Participant perspective on the recall-by-genotype research approach: a mixed-method embedded study with participants of the CHRIS study
出版年份 2023 全文链接
标题
Participant perspective on the recall-by-genotype research approach: a mixed-method embedded study with participants of the CHRIS study
作者
关键词
-
出版物
EUROPEAN JOURNAL OF HUMAN GENETICS
Volume -, Issue -, Pages -
出版商
Springer Science and Business Media LLC
发表日期
2023-01-04
DOI
10.1038/s41431-022-01277-6
参考文献
相关参考文献
注意:仅列出部分参考文献,下载原文获取全部文献信息。- Ten years of dynamic consent in the CHRIS study: informed consent as a dynamic process
- (2022) Deborah Mascalzoni et al. EUROPEAN JOURNAL OF HUMAN GENETICS
- Balancing scientific interests and the rights of participants in designing a recall by genotype study
- (2021) Deborah Mascalzoni et al. EUROPEAN JOURNAL OF HUMAN GENETICS
- Task matters - challenging the motor system allows distinguishing unaffected Parkin mutation carriers from mutation-free controls
- (2021) Jannik Prasuhn et al. PARKINSONISM & RELATED DISORDERS
- Return of research results (RoRR) to the healthy CHRIS cohort: designing a policy with the participants
- (2021) Ciara Staunton et al. Journal of Community Genetics
- Formalising recall by genotype as an efficient approach to detailed phenotyping and causal inference
- (2018) Laura J. Corbin et al. Nature Communications
- The ethics conundrum in Recall by Genotype (RbG) research: Perspectives from birth cohort participants
- (2018) Joel T. Minion et al. PLoS One
- The Cooperative Health Research in South Tyrol (CHRIS) study: rationale, objectives, and preliminary results
- (2015) Cristian Pattaro et al. Journal of Translational Medicine
- Compensatory premotor activity during affective face processing in subclinical carriers of a single mutant Parkin allele
- (2012) S. Anders et al. BRAIN
- Am I a control?: Genotype-driven research recruitment and self-understandings of study participants
- (2012) Marsha Michie et al. GENETICS IN MEDICINE
- Recommendations for ethical approaches to genotype-driven research recruitment
- (2012) Laura M. Beskow et al. HUMAN GENETICS
- Epilepsy Patient-Participants and Genetic Research Results as “Answers”
- (2012) Emily E. Namey et al. Journal of Empirical Research on Human Research Ethics
- Research Participants' Perspectives on Genotype-Driven Research Recruitment
- (2012) Laura M. Beskow et al. Journal of Empirical Research on Human Research Ethics
- The Meaning of Genetic Research Results: Reflections from Individuals with and without a Known Genetic Disorder
- (2012) R. Jean Cadigan et al. Journal of Empirical Research on Human Research Ethics
- Parent Perspectives on Pediatric Genetic Research and Implications for Genotype-Driven Research Recruitment
- (2012) Holly K. Tabor et al. Journal of Empirical Research on Human Research Ethics
- Ethical challenges in genotype-driven research recruitment
- (2010) L. M. Beskow et al. GENOME RESEARCH
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