Remote digital assessment of amyotrophic lateral sclerosis functional rating scale – a multicenter observational study

Using Smartphones to Reduce Research Burden in a Neurodegenerative Population and Assessing Participant Adherence: A Randomized Clinical Trial and Two Observational Studies

(2022) Anna L Beukenhorst et al.   JMIR mHealth and uHealth

Patient reported outcomes in ALS: characteristics of the self-entry ALS Functional Rating Scale-revised and the Activities-specific Balance Confidence Scale

(2021) Sheena Chew et al.   Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

A Road Map for Remote Digital Health Technology for Motor Neuron Disease

(2021) Ruben P A van Eijk et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Symptomatic pharmacotherapy in ALS: data analysis from a platform-based medication management programme

(2020) Thomas Meyer et al.   JOURNAL OF NEUROLOGY NEUROSURGERY AND PSYCHIATRY

Improved ALS clinical trials through frequent at‐home self‐assessment: a proof of concept study

(2020) Seward B. Rutkove et al.   Annals of Clinical and Translational Neurology

Frequent self‐assessments in ALS Clinical Trials: worthwhile or an unnecessary burden for patients?

(2020) Ruben P. A. Eijk   Annals of Clinical and Translational Neurology

Design and results of a smartphone‐based digital phenotyping study to quantify ALS progression

(2019) James D. Berry et al.   Annals of Clinical and Translational Neurology

Real world experience of patients with amyotrophic lateral sclerosis (ALS) in the treatment of spasticity using tetrahydrocannabinol:cannabidiol (THC:CBD)

(2019) Thomas Meyer et al.   BMC Neurology

Development and assessment of the inter-rater and intra-rater reproducibility of a self-administration version of the ALSFRS-R

(2019) Leonhard A Bakker et al.   JOURNAL OF NEUROLOGY NEUROSURGERY AND PSYCHIATRY

Process evaluation and exploration of telehealth in motor neuron disease in a UK specialist centre

(2019) Esther Hobson et al.   BMJ Open

Using telehealth in motor neuron disease to increase access to specialist multidisciplinary care: a UK-based pilot and feasibility study

(2019) Esther V Hobson et al.   BMJ Open

The current use of telehealth in ALS care and the barriers to and facilitators of implementation: a systematic review

(2019) Jochem Helleman et al.   Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

Objectively Monitoring Amyotrophic Lateral Sclerosis Patient Symptoms During Clinical Trials With Sensors: Observational Study

(2019) Luis Garcia-Gancedo et al.   JMIR mHealth and uHealth

Prognosis for patients with amyotrophic lateral sclerosis: development and validation of a personalised prediction model

(2018) Henk-Jan Westeneng et al.   LANCET NEUROLOGY

Provision of assistive technology devices among people with ALS in Germany: a platform-case management approach

(2018) Andreas Funke et al.   Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

The TiM system: developing a novel telehealth service to improve access to specialist care in motor neurone disease using user-centered design

(2018) Esther V. Hobson et al.   Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

ALS longitudinal studies with frequent data collection at home: study design and baseline data

(2018) Seward B. Rutkove et al.   Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

Estimating clinical stage of amyotrophic lateral sclerosis from the ALS Functional Rating Scale

(2014) Rubika Balendra et al.   Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

Validation of the German version of the extended ALS functional rating scale as a patient-reported outcome measure

(2013) Susanne Abdulla et al.   JOURNAL OF NEUROLOGY

Online assessment of ALS functional rating scale compares well to in-clinic evaluation: A prospective trial

(2012) André Maier et al.   Amyotrophic Lateral Sclerosis

ALSFRS and appel ALS scores: Discordance with disease progression

(2008) Andrei Voustianiouk et al.   MUSCLE & NERVE