Consent for rapid genomic sequencing for critically ill children: legal and ethical issues

Should we respect parents’ views about which results to return from genomic sequencing?

(2021) D. F. Vears   HUMAN GENETICS

The theorisation of ‘best interests’ in bioethical accounts of decision-making

(2021) Giles Birchley   BMC Medical Ethics

Parents’ experiences of decision making for rapid genomic sequencing in intensive care

(2021) Fiona Lynch et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Rapid genomic testing for critically ill children: time to become standard of care?

(2021) Zornitza Stark et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Parental experiences of ultrarapid genomic testing for their critically unwell infants and children

(2020) Gemma R. Brett et al.   GENETICS IN MEDICINE

Feasibility of Ultra-Rapid Exome Sequencing in Critically Ill Infants and Children With Suspected Monogenic Conditions in the Australian Public Health Care System

(2020) et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Rapid acute care genomics: Challenges and opportunities for genetic counselors

(2020) Fiona Lynch et al.   Journal of Genetic Counseling

Rapid Challenges: Ethics and Genomic Neonatal Intensive Care

(2019) Christopher Gyngell et al.   PEDIATRICS

Meeting the challenges of implementing rapid genomic testing in acute pediatric care

(2018) Zornitza Stark et al.   GENETICS IN MEDICINE

Rapid whole-genome sequencing decreases infant morbidity and cost of hospitalization

(2018) Lauge Farnaes et al.   npj Genomic Medicine

The best interest standard and children: clarifying a concept and responding to its critics

(2018) Johan Christiaan Bester   JOURNAL OF MEDICAL ETHICS

The importance of genetic counselling in genome-wide sequencing

(2018) Alison M. Elliott et al.   NATURE REVIEWS GENETICS

Whole-Genome Sequencing and Disability in the NICU: Exploring Practical and Ethical Challenges

(2016) M. J. Deem   PEDIATRICS

Genomic intensive care: should we perform genome testing in critically ill newborns?: Table 1

(2015) Dominic JC Wilkinson et al.   Archives of Disease in Childhood-Fetal and Neonatal Edition

Harm is all you need? Best interests and disputes about parental decision-making

(2015) Giles Birchley   JOURNAL OF MEDICAL ETHICS

Whole-Exome Sequencing and Whole-Genome Sequencing in Critically Ill Neonates Suspected to Have Single-Gene Disorders

(2015) Laurie D. Smith et al.   Cold Spring Harbor Perspectives in Medicine