification methods can reduce the frequency of values-incongruent choices and decisional conflict compared to implicit methods or control conditions. Multicriteria decision analysis led to more values-congruent decisions. Future research should focus on reporting the effects of values clarification methods on decisional conflict, decisions made, values congruence, and decisional regret.
MEDICAL DECISION MAKING
(2021)
Article
Rheumatology
Laetitia Michou, Anne-Sophie Julien, Holly O. Witteman, Jean Legare, Lucie Ratelle, Alexandra Godbout, Johanne Tardif, Suzanne Cote, Genevieve Boily, Rebecca Lui, Alena Ikic, Judith Trudeau, Jean-Luc Tremblay, Isabelle Fortin, Louis Bessette, Anne-Laure Chetaille, Paul R. Fortin
Summary: This study suggests that for patients with active rheumatoid arthritis receiving biological or targeted synthetic disease-modifying antirheumatic drugs, an educational DVD followed by a teleconference intervention can improve their self-care safety skills in practical situations.
ARCHIVES OF RHEUMATOLOGY
(2022)