Processes of consent in research for adults with impaired mental capacity nearing the end of life: systematic review and transparent expert consultation (MORECare_Capacity statement)
出版年份 2020 全文链接
标题
Processes of consent in research for adults with impaired mental capacity nearing the end of life: systematic review and transparent expert consultation (MORECare_Capacity statement)
作者
关键词
-
出版物
BMC Medicine
Volume 18, Issue 1, Pages -
出版商
Springer Science and Business Media LLC
发表日期
2020-07-22
DOI
10.1186/s12916-020-01654-2
参考文献
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注意:仅列出部分参考文献,下载原文获取全部文献信息。- The escalating global burden of serious health-related suffering: projections to 2060 by world regions, age groups, and health conditions
- (2019) Katherine E Sleeman et al. Lancet Global Health
- The AMBER care bundle for hospital inpatients with uncertain recovery nearing the end of life: the ImproveCare feasibility cluster RCT
- (2019) Jonathan Koffman et al. HEALTH TECHNOLOGY ASSESSMENT
- Managing uncertain recovery for patients nearing the end of life in hospital: a mixed-methods feasibility cluster randomised controlled trial of the AMBER care bundle
- (2019) J. Koffman et al. Trials
- Testing decision-making competency of schizophrenia participants in clinical trials. A meta-analysis and meta-regression
- (2018) Sorin Hostiuc et al. BMC Psychiatry
- Healthcare professionals’ understanding of the legislation governing research involving adults lacking mental capacity in England and Wales: a national survey
- (2018) Victoria Shepherd et al. JOURNAL OF MEDICAL ETHICS
- Alleviating the access abyss in palliative care and pain relief—an imperative of universal health coverage: the Lancet Commission report
- (2018) Felicia Marie Knaul et al. LANCET
- A cluster randomised feasibility trial of clinically assisted hydration in cancer patients in the last days of life
- (2018) Andrew N Davies et al. PALLIATIVE MEDICINE
- How can a measure improve assessment and management of symptoms and concerns for people with dementia in care homes? A mixed-methods feasibility and process evaluation of IPOS-Dem
- (2018) Clare Ellis-Smith et al. PLoS One
- Promoting Research in Advanced Dementia: Early Clinical Results of the Alzheimer Center Reina Sofía Foundation
- (2018) Javier Olazarán et al. JOURNAL OF ALZHEIMERS DISEASE
- Informed consent in dental care and research for the older adult population
- (2017) Amrita Mukherjee et al. JOURNAL OF THE AMERICAN DENTAL ASSOCIATION
- Effect of informed consent on patient characteristics in a stroke thrombolysis trial
- (2017) Götz Thomalla et al. NEUROLOGY
- Living and dying with advanced dementia: A prospective cohort study of symptoms, service use and care at the end of life
- (2017) Elizabeth L Sampson et al. PALLIATIVE MEDICINE
- Multimedia Aided Consent for Alzheimer’s Disease Research
- (2017) Barton W. Palmer et al. Clinical Gerontologist
- Using iterative learning to improve understanding during the informed consent process in a South African psychiatric genomics study
- (2017) Megan M. Campbell et al. PLoS One
- How do patients feel about taking part in clinical trials in emergency care?: Table 1
- (2016) Joseph M Buckley et al. EMERGENCY MEDICINE JOURNAL
- Feasibility of conducting prospective observational research on critically ill, dying patients in the intensive care unit
- (2016) Amanda van Beinum et al. JOURNAL OF MEDICAL ETHICS
- Patients' views of consent in clinical trials for acute myocardial infarction: impact of trial design
- (2016) Neal W Dickert et al. JOURNAL OF MEDICAL ETHICS
- The Deferred Consent Model in a Prospective Observational Study Evaluating Myocardial Injury in the Intensive Care Unit
- (2016) Kimia Honarmand et al. JOURNAL OF INTENSIVE CARE MEDICINE
- A Systematic Review of Strategies Used to Increase Recruitment of People With Cancer or Organ Failure Into Clinical Trials: Implications for Palliative Care Research
- (2015) Jason Boland et al. JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
- Pain, agitation, and behavioural problems in people with dementia admitted to general hospital wards
- (2015) Elizabeth L. Sampson et al. PAIN
- The value of uncertainty in critical illness? An ethnographic study of patterns and conflicts in care and decision-making trajectories
- (2015) I. J. Higginson et al. BMC Anesthesiology
- Evaluating the feasibility and effectiveness of a critical care discharge information pack for patients and their families: a pilot cluster randomised controlled trial
- (2015) Suzanne Bench et al. BMJ Open
- Exploring Determinants of Surrogate Decision-Maker Confidence
- (2014) Dragana Bolcic-Jankovic et al. Journal of Empirical Research on Human Research Ethics
- Assessing sarcopenic prevalence and risk factors in residential aged care: methodology and feasibility
- (2014) Timothy R. Henwood et al. Journal of Cachexia Sarcopenia and Muscle
- The Use of Delayed Telephone Informed Consent for Observational Emergency Medicine Research Is Ethical and Effective
- (2013) Steven R. Offerman et al. ACADEMIC EMERGENCY MEDICINE
- Public's Approach to Surrogate Consent for Dementia Research: Cautious Pragmatism
- (2013) Raymond De Vries et al. AMERICAN JOURNAL OF GERIATRIC PSYCHIATRY
- Evidence for Improving Palliative Care at the End of Life: A Systematic Review
- (2013) Karl A. Lorenz et al. ANNALS OF INTERNAL MEDICINE
- MORECare research methods guidance development: Recommendations for ethical issues in palliative and end-of-life care research
- (2013) Marjolein Gysels et al. PALLIATIVE MEDICINE
- Consent, including advanced consent, of older adults to research in care homes: a qualitative study of stakeholders’ views in South Wales
- (2013) Fiona Wood et al. Trials
- Enhancing the informed consent process for critical care research: Strategies from a thromboprophylaxis trial
- (2013) Orla M. Smith et al. Intensive and Critical Care Nursing
- Recruiting Terminally Ill Patients into Non-Therapeutic Oncology Studies: views of Health Professionals
- (2012) Erika Kleiderman et al. BMC Medical Ethics
- Patient, caregiver, health professional and researcher views and experiences of participating in research at the end of life: a critical interpretive synthesis of the literature
- (2012) Marjolein H Gysels et al. BMC Medical Research Methodology
- Surrogate decision makers’ attitudes towards research decision making for critically ill patients
- (2012) Kali A. Barrett et al. INTENSIVE CARE MEDICINE
- Parenteral Hydration in Patients With Advanced Cancer: A Multicenter, Double-Blind, Placebo-Controlled Randomized Trial
- (2012) Eduardo Bruera et al. JOURNAL OF CLINICAL ONCOLOGY
- Impact of the demand for ‘proxy assent’ on recruitment to a randomised controlled trial of vaccination testing in care homes
- (2012) Paul James Whelan et al. JOURNAL OF MEDICAL ETHICS
- Overcoming Barriers to Recruitment in Care of the Dying Research in Hospitals
- (2012) Jane Gibbins et al. JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
- Extent of palliative care need in the acute hospital setting: A survey of two acute hospitals in the UK
- (2012) Clare Gardiner et al. PALLIATIVE MEDICINE
- Preliminary study of a web-based tool for enhancing the informed consent process in schizophrenia research
- (2012) Alexandrea L. Harmell et al. SCHIZOPHRENIA RESEARCH
- CoMPASs: IOn programme (Care Of Memory Problems in Advanced Stages of dementia: Improving Our Knowledge): protocol for a mixed methods study
- (2012) Louise Jones et al. BMJ Open
- Culture, consent, costs and care homes: Enabling older people with dementia to participate in research
- (2011) Claire Goodman et al. AGING & MENTAL HEALTH
- Designing Research With Hospice and Palliative Care Populations
- (2011) Ashley M. Wohleber et al. American Journal of Hospice & Palliative Medicine
- Preservation of the Capacity to Appoint a Proxy Decision Maker
- (2011) Scott Y. H. Kim et al. ARCHIVES OF GENERAL PSYCHIATRY
- Effect of public deliberation on attitudes toward surrogate consent for dementia research
- (2011) S. Y. H. Kim et al. NEUROLOGY
- Conduct of emergency research in patients unable to give consent—Experiences and perceptions of patients, their consent providing next of kin, and treating physicians following a prehospital resuscitation trial
- (2011) Antti Kämäräinen et al. RESUSCITATION
- Using the Delphi Technique to Determine Which Outcomes to Measure in Clinical Trials: Recommendations for the Future Based on a Systematic Review of Existing Studies
- (2011) Ian P. Sinha et al. PLOS MEDICINE
- Study Protocol: The Behaviour and Pain in Dementia Study (BePAID)
- (2011) Sharon Scott et al. BMC Geriatrics
- Attitudes of the General Public Toward Alternative Consent Models
- (2010) K. E. A. Burns et al. AMERICAN JOURNAL OF CRITICAL CARE
- A Memory and Organizational Aid Improves Alzheimer Disease Research Consent Capacity: Results of a Randomized, Controlled Trial
- (2010) Jonathan Rubright et al. AMERICAN JOURNAL OF GERIATRIC PSYCHIATRY
- Successful clinical trial research in nursing homes: the Improving Decision-Making Study
- (2010) Laura C Hanson et al. Clinical Trials
- Surrogate consent for research involving adults with impaired decision making: Survey of Institutional Review Board practices
- (2010) Michelle Ng Gong et al. CRITICAL CARE MEDICINE
- Randomized Trial of a Delirium Abatement Program for Postacute Skilled Nursing Facilities
- (2010) Edward R. Marcantonio et al. JOURNAL OF THE AMERICAN GERIATRICS SOCIETY
- How Are the Interests of Incapacitated Research Participants Protected through Legislation? An Italian Study on Legal Agency for Dementia Patients
- (2010) Sabina Gainotti et al. PLoS One
- Engaging the oldest old in research: lessons from the Newcastle 85+ study
- (2010) Karen Davies et al. BMC Geriatrics
- Vulnerability in palliative care research: findings from a qualitative study of black Caribbean and white British patients with advanced cancer
- (2009) J Koffman et al. JOURNAL OF MEDICAL ETHICS
- Ethical aspects of research into Alzheimer disease. A European Delphi Study focused on genetic and non-genetic research
- (2009) A van der Vorm et al. JOURNAL OF MEDICAL ETHICS
- Surrogate consent for dementia research: A national survey of older Americans
- (2009) S.Y.H. Kim et al. NEUROLOGY
- Ethical Research in Delirium: Arguments for Including Decisionally Incapacitated Subjects
- (2009) Dimitrios Adamis et al. SCIENCE AND ENGINEERING ETHICS
- The Views of Alzheimer Disease Patients and Their Study Partners on Proxy Consent for Clinical Trial Enrollment
- (2008) Jason Karlawish et al. AMERICAN JOURNAL OF GERIATRIC PSYCHIATRY
- Older Adults’ Attitudes Toward Enrollment of Non-competent Subjects Participating in Alzheimer’s Research
- (2008) Jason Karlawish et al. AMERICAN JOURNAL OF PSYCHIATRY
- Effectiveness of Specialized Palliative Care
- (2008) Camilla Zimmermann et al. JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION
- Participation in dementia research: rates and correlates of capacity to give informed consent
- (2008) J Warner et al. JOURNAL OF MEDICAL ETHICS
- "I don't like that, it's tricking people too much...": acute informed consent to participation in a trial of thrombolysis for stroke
- (2008) M Mangset et al. JOURNAL OF MEDICAL ETHICS
- Unrecognised cognitive impairment in hospice patients: a pilot study
- (2008) SA Irwin et al. PALLIATIVE MEDICINE
- Mental capacity, diagnosis and insight in psychiatric in-patients: a cross-sectional study
- (2008) G. S. Owen et al. PSYCHOLOGICAL MEDICINE
- Multimedia Consent for Research in People With Schizophrenia and Normal Subjects: a Randomized Controlled Trial
- (2008) D. V. Jeste et al. SCHIZOPHRENIA BULLETIN
- Engaging older people with dementia in research: myth or possibility
- (2008) Fiona Cowdell International Journal of Older People Nursing
- Effect of social support on informed consent in older adults with Parkinson disease and their caregivers
- (2007) M E Ford et al. JOURNAL OF MEDICAL ETHICS
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