Building from Patient Experiences to Deliver Patient-Focused Healthcare Systems in Collaboration with Patients: A Call to Action

Strengthening patient outcome evidence in health technology assessment: a coproduction approach

(2021) Mark Rasburn et al.   INTERNATIONAL JOURNAL OF TECHNOLOGY ASSESSMENT IN HEALTH CARE

The impact of patient and public involvement in health research versus healthcare: A scoping review of reviews

(2021) Anton Modigh et al.   HEALTH POLICY

U.S. Food and Drug Administration’s Patient-Focused Drug Development Initiative: Experience with Integration of Patient-Experience Data in a New Drug Application for Esketamine Nasal Spray Plus a Newly Initiated Oral Antidepressant for Treatment-Resistant Depression

(2021) Eva G. Katz et al.   Therapeutic Innovation & Regulatory Science

FDA Reported Use of Patient Experience Data in 2018 Drug Approvals

(2020) Cameron M. Kieffer et al.   Therapeutic Innovation & Regulatory Science

Using patient-reported measures to drive change in healthcare: the experience of the digital, continuous and systematic PREMs observatory in Italy

(2020) Sabina De Rosis et al.   BMC HEALTH SERVICES RESEARCH

Differential Impact of Heart Failure With Reduced Ejection Fraction on Men and Women

(2019) Pooja Dewan et al.   JOURNAL OF THE AMERICAN COLLEGE OF CARDIOLOGY

The bowel preparation for magnetic resonance enterography in patients with Crohn’s disease: study protocol for a randomized controlled trial

(2019) Min Dai et al.   Trials

Measuring patient-centred system performance: a scoping review of patient-centred care quality indicators

(2019) Maria-Jose Santana et al.   BMJ Open

Collecting and using patient experience data: Caution, commitment and consistency are needed

(2019) Mary Chambers et al.   HEALTH EXPECTATIONS

A systematic review of the validity and reliability of patient-reported experience measures

(2019) Claudia Bull et al.   HEALTH SERVICES RESEARCH

Patient perspectives on the linkage of health data for research: Insights from an online patient community questionnaire

(2019) Emily C. O’Brien et al.   INTERNATIONAL JOURNAL OF MEDICAL INFORMATICS

Stories of Patient Involvement Impact in Health Technology Assessments: A Discussion Paper

(2019) Ann N.V. Single et al.   INTERNATIONAL JOURNAL OF TECHNOLOGY ASSESSMENT IN HEALTH CARE

Estimating the success of re-identifications in incomplete datasets using generative models

(2019) Luc Rocher et al.   Nature Communications

Sex Differences in the Use of Statins in Community Practice

(2019) Michael G. Nanna et al.  

Patient experience of hospital care in China: major findings from the Chinese Patient Experience Questionnaire Survey (2016–2018)

(2019) Guangyu Hu et al.   BMJ Open

Patients’ and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence

(2019) Shona Kalkman et al.   JOURNAL OF MEDICAL ETHICS

Gender Disparities in Presentation, Management, and Outcomes of Acute Myocardial Infarction

(2018) Matthew Liakos et al.   Current Cardiology Reports

Research waste is still a scandal—an essay by Paul Glasziou and Iain Chalmers

(2018) Paul Glasziou et al.   BMJ-British Medical Journal

Gender Differences in Patient‐Reported Outcomes Among Adults With Atherosclerotic Cardiovascular Disease

(2018) Victor Okunrintemi et al.   Journal of the American Heart Association

How to practice person-centred care: A conceptual framework

(2017) Maria J. Santana et al.   HEALTH EXPECTATIONS

Whose Data Are They Anyway? Can a Patient Perspective Advance the Data-Sharing Debate?

(2017) Charlotte J. Haug   NEW ENGLAND JOURNAL OF MEDICINE

COSMIN Risk of Bias checklist for systematic reviews of Patient-Reported Outcome Measures

(2017) L. B. Mokkink et al.   QUALITY OF LIFE RESEARCH

The COMET Handbook: version 1.0

(2017) Paula R. Williamson et al.   Trials

Preference for subcutaneous or intravenous administration of rituximab among patients with untreated CD20+ diffuse large B-cell lymphoma or follicular lymphoma: results from a prospective, randomized, open-label, crossover study (PrefMab)

(2016) M. Rummel et al.   ANNALS OF ONCOLOGY

Patient involvement in the development of patient-reported outcome measures: a scoping review

(2016) Bianca Wiering et al.   HEALTH EXPECTATIONS

Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study

(2016) Karen Spencer et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Can we use patient-reported feedback to drive change? The challenges of using patient-reported feedback and how they might be addressed

(2016) Kelsey Margaret Flott et al.   BMJ Quality & Safety

Systematic review of approaches to using patient experience data for quality improvement in healthcare settings

(2016) Helen Gleeson et al.   BMJ Open

A short generic patient experience questionnaire: howRwedevelopment and validation

(2014) Tim Benson et al.   BMC HEALTH SERVICES RESEARCH

Biomedical research: increasing value, reducing waste

(2014) Malcolm R Macleod et al.   LANCET

Harnessing the cloud of patient experience: using social media to detect poor quality healthcare: Table 1

(2013) Felix Greaves et al.   BMJ Quality & Safety

Impacts on work absence and performance: what really matters?

(2009) G. Wynne-Jones et al.   OCCUPATIONAL MEDICINE-OXFORD

Can Additional Patient Experience Items Improve the Reliability of and Add New Domains to the CAHPS®Hospital Survey?

(2008) Arlyss Anderson Rothman et al.   HEALTH SERVICES RESEARCH