Should free-text data in electronic medical records be shared for research? A citizens’ jury study in the UK

An Australian community jury to consider case-finding for dementia: Differences between informed community preferences and general practice guidelines

(2019) Rae Thomas et al.   HEALTH EXPECTATIONS

Estimating the success of re-identifications in incomplete datasets using generative models

(2019) Luc Rocher et al.   Nature Communications

CogStack - experiences of deploying integrated information retrieval and extraction services in a large National Health Service Foundation Trust hospital

(2018) Richard Jackson et al.   BMC Medical Informatics and Decision Making

Investigating the Extent to Which Patients Should Control Access to Patient Records for Research: A Deliberative Process Using Citizens’ Juries

(2018) Mary P Tully et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Implementing Machine Learning in Health Care — Addressing Ethical Challenges

(2018) Danton S. Char et al.   NEW ENGLAND JOURNAL OF MEDICINE

Using clinical Natural Language Processing for health outcomes research: Overview and actionable suggestions for future advances

(2018) Sumithra Velupillai et al.   JOURNAL OF BIOMEDICAL INFORMATICS

Contributions of specific causes of death to lost life expectancy in severe mental illness

(2017) N. Jayatilleke et al.   EUROPEAN PSYCHIATRY

Learning to identify Protected Health Information by integrating knowledge- and data-driven algorithms: A case study on psychiatric evaluation notes

(2017) Azad Dehghan et al.   JOURNAL OF BIOMEDICAL INFORMATICS

Assessing recording delays in general practice records to inform near real-time vaccine safety surveillance using the Clinical Practice Research Datalink (CPRD)

(2017) Andreia Leite et al.   PHARMACOEPIDEMIOLOGY AND DRUG SAFETY

Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies

(2016) Mhairi Aitken et al.   BMC Medical Ethics

Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study

(2016) Karen Spencer et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Extracting information from the text of electronic medical records to improve case detection: a systematic review

(2016) Elizabeth Ford et al.   JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION

What evidence is there for a delay in diagnostic coding of RA in UK general practice records? An observational study of free text

(2016) Elizabeth Ford et al.   BMJ Open

Is omission of free text records a possible source of data loss and bias in Clinical Practice Research Datalink studies? A case–control study

(2016) Sarah J Price et al.   BMJ Open

Data Resource Profile: Clinical Practice Research Datalink (CPRD)

(2015) Emily Herrett et al.   INTERNATIONAL JOURNAL OF EPIDEMIOLOGY

The social licence for research: whycare.dataran into trouble

(2015) Pam Carter et al.   JOURNAL OF MEDICAL ETHICS

Effectiveness of public deliberation methods for gathering input on issues in healthcare: Results from a randomized trial

(2015) Kristin L. Carman et al.   SOCIAL SCIENCE & MEDICINE

Use of combined oral contraceptives and risk of venous thromboembolism: nested case-control studies using the QResearch and CPRD databases

(2015) Y. Vinogradova et al.   BMJ-British Medical Journal

Use of combined oral contraceptives and risk of venous thromboembolism: nested case-control studies using the QResearch and CPRD databases

(2015) Y. Vinogradova et al.   BMJ-British Medical Journal

The Effect of Clozapine on Premature Mortality: An Assessment of Clinical Monitoring and Other Potential Confounders

(2014) R. D. Hayes et al.   SCHIZOPHRENIA BULLETIN

The use of citizens' juries in health policy decision-making: A systematic review

(2014) Jackie Street et al.   SOCIAL SCIENCE & MEDICINE

“Let’s get the best quality research we can”: public awareness and acceptance of consent to use existing data in health research: a systematic review and qualitative study

(2013) Elizabeth M Hill et al.   BMC Medical Research Methodology

Optimising the use of electronic health records to estimate the incidence of rheumatoid arthritis in primary care: what information is hidden in free text?

(2013) Elizabeth Ford et al.   BMC Medical Research Methodology

Patients' views about the use of their personal information from general practice medical records in health research: a qualitative study in Ireland

(2012) P. Clerkin et al.   FAMILY PRACTICE

Strategies for De-identification and Anonymization of Electronic Health Record Data for Use in Multicenter Research Studies

(2012) Clete A. Kushida et al.   MEDICAL CARE

Do GPs' medical records demonstrate a good recognition of depression? A new perspective on case extraction

(2011) Karlijn J. Joling et al.   JOURNAL OF AFFECTIVE DISORDERS

Using free text information to explore how and when GPs code a diagnosis of ovarian cancer: an observational study using primary care records of patients with ovarian cancer

(2011) A. R. Tate et al.   BMJ Open

Automatic de-identification of textual documents in the electronic health record: a review of recent research

(2010) Stephane M Meystre et al.   BMC Medical Research Methodology

Determining the date of diagnosis – is it a simple matter? The impact of different approaches to dating diagnosis on estimates of delayed care for ovarian cancer in UK primary care

(2009) A Rosemary Tate et al.   BMC Medical Research Methodology

Making policy decisions about population screening for breast cancer: The role of citizens’ deliberation

(2007) Charlotte Paul et al.   HEALTH POLICY