期刊
JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES
卷 28, 期 1, 页码 28-36出版社
ELSEVIER SCIENCE INC
DOI: 10.1016/j.pedn.2012.03.031
关键词
Congenital heart disease; Adolescents; Quality of life; Transition; Qualitative research
资金
- Women & Children's Health Research Institute, University of Alberta Innovation Grant-Stollery Children's Hospital Foundation
Improved survival rates for congenital heart disease (CHD) have increasing numbers requiring lifelong specialized health care. In this interpretive description, interview data were analyzed to understand how adolescents with CND describe everyday life and relate to questions about quality of life. Most viewed themselves as normal, their CHD something that they situated into the foreground or background of their lives as it suited their needs. They spoke of quality-of-life issues in a concrete manner focusing on physical activity limitations and their need to fit in. These findings can direct interventions for adolescents with CHD for transition to adulthood. (C) 2013 Elsevier Inc. All rights reserved.
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