Quality of Life and Well-Being for Children and Youth With Special Health Care Needs and their Families: A Vision for the Future

A Blueprint for Change: Guiding Principles for a System of Services for Children and Youth With Special Health Care Needs and Their Families

(2022) Sarah E. McLellan et al.   PEDIATRICS

Physicians’ Perceptions Of People With Disability And Their Health Care

(2021) Lisa I. Iezzoni et al.   HEALTH AFFAIRS

Following Patients With Inborn Errors of Metabolism: What Do We Value and How Do We Know?

(2021) Jeffrey P. Brosco et al.   PEDIATRICS

Core Outcome Sets for Medium-Chain Acyl-CoA Dehydrogenase Deficiency and Phenylketonuria

(2021) Michael Pugliese et al.   PEDIATRICS

Better Health Service Use for Families of Children With Special Health Care Needs

(2020) Christopher J. Stille   PEDIATRICS

What do parents value regarding pediatric palliative and hospice care in the home setting?

(2020) Jackelyn Y. Boyden et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Primary palliative care: Skills for all clinicians

(2020) Sue S. Sreedhar et al.   Current Problems in Pediatric and Adolescent Health Care

Respite care services for children with special healthcare needs: Parental perceptions

(2018) Kim E. Whitmore et al.   Journal for Specialists in Pediatric Nursing

Status Complexicus? The Emergence of Pediatric Complex Care

(2018) Eyal Cohen et al.   PEDIATRICS

What Parents of Children With Complex Medical Conditions Want Their Child’s Physicians to Understand

(2018) Angela Carosella et al.   JAMA Pediatrics

A Healthy Life for a Child With Medical Complexity: 10 Domains for Conceptualizing Health

(2018) Elizabeth S. Barnert et al.   PEDIATRICS

Psychosocial Factors in Children and Youth With Special Health Care Needs and Their Families

(2018) Gerri Mattson et al.   PEDIATRICS

Innovative Health Care Financing Strategies for Children and Youth With Special Health Care Needs

(2017) James M. Perrin   PEDIATRICS

The Eye of the Beholder: A Discussion of Value and Quality From the Perspective of Families of Children and Youth With Special Health Care Needs

(2017) Betsy Anderson et al.   PEDIATRICS

Condition-specific quality of life questionnaires for caregivers of children with pediatric conditions: a systematic review

(2013) Maria Yui Kwan Chow et al.   QUALITY OF LIFE RESEARCH

The ‘F-words’ in childhood disability: I swear this is how we should think!

(2011) P. Rosenbaum et al.   CHILD CARE HEALTH AND DEVELOPMENT