Patient-reported outcomes versus proxy-reported outcomes in supportive and palliative care: a summary of recent literature

Proxy responses regarding quality of life of patients with terminal lung cancer: preliminary results from a prospective observational study

(2022) Tomoyuki Takura et al.   BMJ Open

The age and well-being “paradox”: a longitudinal and multidimensional reconsideration

(2022) Thomas Hansen et al.   European Journal of Ageing

Palliative Care Intervention Trials for Adults Living With Progressive Central Nervous System Diseases and Their Caregivers: A Systematic Review

(2021) HeatherE. Leeper et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Palliative Oncological Patients with Insomnia: Concerns of the Patients and Their Relatives’ Perception

(2021) Antoni Font Guiteras et al.   International Journal of Environmental Research and Public Health

Glioma patient-reported outcome assessment in clinical care and research: a Response Assessment in Neuro-Oncology collaborative report

(2020) Terri S Armstrong et al.   LANCET ONCOLOGY

An observational study on quality of life and preferences to sustain life in locked-in state

(2019) Magdalena Kuzma-Kozakiewicz et al.   NEUROLOGY

Capture, Transfer, and Feedback of Patient-Centered Outcomes Data in Palliative Care Populations: Does It Make a Difference? A Systematic Review

(2015) Simon Noah Etkind et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

EAPC White Paper on outcome measurement in palliative care: Improving practice, attaining outcomes and delivering quality services – Recommendations from the European Association for Palliative Care (EAPC) Task Force on Outcome Measurement

(2015) Claudia Bausewein et al.   PALLIATIVE MEDICINE

Magnitude and Causes of Bias Among Family Caregivers Rating Alzheimer Disease Patients

(2013) Richard Schulz et al.   AMERICAN JOURNAL OF GERIATRIC PSYCHIATRY

The Selection and Use of Outcome Measures in Palliative and End-of-Life Care Research: The MORECare International Consensus Workshop

(2013) Catherine J. Evans et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Implementing patient-reported outcome measures in palliative care clinical practice: A systematic review of facilitators and barriers

(2013) Bárbara Antunes et al.   PALLIATIVE MEDICINE

A Brief Patient-Reported Outcomes Quality of Life (PROQOL) Instrument to Improve Patient Care

(2013) Jennifer L. Ridgeway et al.   PLOS MEDICINE

Implementing patient reported outcome measures (PROMs) in palliative care - users' cry for help

(2011) Claudia Bausewein et al.   Health and Quality of Life Outcomes

Reliability of Proxy Respondents for Patients With Stroke: A Systematic Review

(2010) Colin Oczkowski et al.   Journal of Stroke & Cerebrovascular Diseases