Article
Health Care Sciences & Services
Sabina B. Gesell, Janet Prvu Bettger, Raymona H. Lawrence, Jing Li, Jeanne Hoffman, Barbara J. Lutz, Corita Grudzen, Anna M. Johnson, Jerry A. Krishnan, Lewis L. Hsu, Dorien Zwart, Mark V. Williams, Jeffrey L. Schnipper
Summary: This study presents lessons learned from nine transitional care study teams in implementing and evaluating complex transitional care interventions, including distinguishing between function and form, evaluating implementation processes and impact of adaptations, and engaging stakeholders in intervention design and dissemination of results.
Article
Health Care Sciences & Services
David Hui, Gustavo Scannapieco Mastroleo, Aline Rozman De Morales, Angela Peek, Akhila Reddy, Donna S. Zhukovsky, Manju Joy, Sara Ali, Eduardo Bruera
Summary: This quality improvement project aimed to transition completion of ESAS from paper to electronic format. The uptake of eESAS gradually increased over time, especially during the COVID-19 pandemic. Modifiable barriers to implementing eESAS were identified through an anonymous survey.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2023)
Review
Endocrinology & Metabolism
Per Karkov Cramon, Jakob Bue Bjorner, Mogens Groenvold, Victor Brun Boesen, Steen Joop Bonnema, Laszlo Hegedus, Ulla Feldt-Rasmussen, Ase Krogh Rasmussen, Torquil Watt
Summary: Patient-reported outcomes (PROs) are increasingly used in clinical practice to improve clinical care. However, successful implementation of PROs requires addressing barriers and challenges.
FRONTIERS IN ENDOCRINOLOGY
(2022)
Article
Obstetrics & Gynecology
Ainhoa Madariaga, Gita Bhat, Michelle K. Wilson, Xuan Li, Sunu Cyriac, Valerie Bowering, Wendy Hunt, David Gutierrez, Luisa Bonilla, Lawrence Kasherman, Michelle McMullen, Lisa Wang, Sangeet Ghai, Neesha C. Dhani, Amit M. Oza, Stephanie Lheureux
Summary: This study prospectively assessed the impact of research biopsies on the quality of life in patients with gynecologic cancer, as well as patient-reported outcomes and factors associated with willingness to undergo sequential biopsies. Results showed that research biopsies were generally well accepted, with most patients (83%) willing to undergo serial biopsies if necessary. Addressing modifiable psychosocial aspects of the procedure may improve the experience with research biopsies for patients with gynecologic cancers.
AMERICAN JOURNAL OF OBSTETRICS AND GYNECOLOGY
(2021)
Article
Oncology
Myung-Kyung Lee, Jihyun Oh
Summary: Exercise can have a synergistic effect on improving health-related quality of life (HRQOL) and depression in patients with gastric cancer, by indirectly positively affecting depression and directly influencing HRQOL.
Article
Cardiac & Cardiovascular Systems
Onkar Khullar, Aubriana Perez, Meredith Dixon, Jose N. Binongo, Manu S. Sancheti, Allan Pickens, Theresa Gillespie, Seth D. Force, Felix G. Fernandez
Summary: This study examined the success of routine patient-reported outcomes (PROs) assessment in an academic-based thoracic surgery practice. Results showed that out of 9725 thoracic surgery office visits, PROs data were obtained in 6899 visits from 3551 patients. The overall questionnaire completion rate was 65.7%, with a significant decline in April 2020. Rating: 8 out of 10.
ANNALS OF THORACIC SURGERY
(2023)
Article
Hematology
Alexandria King, Haley Leider, Dylan Herman, Ann Kinga Malinowski, Rohan D'Souza
Summary: The study aimed to gather perspectives on pregnancy-associated VTE outcomes from patients and healthcare providers. Through individual, semi-structured interviews, 52 outcomes were collected, 21 of which had not been reported before. Patients and healthcare providers emphasized the importance of outcomes related to functioning/life impact and the general wellbeing of the mother and baby.
THROMBOSIS AND HAEMOSTASIS
(2021)
Article
Orthopedics
Andrew J. Holte, Ilda B. Molloy, Paul M. Werth, David S. Jevsevar
Summary: The study showed that patients who opted-in to web-based portals were younger, had higher BMI, and higher household income. Opting-in for TKA patients was associated with significant improvement in physical and joint-specific function, while for THA patients, increased portal logins were linked to faster improvement and higher functional scores.
JOURNAL OF ARTHROPLASTY
(2021)
Article
Clinical Neurology
Danilo Carrozzino, Kaj Sparle Christensen, Fiammetta Cosci
Summary: This study compared the construct and criterion validity of three commonly used depression assessment tools using clinimetric principles. Results showed that WHO-5 and MDI outperformed BDI-II in terms of construct and criterion validity.
JOURNAL OF AFFECTIVE DISORDERS
(2021)
Review
Medicine, General & Internal
Rakhshan Kamran, Liam Jackman, Cynthia Chan, Yujin Suk, Chloe Jacklin, Eve Deck, Nina Wietek, Melissa Stepney, Conrad Harrison, Abhilash Jain, Jeremy Rodrigues
Summary: This systematic review identified barriers and enablers of patient-reported outcome measures (PROMs) implementation in gender-affirming care. A total of 205 different PROMs were used, but there was inconsistency in PROM implementation and a lack of evidence-based approaches. Key barriers included issues with evidence strength and quality of PROMs, while key enablers included using validated PROMs tailored for gender-affirming care and engaging stakeholders in the implementation process.
Editorial Material
Health Care Sciences & Services
Carly Parry, Michelle Johnston-Fleece, Maurice C. Johnson, Aaron Shifreen, Steven B. Clauser
Summary: This Special Issue highlights the importance of patient-centered care transitions research funded by PCORI. It emphasizes the need for head-to-head comparisons of interventions, patient-centered outcomes, and stakeholder engagement throughout the research process. The papers in this issue articulate challenges and new directions for transitional care research, advocating for a more holistic understanding that integrates social needs and lifespan development.
Article
Psychiatry
Richard Huan Xu, Ling-ming Zhou, Eliza Lai-yi Wong, Jinghui Chang, Dong Wang
Summary: This study aimed to investigate the association between patients' satisfaction with patient engagement (PE) and self-reported depression in Chinese public hospitals. The results showed that encouraging PE and improving patients' satisfaction with PE interventions led to improved mental health outcomes among hospitalized patients in China.
FRONTIERS IN PSYCHIATRY
(2022)
Article
Medical Informatics
Samantha Cruz Rivera, Xiaoxuan Liu, Sarah E. Hughes, Helen Dunster, Elaine Manna, Alastair K. Denniston, Melanie J. Calvert
Summary: Integration of patient-reported outcome measures (PROMs) in artificial intelligence (AI) studies is crucial for humanizing AI in healthcare. Despite challenges such as data fragmentation, limited validation, and inadequate selection of PROMs, considerations for including PROs in AI healthcare technologies are proposed to ensure the overall well-being of patients.
LANCET DIGITAL HEALTH
(2023)
Review
Biotechnology & Applied Microbiology
Desmond Curran, Eliazar Sabater Cabrera, Linda Nelsen
Summary: The past century has seen exponential growth in the development and demand for effective vaccines. Regulatory agencies are now focusing more on understanding patient perception and experience. Various research methods utilizing patient-reported outcomes (PROs) have been widely used in the vaccine field, with additional advantages observed through electronic data capture.
HUMAN VACCINES & IMMUNOTHERAPEUTICS
(2022)
Article
Oncology
C. Mazariego, M. Jefford, R. J. Chan, N. Roberts, L. Millar, A. Anazodo, S. Hayes, B. Brown, C. Saunders, K. Webber, J. Vardy, A. Girgis, B. Koczwara
Summary: The aim of this study was to develop priority recommendations for the service level implementation of patient-reported outcomes (PROs) into clinical cancer care. A two-round modified Delphi survey was conducted to rank and prioritize statements related to PRO implementation. The results highlighted the importance of clinical relevance, stakeholder engagement, communication, and integration within existing processes and capabilities in implementing PROs in clinical cancer care.
JOURNAL OF CANCER SURVIVORSHIP
(2022)
Article
Public, Environmental & Occupational Health
Madeline C. Frost, Elsa W. Sweek, Elizabeth J. Austin, Maria A. Corcorran, Alexa M. Juarez, Noah D. Frank, Stephanie M. Prohaska, Paul A. LaKosky, Alice K. Asher, Dita Broz, Don C. Des Jarlais, Emily C. Williams, Sara N. Glick
Summary: SSPs faced challenges such as reduced service reach, suspended testing, high risk among PWUD, and negative impacts of isolation during the COVID-19 pandemic, but also identified opportunities for improving services, providing valuable insights for the future.
Article
Psychology, Clinical
Elizabeth J. Austin, Judith Tsui, Michael P. Barry, Elyse Tung, Sara N. Glick, Michael Ninburg, Emily C. Williams
Summary: People who inject drugs (PWID) face complex health needs and are more likely to have poor health outcomes. This study highlights the intersectional influences of stigma and social vulnerabilities on the health care-seeking experiences of PWID. The findings suggest that receiving health care in the context of social vulnerability is challenging, as interactions with health care teams often result in feelings of shame and PWID believe that they need to prove their worthiness for care by abstaining from drug use.
JOURNAL OF SUBSTANCE ABUSE TREATMENT
(2022)
Article
Health Care Sciences & Services
Elizabeth J. Austin, Elsa S. Briggs, Lori Ferro, Paul Barry, Ashley Heald, Geoffrey M. Curran, Andrew J. Saxon, John Fortney, Anna D. Ratzliff, Emily C. Williams
Summary: This study identifies barriers and promising implementation strategies for routine opioid use disorder screening in primary care settings, providing insights for improving the integration of population-based screening for drug use.
JOURNAL OF GENERAL INTERNAL MEDICINE
(2023)
Article
Surgery
Giana H. Davidson, Sarah E. Monsell, Heather Evans, Emily C. Voldal, Erin Fannon, Sarah O. Lawrence, Anusha Krishnadasan, David A. Talan, Bonnie Bizzell, Patrick J. Heagerty, Bryan A. Comstock, Danielle C. Lavallee, Cassandra Villegas, Robert Winchell, Callie M. Thompson, Wesley H. Self, Lillian S. Kao, Shah-Jahan Dodwad, Amber K. Sabbatini, David Droullard, David Machado-Aranda, Melinda Maggard Gibbons, Amy H. Kaji, Daniel A. DeUgarte, Lisa Ferrigno, Matthew Salzberg, Katherine A. Mandell, Nicole Siparsky, Thea P. Price, Anooradha Raman, Joshua Corsa, Jon Wisler, Patricia Ayoung-Chee, Jesse Victory, Alan Jones, Matthew Kutcher, Karen McGrane, Julie Holihan, Mike K. Liang, Joseph Cuschieri, Jeffrey Johnson, Katherine Fischkoff, F. Thurston Drake, Sabrina E. Sanchez, Stephen R. Odom, Larry G. Kessler, David R. Flum
Summary: This study compared participants in the randomized and self-selection cohorts of the CODA trial, and found similar clinical characteristics and outcomes, suggesting that the results of the randomized trial are generalizable to the wider community.
Article
Health Policy & Services
Adeera Levin, Michelle Malbeuf, Alison M. Hoens, Christopher Carlsten, Christopher J. Ryerson, Alessandro Cau, Stirling Bryan, Jaclyn Robinson, Tamsin Tarling, Joanne Shum, Danielle C. Lavallee
Summary: Research on the long-term impacts of COVID-19 is limited, and the PC-ICCN is a provincial initiative in British Columbia that aims to enhance knowledge and understanding of the sequelae of COVID-19 infection over time. The network includes post COVID-19 Recovery Clinics that provide direct patient care, standardized testing, and education for a minimum of 12 months post enrolment. The PC-ICCN patient registry captures data on all COVID-19 patients with confirmed infection.
LEARNING HEALTH SYSTEMS
(2023)
Article
Substance Abuse
Maria A. Corcorran, Elizabeth J. Austin, Czarina N. Behrends, Elsa S. Briggs, Madeline C. Frost, Alexa M. Juarez, Noah D. Frank, Elise Healy, Stephanie M. Prohaska, Paul A. LaKosky, Shashi N. Kapadia, David C. Perlman, Bruce R. Schackman, Don C. Des Jarlais, Emily C. Williams, Sara N. Glick
Summary: This study explored the perspectives of syringe service programs (SSPs) on the barriers, readiness, and programmatic needs to support COVID-19 vaccine uptake among people who use drugs. The findings revealed that COVID-19 vaccination was not a priority for many SSP participants due to competing survival priorities, and there were concerns about participant mistrust of health care. Although most SSPs expressed a desire to participate in COVID-19 vaccination efforts, they emphasized the need for additional resources and support to implement successful vaccine programs.
JOURNAL OF ADDICTION MEDICINE
(2023)
Article
Substance Abuse
Madeline C. Frost, Elizabeth J. Austin, Maria A. Corcorran, Elsa S. Briggs, Czarina N. Behrends, Alexa M. Juarez, Noah D. Frank, Elise Healy, Stephanie M. Prohaska, Paul A. LaKosky, Shashi N. Kapadia, David C. Perlman, Bruce R. Schackman, Don C. Des Jarlais, Emily C. Williams, Sara N. Glick
Summary: Study found that increased fentanyl use and impacts of COVID-19 were major drivers of the overdose surge. SSPs responded by increasing naloxone distribution, adapting overdose prevention education, and expanding distribution to non-opioid drug users. Ongoing barriers to preventing overdose deaths include reaching at-risk groups, inconsistent naloxone supply, funding shortages, legal barriers, and community stigma.
HARM REDUCTION JOURNAL
(2022)
Article
Computer Science, Information Systems
Andrea L. Hartzler, Lauren E. Bartlett, Mara R. Hobler, Nick Reid, Joseph B. Pryor, Siddhartha G. Kapnadak, Donna L. Berry, William B. Lober, Christopher H. Goss, Kathleen J. Ramos
Summary: This study used a human-centered design process to develop a web-based education tool called "Take On Transplant (TOT)" to prepare cystic fibrosis patients for discussions about lung transplantation. Through needs assessment, design groups, and iterative user testing, TOT was refined from wireframe prototypes to an interactive website. The feasibility and preliminary efficacy of TOT were demonstrated through field testing.
JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION
(2022)
Article
Substance Abuse
Michael P. Barry, Elizabeth J. Austin, Elenore P. Bhatraju, Sara N. Glick, Joanne D. Stekler, Elyse L. Tung, Ryan N. Hansen, Emily C. Williams, Alexander J. Gojic, Eleanor Pickering, Judith Tsui
Summary: The study finds limited knowledge and concerns about the feasibility of daily PrEP among PWID, and a prevalent perception that injection drug use is not a high risk for HIV acquisition. Targeting PrEP education to PWID and leveraging other interventions for this vulnerable population could provide opportunities for addressing the issue.
HARM REDUCTION JOURNAL
(2022)
Article
Oncology
Elizabeth J. J. Austin, Mark R. R. Kilgore, Cynthia W. W. Ko, Elizabeth U. U. Parker, Rebeca Alvarez, Lisa K. K. Koch, Amelia W. W. Donlan, Janie M. M. Lee, Meghan R. R. Flanagan, Lauren M. M. DeStefano, Sara H. H. Javid, John L. L. Gore
Summary: New federal legislation in the United States allows patients to access their medical records, and our team developed patient-centered pathology reports (PCPRs) for four types of cancer. Through analyzing data from pilot implementations, we identified barriers and facilitators to disseminating PCPRs. While patient-centered cancer communication tools show promise, more work is needed for technological capacity and integration in care delivery systems.
CANCER CAUSES & CONTROL
(2023)
Article
Substance Abuse
Elizabeth J. Austin, Alexander J. Gojic, Elenore P. Bhatraju, Kathleen A. Pierce, Eleanor I. Pickering, Elyse L. Tung, John D. Scott, Ryan N. Hansen, Sara N. Glick, Joanne D. Stekler, Nancy C. Connolly, Sarah Villafuerte, Madison Mcpadden, Sarah Deutsch, Michael Ninburg, Robert Kubiniec, Emily C. Williams, Judith I. Tsui
Summary: The Pharmacist, Physician, and Patient Navigator-Collaborative Care Model (PPP-CCM) is a promising approach to delivering hepatitis C virus (HCV) care for people who inject drugs (PWID). The formative evaluation revealed that the model is feasible but faces challenges in delivering care efficiently. The role and characteristics of pharmacists, as well as financial barriers, are key factors to consider for the scalability and sustainability of PPP-CCM.
INTERNATIONAL JOURNAL OF DRUG POLICY
(2023)
Article
Health Care Sciences & Services
Deborah E. Seale, Cynthia M. LeRouge, Malgorzata Kolotylo-Kulkarni
Summary: The study aimed to provide a comprehensive description of personal health information management (PHIM) work from the perspective of professional organizers. It found that the complexity of PHIM work increased the workload, especially for older adults. Streamlining and automating common and burdensome PHIM tasks could significantly reduce the workload for health care consumers.
JOURNAL OF MEDICAL INTERNET RESEARCH
(2023)
Editorial Material
Computer Science, Information Systems
Andrea L. Hartzler, Serena Jinchen Xie, Patrick Wedgeworth, Carolin Spice, Kevin Lybarger, Brian R. Wood, Herbert C. Duber, Gary Hsieh, Angad P. Singh
Summary: Identifying patients' social needs is crucial for addressing social determinants of health. Automated systems for extracting social determinants of health from clinical notes can offer promising solutions, but ethical considerations regarding stigma, privacy, and mistrust must be addressed. Integrating patient voices and needs into automated systems is recommended for ensuring patient autonomy and justice.
JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION
(2023)
Letter
Medicine, General & Internal
John C. Fortney, Anna D. Ratzliff, Brittany E. Blanchard, Morgan Johnson, Lori Ferro, Elizabeth J. Austin, Emily C. Williams, Mark H. Duncan, Joseph O. Merrill, Jennifer Thomas, Brandon Kitay, Michael Schoenbaum, Patrick J. Heagerty, Andrew J. Saxon
ANNALS OF INTERNAL MEDICINE
(2023)
Proceedings Paper
Computer Science, Information Systems
Hyeyoung Ryu, Andrew B. L. Berry, Catherine Y. Lim, Andrea L. Hartzler, Tad Hirsch, Juanita I. Trejo, Zoe A. Bermet, Brandi Crawford-Gallagher, Vi Tran, Dawn Ferguson, David J. Cronkite, Brooks Tiffany, John Weeks, James D. Ralston
Summary: Individuals with multiple chronic health conditions can benefit from using an interactive visualization system, called Conversation Canvas, to develop and share connections between personal values and self-management tasks. This study showed that this guided process and visualization can help individuals understand their health priorities, share them with healthcare providers, and support value-aligned changes.
PROCEEDINGS OF THE 2023 CHI CONFERENCE ON HUMAN FACTORS IN COMPUTING SYSTEMS, CHI 2023
(2023)