期刊
JOURNAL OF PALLIATIVE MEDICINE
卷 22, 期 9, 页码 1065-1074出版社
MARY ANN LIEBERT, INC
DOI: 10.1089/jpm.2018.0643
关键词
early palliative care; family caregiver; geriatric oncology; qualitative
资金
- University of Alabama at Birmingham (UAB), School of Nursing (SON) Research Scholar award
- UAB SON Marie L. O'Koren Endowed Chair Research Fund
- Hacettepe University Research Department
- Turkish Higher Education Council grant
- National Institutes of Nursing Research [K99NR015903]
- National Palliative Care Research Center Pilot/Exploratory Award [NINR R0-1 NR011871-01]
- American Cancer Society Research Scholar Grant (RSG#)
- NINR [1 R01 NR013665-01A1]
- Hacettepe University Research Department [TUA-2015-5831]
Background: Although palliative care is expanding globally for patients with serious illness, Turkey has not had widespread integration of early concurrent oncology palliative care. Hence, adapting and testing models of concurrent oncology palliative care for Turkish patients is imperative. Furthermore, it is critical that these care models also address the needs of family caregivers. Objective: To assess needs and elicit suggestions that would inform the adaptation of the ENABLE (Educate, Nurture, Advise, Before Life Ends) evidence-based early palliative care model for Turkish family caregivers of older persons with cancer. Methods: Formative evaluation study. Semi-structured interviews were conducted with 25 primary family caregivers of older individuals with cancer. Thematic analyses yielded themes in four domains: meaning of caregiving, effect of caregiving, education and consulting needs, and preferences about the delivery of the ENABLE model of palliative care support. Results: Caregivers described the impact of the cancer on their daily lives and responsibilities in the areas of physical, psychological, work, social, and family life. Caregivers emphasized their needs for information about symptoms, physical care, cancer pathology, and prognosis. Regarding the ENABLE model of early concurrent palliative care, participants wanted encounters to be in-person with educational material support that was simple and focused on disease information (prognosis, medication, handling emergency situations), psychological support, caring, nutrition, and acquiring community services. Conclusion: Themes from this study will be used to modify the ENABLE intervention protocol for future pilot and efficacy testing in Turkish caregivers.
作者
我是这篇论文的作者
点击您的名字以认领此论文并将其添加到您的个人资料中。
推荐
暂无数据