Effectiveness of the Genomics ADvISER decision aid for the selection of secondary findings from genomic sequencing: a randomized clinical trial

Development of patient “profiles” to tailor counseling for incidental genomic sequencing results

(2019) Chloe Mighton et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

The Genomics ADvISER: development and usability testing of a decision aid for the selection of incidental sequencing results

(2018) Yvonne Bombard et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Making pretest genomic counseling optional: lessons from the RAVE study

(2018) Erica J Sutton et al.   GENETICS IN MEDICINE

Development of the Knowledge of Genome Sequencing (KOGS) questionnaire

(2018) Saskia C. Sanderson et al.   PATIENT EDUCATION AND COUNSELING

Evaluation of a decision aid for incidental genomic results, the Genomics ADvISER: protocol for a mixed methods randomised controlled trial

(2018) Salma Shickh et al.   BMJ Open

Web Platform vs In-Person Genetic Counselor for Return of Carrier Results From Exome Sequencing

(2018) Barbara B. Biesecker et al.   JAMA Internal Medicine

Shared decision making: Implications for return of results from whole-exome and whole-genome sequencing

(2018) Susan T Vadaparampil et al.   Translational Behavioral Medicine

Use of a novel computerized decision aid for aneuploidy screening: a randomized controlled trial

(2018) Laura M. Carlson et al.   GENETICS IN MEDICINE

Shared decision making and decisional conflict in the Management of Vestibular Schwannoma: a prospective cohort study

(2018) M. Elise Graham et al.   Journal of Otolaryngology-Head & Neck Surgery

Should pretest genetic counselling be required for patients pursuing genomic sequencing? Results from a survey of participants in a large genomic implementation study

(2018) Joel E Pacyna et al.   JOURNAL OF MEDICAL GENETICS

Choices for return of primary and secondary genomic research results of 790 members of families with Mendelian disease

(2017) Katie Fiallos et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Recommendations for reporting of secondary findings in clinical exome and genome sequencing, 2016 update (ACMG SF v2.0): a policy statement of the American College of Medical Genetics and Genomics

(2016) Sarah S. Kalia et al.   GENETICS IN MEDICINE

Stakeholder views on secondary findings in whole-genome and whole-exome sequencing: a systematic review of quantitative and qualitative studies

(2016) Michael P. Mackley et al.   GENETICS IN MEDICINE

DECIDE: a Decision Support Tool to Facilitate Parents’ Choices Regarding Genome-Wide Sequencing

(2016) Patricia Birch et al.   Journal of Genetic Counseling

Diagnostic Yield of Clinical Tumor and Germline Whole-Exome Sequencing for Children With Solid Tumors

(2016) D. Williams Parsons et al.   JAMA Oncology

Development and preliminary evaluation of an online educational video about whole-genome sequencing for research participants, patients and the general public

(2015) Saskia C. Sanderson et al.   GENETICS IN MEDICINE

Interactive e-counselling for genetics pre-test decisions: where are we now?

(2014) P.H. Birch   CLINICAL GENETICS

Computerized Prenatal Genetic Testing Decision-Assisting Tool

(2014) Miriam Kuppermann et al.   OBSTETRICS AND GYNECOLOGY

Testing personalized medicine: patient and physician expectations of next-generation genomic sequencing in late-stage cancer care

(2013) Fiona A Miller et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

(2013) Robert C. Green et al.   GENETICS IN MEDICINE

Revealing the Incidentalome When Targeting the Tumor Genome

(2013) Yvonne Bombard et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Informed consent for whole genome sequencing: A qualitative analysis of participant expectations and perceptions of risks, benefits, and harms

(2012) Holly K. Tabor et al.   AMERICAN JOURNAL OF MEDICAL GENETICS PART A

Whole-Genome and Whole-Exome Sequencing in Hereditary Cancer

(2012) Julianne M. O’Daniel et al.   CANCER JOURNAL

Effects of informed consent for individual genome sequencing on relevant knowledge

(2012) KA Kaphingst et al.   CLINICAL GENETICS

An informatics approach to analyzing the incidentalome

(2012) Jonathan S. Berg et al.   GENETICS IN MEDICINE

Measures of anxiety: State-Trait Anxiety Inventory (STAI), Beck Anxiety Inventory (BAI), and Hospital Anxiety and Depression Scale-Anxiety (HADS-A)

(2011) Laura J. Julian   ARTHRITIS CARE & RESEARCH

Validation of a Preparation for Decision Making scale

(2009) Carol Bennett et al.   PATIENT EDUCATION AND COUNSELING