期刊
JOURNAL OF MATERNAL-FETAL & NEONATAL MEDICINE
卷 30, 期 6, 页码 755-758出版社
TAYLOR & FRANCIS LTD
DOI: 10.1080/14767058.2016.1186633
关键词
Ethical issue; fetal abnormality; information; palliative care; perinatal medicine
Objective: Some of the antenatally diagnosed fetal pathologies are unlikely to get compatible with life. Still some women choose to continue with pregnancy. Subsequently, perinatal palliative care (PPC) has become a constructive demarche in such situations. Our study, based on a multicentric survey, reports some cases of fetal pathologies considered as lethal according to perinatal professionals and reveals the decisional process in each case. Methods: We sent by emails a questionnaire to 434 maternal-fetal medicine specialists and fetal care pediatric specialists at 48 multidisciplinary centers for prenatal diagnosis. Results: The participation rate was 49.3%. In total, 61 obstetric-gynecologists and 68 neonatologists completed the survey. The results showed that 35.4% of the pregnant women asked for the continuation of pregnancy and 24.7% asked for the termination of pregnancy. More than half of professionals (52.9%) took the initiative of informing women about the options for birth support (including PPC), while 32.7% of obstetric gynecologists did not take this initiative versus 10.2% of neonatologists (p <0.01). Conclusion: This study demonstrates the absolute need to provide PPC training for professionals and to standardize its practices.
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