Participation, Empowerment, and Evidence in the Current Discourse on Personalized Medicine: A Critique of Democratizing Healthcare

Democratization has recently become a popular trope in Western public discourses on medicine, where it refers to patient participation in the gathering and distribution of health-related data using various digital technologies, in order to improve healthcare technically and socially. We critically analyze the usage of the term from the perspective of the politics of buzzwords. Our claim is that the phrase works primarily to publicly justify the dramatic increase in the application of information and data technologies in healthcare and therefore fosters the corresponding industry. As a buzzword, democratizing healthcare is characterized by vagueness, which is why it receives meaning only through a word collective-a group of words that provide it with a context and are often used together with it. We examine key terms associated with democratization in the healthcare discourse-participation, empowerment, and personalized medicine-and show that the buzzword receives rhetorical power through the ambiguous reference to these concepts (those that are part of the word collective). As a consequence, the idea of democracy becomes diluted into meaning merely access to, and healthcare is reduced to the notion of a preventive, nonacute, monitored form of medical care.

Automated summary

The article critically analyzes the usage of the term democratization in the healthcare discourse, suggesting that it primarily serves to publicly justify the significant increase in the application of information and data technologies in healthcare and foster the corresponding industry. Democratizing healthcare, as a buzzword, is characterized by vagueness and only gains meaning through a word collective.