期刊
PATIENT EDUCATION AND COUNSELING
卷 102, 期 12, 页码 2270-2278出版社
ELSEVIER IRELAND LTD
DOI: 10.1016/j.pec.2019.06.022
关键词
Childhood cancer; Pain; Fatigue; Fear of cancer recurrence; Information needs
资金
- Kids Cancer Alliance (Cancer Institute of NSW translational research grant)
- NHMRC of Australia [APP1143767]
- Kids Cancer Project
- Kids with Cancer Foundation
Objective: Pain and fatigue are under-researched late effects of childhood cancer and its treatment, and may be interpreted by survivors as indicating cancer recurrence. Moreover, unmet information needs for managing pain and fatigue may be related to fear of cancer recurrence. We investigated the complex relationships between perceived cancer-related pain and fatigue, unmet information needs for managing pain and fatigue, and fear of cancer recurrence. Methods: We surveyed 404 adult survivors of any form of childhood cancer (M = 16.82 years since treatment completion). Results: Many survivors reported perceived cancer-related pain (28.7%) and fatigue (40.3%), and anticipated future pain (19.3%) and fatigue (26.2%). These symptomologies were all related to unmet information needs for managing pain (18.8%) and fatigue (32.2%; all p's<.001). Survivors reporting unmet information needs for managing pain (B =.48, 95% CI = 0.19-0.76, p =.001) and fatigue (B =.32, 95% CI = 0.06-0.52, p =.015) reported higher fear of cancer recurrence than survivors reporting no information needs. Conclusion: Survivors often have unmet information needs for managing pain and fatigue, and these unmet needs are related to fear of cancer recurrence. Practice Implications: Long-term follow-up clinics should assess pain and fatigue. Information provision about pain and fatigue may be an important tool to help manage fear of cancer recurrence. (c) 2019 Elsevier B.V. All rights reserved.
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