Article
Rheumatology
Louise Hailey, Chris Bundy, Helen Burstow, David Chandler, Russ Cowper, Philip Helliwell, Lucille Joannes, Andy Kelly, Bronagh Kennedy, Suzannah Kinsella, Helen McAteer, Sandeep Mukherjee, Jon Packham, Elspeth Wise, Helen Young, Laura C. Coates
Summary: Through an online survey and workshop, the top 10 research priorities for psoriatic arthritis (PsA) have been identified, including treatment strategies, diagnosis, prognosis, outcome assessment, flares, comorbidities, and other aspects of treatment.
Article
Medicine, General & Internal
Kristina Staley, Kourosh R. Ahmadi, Karyl Carter, Katherine Cowan, Heidi Seage, Petra Visser, Nicola Ward, Martyn Hooper
Summary: This study aimed to establish a JLA Priority Setting Partnership to identify research priorities related to pernicious anaemia. Through surveys and workshops, the top 10 research questions were determined, focusing on areas such as diagnosis, treatment, and management.
Review
Health Care Sciences & Services
Claire Beecher, Elaine Toomey, Beccy Maeso, Caroline Whiting, Derek C. Stewart, Andrew Worrall, Jim Elliott, Maureen Smith, Theresa Tierney, Bronagh Blackwood, Teresa Maguire, Melissa Kampman, Benny Ling, Catherine Gill, Patricia Healy, Catherine Houghton, Andrew Booth, Chantelle Garritty, James Thomas, Andrea C. Tricco, Nikita N. Burke, Ciara Keenan, Declan Devane
Summary: This article presents the findings of a study that identified and prioritized unanswered research questions on rapid review methodology through large-scale surveys and discussions. The results will guide future research on rapid review methodology and aim to improve the quality of evidence produced.
JOURNAL OF CLINICAL EPIDEMIOLOGY
(2022)
Article
Cardiac & Cardiovascular Systems
Jason Weatherald, Hina Iqbal, Lisa Mielniczuk, Abdul Rehman Syed, Lena Legkaia, Jennifer Howard, Nicole Dempsey, Tamara Rader, John Swiston, Steeve Provencher
Summary: A survey was conducted to determine the priorities for future research in pulmonary hypertension (PH) according to patients, caregivers, and clinicians. By surveying and discussing, the top 10 important questions for PH research were identified. These results will inform researchers and funding bodies about the priorities of patients, caregivers, and clinicians for future research on PH.
JOURNAL OF HEART AND LUNG TRANSPLANTATION
(2023)
Article
Medicine, General & Internal
Toni Zhong, Anisha Mahajan, Katherine Cowan, Claire Temple-Oberle, Geoff Porter, Martin LeBlanc, Kelly Metcalfe
Summary: The study utilized the JLA approach to gather research questions on PMBR from patients, caregivers, and clinicians, resulting in the identification of the top 10 unanswered research questions through a series of prioritization stages. These questions cover various topics such as personalized surgical treatment, implant safety, access to PMBR, breast cancer recurrence, and rehabilitation, highlighting the importance of addressing these key areas in future research to improve the PMBR experience for breast cancer patients.
Article
Respiratory System
Donna Goodridge, Britney Duncan, Katherine Cowan, Sarah Fang, Mark Fenton, Dave Parkalub, Jaimie Peters, Robert Skomro, Candace Skrapek, Kendra Ulmer
Summary: This study surveyed the research priorities of patients with obstructive sleep apnoea (OSA), their family members, and clinicians. The top 10 research priorities were identified through a series of surveys and workshops. The results will help align the efforts of funders, researchers, and policy-makers with stakeholder priorities related to OSA.
Article
Medicine, General & Internal
Christina Maria van der Feltz-Cornelis, Jennifer Sweetman, Mark Edwards, Nicholas Gall, Jennifer Gilligan, Stephanie Hayle, Arvind Kaul, Andrew Stephen Moriarty, Petros Perros, James Sampford, Natalie Smith, Iman Elfeddali, Danielle Varley, Jonathan Gower
Summary: This study establishes research priorities for medically unexplained symptoms from the perspective of patients, caregivers, and clinicians, using the JLA approach. The top 10 unanswered research questions cover topics such as treatment strategies, personalization of treatment, collaborative care pathways, clinician training, and patient-centered outcomes.
Article
Medicine, General & Internal
Filippo Varese, Catherine White, Eleanor Longden, Christina Charalambous, Kate Meehan, Imogen Partington, Efa Ashman, Lowri Marsh, Elizabeth Yule, Laila Mohamed, Jane Chevous, Emma Harewood, Toto Gronlund, Anne-Marie Jones, Samira Malik, Charlotte Maxwell, Concetta Perot, Shani Sephton, Daniel Taggart, Lynne Tooze, Rabiya Majeed-Ariss
Summary: The objective of this study is to establish a James Lind Alliance Priority Setting Partnership (PSP) and identify research priorities relevant to the health and social care needs of adults with lived experience of sexual violence/abuse. Through online surveys and a consensus meeting, participants proposed and identified research questions related to the health and social care needs of survivors.
Letter
Dermatology
Alistair C. Brown, Eleanor M. Earp, David Veitch, Aaron Wernham
Summary: The incidence of skin cancer is increasing and surgery is the primary treatment. The James Lind Alliance (JLA) established a partnership to address research uncertainties in skin cancer surgery. This report presents the top ten research priorities identified by the JLA partnership in skin cancer surgery.
BRITISH JOURNAL OF DERMATOLOGY
(2023)
Article
Medicine, General & Internal
Harvinder Pal Singh, Han Hong Chong, Parag Raval, Pip Divall, Amar Rangan, Marcus Bateman, Adam Watts, Joideep Phadnis, Addie Majed, Valerie Jones, Radhakant Pandey, Jonathan Gower, Steve Gwilym, Chris Peach
Summary: This study conducted a UK-based James Lind Alliance (JLA) Priority Setting Partnership for elbow conditions to identify the top 10 research priority questions. The results will guide future efforts in diagnosis, treatment, and rehabilitation of elbow conditions.
Article
Medicine, General & Internal
Christopher Patrick Bretherton, Henry A. Claireaux, Jonathan Gower, Shan Martin, Angela Thornhill, Louise Johnson, Lucy Silvester, Rebecca Samantha Kearney, Mark Baxter, Paul Dixon, Victoria Giblin, Xavier Luke Griffin, William Eardley
Summary: The top 10 research priorities for the management of complex fractures were determined through a multiphase priority setting exercise involving patients, their families, carers, and healthcare professionals. These shared priorities will guide future research efforts in this field.
Review
Oncology
Shelley Potter, Katherine Fairhurst, Katherine Cowan, Simon Vincent, Ian Lewis, Ramsey Cutress, Hilary Stobart, Patricia Fairbrother, Sophia Turner, Kayleigh Davies-Crowley, Ranjeet Jeevan, Tim Rattay, Rachel O'Connell, Nigel Bundred, Stuart A. McIntosh
Summary: A James Lind Alliance priority setting partnership was established to identify research priorities in breast cancer surgery. Data was collected through an online survey, and after analysis and discussion, the top 10 research priorities were determined.
BREAST CANCER RESEARCH AND TREATMENT
(2023)
Article
Dermatology
Louise Jane Dunford, Kathy Radley, Margaret McPhee, Louise McDonald, Richard John Oliver, Anton Alexandroff, Hana Amber Hussain, Janice Adasa Miller, Maryrose Tarpey, Andrew Victor Clifton
Summary: This study aimed to generate a Top 10 list of research priorities for the treatment and management of hyperhidrosis, with input from both people with hyperhidrosis and healthcare professionals. Through an online survey and workshop event, the top three research priorities were identified as finding safe and effective permanent solutions, determining the most effective and safe oral treatment, and exploring ways to reduce sweating in specific areas of the body. The results will guide future research funding towards these priority areas.
CLINICAL AND EXPERIMENTAL DERMATOLOGY
(2022)
Article
Medicine, General & Internal
Alexia Karantana, Tim Davis, Donna Kennedy, Debbie Larson, Dominic Furniss, Douglas J. Grindlay, Katherine Cowan, Grey Giddins, Abhilash Jain, Ryan W. Trickett
Summary: The study prioritized important treatment uncertainties for common conditions affecting the hand and wrist through a UK-based partnership. By using survey questionnaires and workshops, the top 10 research priorities were identified, contributing to over £3.8 million in research funding awards.
Article
Medicine, General & Internal
Jitendra Mangwani, Melinda Hau, Lauren Thomson
Summary: This study aims to identify the priorities of research in surgical interventions and aftercare in foot and ankle conditions in adults, from the perspectives of patients, carers, allied professionals, and clinicians. The results will guide national research and prioritize areas of research interest to improve patient care, which is of great significance.
