Perspectives From Black and White Participants and Care Partners on Return of Amyloid and Tau PET Imaging and Other Research Results

Testing for Alzheimer Disease Biomarkers and Disclosing Results Across the Disease Continuum

(2023) Emily A. Largent et al.   NEUROLOGY

Moving beyond disclosure: Stages of care in preclinical Alzheimer's disease biomarker testing

(2022) Fred B. Ketchum et al.   Alzheimers & Dementia

The Advisory Group on Risk Evidence Education for Dementia: Multidisciplinary and Open to All

(2022) Allyson C. Rosen et al.   JOURNAL OF ALZHEIMERS DISEASE

Disclosing Individual Results in Dementia Research: A Proposed Study Participant’s Bill of Rights

(2022) Sarah Walter et al.   JOURNAL OF ALZHEIMERS DISEASE

Biomarker-Based Risk Prediction of Alzheimer’s Disease Dementia in Mild Cognitive Impairment: Psychosocial, Ethical, and Legal Aspects. Study Protocol of the PreDADQoL Project

(2021) Ayda Rostamzadeh et al.   JOURNAL OF ALZHEIMERS DISEASE

Knowledge and Attitudes of two Latino Groups about Alzheimer Disease: a Qualitative Study

(2021) Laura Y. Cabrera et al.   Journal of Cross-Cultural Gerontology

Disclosure of Amyloid Status for Risk of Alzheimer Disease to Cognitively Normal Research Participants With Subjective Cognitive Decline: A Longitudinal Study

(2020) Taisei Wake et al.   American Journal of Alzheimers Disease and Other Dementias

Cognitively unimpaired adults’ reactions to disclosure of amyloid PET scan results

(2020) Emily A. Largent et al.   PLoS One

Practices and opinions about disclosure of the diagnosis of Alzheimer’s disease to patients with MCI or dementia: a survey among Belgian medical experts in the field of dementia

(2020) Eric Mormont et al.   ACTA NEUROLOGICA BELGICA

A randomized controlled trial of amyloid positron emission tomography results disclosure in mild cognitive impairment

(2020) Jennifer H. Lingler et al.   Alzheimers & Dementia

Short-term Psychological Outcomes of Disclosing Amyloid Imaging Results to Research Participants Who Do Not Have Cognitive Impairment

(2020) Joshua D. Grill et al.   JAMA Neurology

Biomarker counseling, disclosure of diagnosis and follow‐up in patients with mild cognitive impairment: A European Alzheimer's disease consortium survey

(2020) Kristian S. Frederiksen et al.   INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY

Association of Amyloid Positron Emission Tomography With Subsequent Change in Clinical Management Among Medicare Beneficiaries With Mild Cognitive Impairment or Dementia

(2019) Gil D. Rabinovici et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Version 3 of the National Alzheimer’s Coordinating Center’s Uniform Data Set

(2018) Lilah Besser et al.   ALZHEIMER DISEASE & ASSOCIATED DISORDERS

Reactions to learning a “not elevated” amyloid PET result in a preclinical Alzheimer’s disease trial

(2018) Joshua D. Grill et al.   Alzheimers Research & Therapy

Amnestic MCI patients’ experiences after disclosure of their amyloid PET result in a research context

(2017) Gwendolien Vanderschaeghe et al.   Alzheimers Research & Therapy

Disclosure of amyloid status is not a barrier to recruitment in preclinical Alzheimer's disease clinical trials

(2016) Joshua D. Grill et al.   NEUROBIOLOGY OF AGING

A Systematic Review of the Public’s Knowledge and Understanding of Alzheimer’s Disease and Dementia

(2015) Suzanne Cahill et al.   ALZHEIMER DISEASE & ASSOCIATED DISORDERS

Development of a process to disclose amyloid imaging results to cognitively normal older adult research participants

(2015) Kristin Harkins et al.   Alzheimers Research & Therapy

A survey of attitudes toward clinical trials and genetic disclosure in autosomal dominant Alzheimer’s disease

(2015) Joshua D. Grill et al.   Alzheimers Research & Therapy

Public Perceptions of Presymptomatic Testing for Alzheimer Disease

(2014) Richard J. Caselli et al.   MAYO CLINIC PROCEEDINGS

Effect of Knowledge of APOE Genotype on Subjective and Objective Memory Performance in Healthy Older Adults

(2013) Tara T. Lineweaver et al.   AMERICAN JOURNAL OF PSYCHIATRY

The impact of the availability of prevention studies on the desire to undergo predictive testing in persons at risk for autosomal dominant Alzheimer's disease

(2013) Megan Hooper et al.   Contemporary Clinical Trials

Patient and carer views on participating in clinical trials for prodromal Alzheimer's disease and mild cognitive impairment

(2013) Vanessa Lawrence et al.   INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY

The diagnosis of mild cognitive impairment due to Alzheimer’s disease: Recommendations from the National Institute on Aging-Alzheimer’s Association workgroups on diagnostic guidelines for Alzheimer's disease

(2011) Marilyn S. Albert et al.   Alzheimers & Dementia