Review
Geriatrics & Gerontology
Lara Camilleri, David Whitehead
Summary: Dementia is a progressive neurodegenerative disease that leads to deterioration in cognitive and physical abilities. Driving is an important activity for daily living, but it is a complex skill for individuals with dementia. This study aims to identify common driving behaviors in dementia and compare different assessment methods. The results showed that naturalistic driving and on-road assessments had the highest predictive accuracy, but there was great variation in the results of other assessment methods. Better quality research is needed in this field.
Review
Geriatrics & Gerontology
Lori Frank, Lee A. Jennings, Ronald C. Petersen, Tabassum Majid, Andrea Gilmore-Bykovskyi, Lonni Schicker, Jason Karlawish
Summary: The article summarizes the 2020 National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers, which aimed to explore research participation by persons living with dementia (PLWD) and their care partners. It discusses the importance of involving PLWD and their care partners as research participants and as engaged research partners in order to enhance knowledge and understanding of interventions in dementia.
JOURNAL OF THE AMERICAN GERIATRICS SOCIETY
(2021)
Article
Geriatrics & Gerontology
Zainab Toteh Osakwe, Charles Senteio, Omonigho Michael Bubu, Chinedu Obioha, Arlener D. Turner, Sujata Thawani, Rose Saint Fleur-Calixte, Girardin Jean-Louis
Summary: This study examined the relationship between caregiver characteristics and caregiving strain and sleep disturbance. The results showed that female caregivers were more likely to report high caregiving strain, and caregivers with high blood pressure were more likely to experience trouble falling back asleep. There were no racial/ethnic differences in sleep disturbance among caregivers.
FRONTIERS IN AGING NEUROSCIENCE
(2022)
Article
Geriatrics & Gerontology
Terri R. Fried, Andrew B. Cohen, Joanna E. Harris, Laura Moreines
Summary: The study found that most patients with early cognitive impairment and their caregivers were unaware of the decisions they could face, and there were many barriers to planning for these decisions.
JOURNAL OF THE AMERICAN GERIATRICS SOCIETY
(2021)
Article
Geriatrics & Gerontology
Jessica Ashbourne, Veronique Boscart, Samantha Meyer, Catherine E. Tong, Paul Stolee
Summary: This study developed a theoretical framework to better understand the care transition experiences of persons living with dementia and their caregivers in Ontario, Canada. The framework outlines the context, processes, and influencing factors of care transitions, providing a focal point for efforts to improve the healthcare transitions of persons with dementia.
Article
Computer Science, Cybernetics
Soraia Teles, Ana Ferreira, Constanca Paul
Summary: This cross-sectional study explored the attitudes and preferences of digitally skilled dementia caregivers towards online psychoeducational interventions (OPIs). The findings showed that attitudes towards OPIs were moderately positive, but only one-third of caregivers trusted their effectiveness. More caregivers preferred face-to-face interventions over online interventions, considering them more trustworthy and less prone to dropout. Convenience was the most valued intervention feature, and caregivers expressed a preference for OPIs with friendly interfaces, free-of-jargon language, and the ability to interact with professionals.
BEHAVIOUR & INFORMATION TECHNOLOGY
(2023)
Article
Public, Environmental & Occupational Health
Michal Rosenbach, Ayelet Dassa, Avi Gilboa
Summary: This study explores a home-based music therapy (HBMT) work model, and finds that the continuous support from the music therapist plays an important role in improving the relationship between persons with dementia and their primary caregivers, as well as implementing musical strategies effectively.
FRONTIERS IN PUBLIC HEALTH
(2023)
Review
Geriatrics & Gerontology
Yaolin Pei, Xiang Qi, Dena Schulman-Green, Mengyao Hu, Kaipeng Wang, Bei Wu
Summary: This article provides an overview of decision aid interventions for family caregivers of older adults with advanced dementia regarding tube feeding. The review shows that decision aid interventions effectively improve caregivers' decision-making quality, but merely providing information is not enough to change caregivers' preferences or behavior.
JOURNAL OF THE AMERICAN MEDICAL DIRECTORS ASSOCIATION
(2022)
Article
Health Care Sciences & Services
Jarmin C. Yeh, Jeff Newman, Rachel Main, Lauren J. Hunt
Summary: Dementia is a terminal diagnosis that requires significant caregiving support. This study aimed to assess satisfaction with, and recommendations for improving end-of-life care experiences of decedents with dementia from the perspective of bereaved caregivers. Approximately 75% of caregivers were satisfied with the end-of-life care, but gaps were identified in communication with providers, care continuity, and honoring death in a preferred location.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2021)
Review
Nursing
Manonita Ghosh, Melissa Dunham, Beverly O'Connell
Summary: This study reviewed the effects of dyadic psychoeducational support programs on the health and well-being of both people with dementia and their caregivers. The results showed that goal-oriented and tailored psychoeducational programs consistently benefited the dyads in various aspects. Long-term support programs were recommended to maintain positive effects.
JOURNAL OF CLINICAL NURSING
(2023)
Article
Geriatrics & Gerontology
Gunn Steinsheim, Susan Saga, Bonnie Olsen, Helene Kjeka Broen, Wenche Malmedal
Summary: The study highlights the prevalence of abusive episodes among home-dwelling persons with dementia and their informal caregivers. It shows that a majority of informal caregivers commit some form of abusive behavior, with psychological abuse being the most common type. The risk of abusive episodes is higher when the caregiver is a spouse/partner and if they experience aggression from the person with dementia.
Article
Geriatrics & Gerontology
Victoria L. Jackson, Robin L. Whitney, Theresa A. Harvath, Eileen Partridge
Summary: As the US population ages, dementia becomes a concern for healthcare providers. The University of California, Davis, Health (UCDH) Alzheimer's and Dementia Care (ADC) Program has shown positive outcomes in reducing depression, strain, and distress for family caregivers (FCGs) of persons with dementia (PWDs). Despite limitations, such as small sample size and lack of diversity, this pilot study contributes to the literature supporting the effectiveness of dementia care management programs.
Article
Public, Environmental & Occupational Health
Alba-Elena Martinez-Santos, David Facal, Noelia Vicho de la Fuente, Lucia Vilanova-Trilloe, Manuel Gandoy-Crego, Raquel Rodriguez-Gonzalez
Summary: The study found that the most affected needs of family caregivers are related to recreational activities, communication, rest and sleep, and that significant gender differences exist in caregiving patterns and health impacts, especially in issues related to work and family reconciliation.
PATIENT EDUCATION AND COUNSELING
(2021)
Article
Geriatrics & Gerontology
Gregory Tee Hng Tan, Qi Yuan, Fiona Devi, Peizhi Wang, Li Ling Ng, Richard Goveas, Siow Ann Chong, Mythily Subramaniam
Summary: The study confirmed the appropriateness of the 3-factor model of RSCSE among informal caregivers in Singapore and identified important factors influencing caregiving self-efficacy. Caregivers' outlook on life and social support were found to have significant positive impacts on caregiving self-efficacy.
Article
Clinical Neurology
Christopher Kruse, Franziska Maier, Annika Spottke, Jan-Philipp Bach, Claudia Bartels, Katharina Buerger, Andreas Fellgiebel, Klaus Fliessbach, Lutz Frolich, Lucrezia Hausner, Martin Hellmich, Stefan Kloppel, Arne Klostermann, Johannes Kornhuber, Christoph Laske, Oliver Peters, Josef Priller, Tanja Richter-Schmidinger, Anja Schneider, Kija Shah-Hosseini, Stefan Teipel, Christine A. F. von Arnim, Jens Wiltfang, Hendrik van der Wurp, Richard Dodel, Frank Jessen
Summary: This study analyzed the influence of apathy on resource utilization in patients with dementia of the Alzheimer's type. The findings suggest that apathy is a significant factor driving costs in mild to moderate dementia. Effective treatment of apathy may lead to reduced overall costs in Alzheimer's disease.
ALZHEIMERS & DEMENTIA
(2023)
