期刊
CHILD CARE HEALTH AND DEVELOPMENT
卷 43, 期 2, 页码 298-306出版社
WILEY
DOI: 10.1111/cch.12414
关键词
participation; patient and public involvement; selfcare; user involvement
资金
- Public and Patient Engagement/Involvement grant from the Faculty of Medical Sciences, Newcastle University
- Health Education England/National Institute for Health Research (NIHR) under the Clinical Doctoral Research Fellowship Scheme [CDRF 2014-05-043]
- Newcastle upon Tyne NHS Hospitals Foundation Trust
- National Institute for Health Research [ICA-SCL-2015-01-003, CDRF-2014-05-043] Funding Source: researchfish
- National Institutes of Health Research (NIHR) [CDRF-2014-05-043, ICA-SCL-2015-01-003] Funding Source: National Institutes of Health Research (NIHR)
There is an urgent, agreed need to improve participation outcomes and interventions for children and young people with neurodisability. We worked together with service users and providers to design research into participation outcomes and interventions in neurodisability. We built on existing evidence about participation outcomes and interventions and the WHO International Classification of Functioning, Disability and Health. We: (1) specified seven participation outcome categories for measurement; (2) prioritized these for improvement: self-care, friends and social, and physical activity ranked the highest; (3) identified 11 potential intervention categories for targeting the top priority, self-care, through eight hypothesized change mechanisms and agreed for the interventions to be delivered as a `Menu of Interventions' for personalized self-care support; and (4) designed a before-and-after mixed methods feasibility study to evaluate the Menu with children and young people (0-12 years) and their parents and therapists.
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