Article
Cardiac & Cardiovascular Systems
Abigail M. Khan, Lidija B. McGrath, Katrina Ramsey, Anushree Agarwal, Craig S. Broberg
Summary: This study found that patients at an ACHD center have a higher rate of healthcare utilization and relatively higher compliance with guideline-indicated annual follow-up. These findings emphasize the importance of establishing and supporting robust systems for ACHD care in the United States.
JOURNAL OF THE AMERICAN HEART ASSOCIATION
(2021)
Review
Medical Informatics
Dipak Kotecha, Folkert W. Asselbergs, Stephan Achenbach, Stefan D. Anker, Dan Atar, Colin Baigent, Amitava Banerjee, Birgit Beger, Gunnar Brobert, Barbara Casadei, Cinzia Ceccarelli, Martin R. Cowie, Filippo Crea, Maureen Cronin, Spiros Denaxas, Andrea Derix, Donna Fitzsimons, Martin Fredriksson, Chris P. Gale, Georgios Gkoutos, Wim Goettsch, Harry Hemingway, Martin Ingvar, Adrian Jonas, Robert Kazmierski, Susanne Logstrup, R. Thomas Lumbers, Thomas F. Luescher, Paul McGreavy, Ileana L. Pina, Lothar Roessig, Carl Steinbeisser, Mats Sundgren, Benoit Tyl, Ghislaine van Thiel, Kees van Bochove, Panos E. Vardas, Tiago Villanueva, Marilena Vrana, Wim Weber, Franz Weidinger, Stephan Windecker, Angela Wood, Diederick E. Grobbee
Summary: Big data plays a crucial role in advancing global clinical science for the betterment of patient lives. This article introduces the CODE-EHR framework as a minimum standards guideline for researchers and clinicians to improve study design and enhance transparency in research methods, aiming to facilitate robust and effective utilization of healthcare data.
LANCET DIGITAL HEALTH
(2022)
Review
Medicine, General & Internal
Joyce Kibaru, Pinky Kotecha, Abdulkarim Muhammad Iya, Beth Russell, Muzzammil Abdullahi, Sani Usman Alhassan, Muhammad Inuwa Mustapha, Richard T. Bryan, Mieke Van Hemelrijck
Summary: This scoping review aims to identify the gaps in clinical care and research of bladder cancer in Nigeria, providing direction for future research and clinical guidelines.
Article
Medicine, General & Internal
Dipak Kotecha, Folkert W. Asselbergs, Stephan Achenbach, Stefan D. Anker, Dan Atar, Colin Baigent, Amitava Banerjee, Birgit Beger, Gunnar Brobert, Barbara Casadei, Cinzia Ceccarelli, Martin R. Cowie, Filippo Crea, Maureen Cronin, Spiros Denaxas, Andrea Derix, Donna Fitzsimons, Martin Fredriksson, Chris P. Gale, Georgios Gkoutos, Wim Goettsch, Harry Hemingway, Martin Ingvar, Adrian Jonas, Robert Kazmierski, Susanne Logstrup, R. Thomas Lumbers, Thomas F. Luscher, Paul McGreavy, Ileana L. Pina, Lothar Roessig, Carl Steinbeisser, Mats Sundgren, Benoit Tyl, Ghislaine van Thiel, Kees van Bochove, Panos E. Vardas, Tiago Villanueva, Marilena Vrana, Wim Weber, Franz Weidinger, Stephan Windecker, Angela Wood, Diederick E. Grobbee
Summary: Big data plays a central role in global clinical science, aiming to improve the lives of patients. However, challenges such as verification, validation, and data privacy need to be addressed to achieve robust and effective utilization of healthcare data for research purposes.
BMJ-BRITISH MEDICAL JOURNAL
(2022)
Article
Medicine, General & Internal
Lara Brauer, Max Geraedts
Summary: This study aims to investigate the utilization and quality of care, the influence of structural determinants on quality, and the patient's experiences on endometriosis healthcare in rural Hesse. A mixed methods approach will be used to accurately assess the care situation for endometriosis patients in seven counties. This study will provide valuable insights into the treatment and experiences of endometriosis patients in rural areas.
Article
Multidisciplinary Sciences
Ji-Woo Kim, Chungsoo Kim, Kyoung-Hoon Kim, Yujin Lee, Dong Han Yu, Jeongwon Yun, Hyeran Baek, Rae Woong Park, Seng Chan You
Summary: This paper provides a transparent disclosure of the process of standardizing a common data model and developing a national data infrastructure. By using a distributed data analysis environment and releasing metadata based on the FAIR principle, the researchers aim to eliminate information inequality and contribute to high-quality medical evidence generation.
Review
Health Care Sciences & Services
Dafne P. Nascimento, Raymond W. J. G. Ostelo, Maurits W. van Tulder, Gabrielle Z. Gonzalez, Amanda C. Araujo, Adriane A. Vanin, Leonardo O. P. Costa
Summary: This study aimed to summarize the reporting quality of healthcare abstracts and inconsistencies between abstracts and full texts across all healthcare areas, revealing a need for improvement in both aspects, particularly in the results and conclusions sections.
JOURNAL OF CLINICAL EPIDEMIOLOGY
(2021)
Article
Medicine, General & Internal
Pia Kjaer Kristensen, Anne Mette Falstie-Jensen, Morten Madsen, Soren Paaske Johnsen
Summary: The study aimed to investigate possible patient-related disparities in hip fracture care in Denmark and found substantial differences in the proportion of patients receiving high-quality care as well as in various care processes between best-off and worst-off patients over time.
Article
Public, Environmental & Occupational Health
Sina Azadnajafabad, Sahar Saeedi Moghaddam, Esmaeil Mohammadi, Sina Delazar, Sina Rashedi, Hamid Reza Baradaran, Morteza Mansourian
Summary: This study examined the epidemiology and quality of care of breast cancer (BC), and found that the mortality rate of BC is higher in less developed areas and less wealthy countries. However, locations with higher healthcare expenditure have better BC care.
FRONTIERS IN PUBLIC HEALTH
(2023)
Article
Orthopedics
Isabella Zaniletti, Katrina L. Devick, Dirk R. Larson, David G. Lewallen, Daniel J. Berry, Hilal Maradit Kremers
Summary: In orthopaedic clinical research, choosing the appropriate study design based on the research question, data availability, and feasibility is crucial. The most common observational study designs in total joint arthroplasty research are cohort and cross-sectional studies. This article provides methodological considerations for different study designs and highlights the advantages and feasibility of experimental and observational designs using real-world examples. It also guides investigators on how to avoid common mistakes and provides a step-by-step design for a case-control study. The article concludes with considerations for choosing alternative study designs.
JOURNAL OF ARTHROPLASTY
(2022)
Review
Medicine, General & Internal
Abdulkarim Muhammad Iya, Katharina Beyer, Pinky Kotecha, Joyce Kibaru, Muzzammil Abdullahi, Sani Usman Alhassan, Muhammad Inuwa Mustapha, Abdullahi Ahmad, Yusuf Lawal, Jalo Rabiu Ibrahim, Aliyu Aminu, Aisha Abubakar, Abdullahi Saleh, Richard T. Bryan, Mieke Van Hemelrijck, Beth Russell
Summary: There are currently no national guidelines regarding bladder cancer treatment and clinical care pathways in Nigeria. This scoping review aimed to identify gaps in knowledge on bladder cancer epidemiology, clinical care, and translational research to inform the development of guidelines and future research. The review included 19 studies and highlighted the high prevalence of schistosomiasis in bladder cancer patients and identified potential biomarkers for further research. Consultation with clinicians and bladder cancer survivors also raised awareness of sociocultural and infrastructural issues affecting diagnosis and treatment.
News Item
Multidisciplinary Sciences
Amy Maxmen
Summary: GISAID's effort to understand the spread of COVID-19 involves scientists uploading sequences from most nations, providing important data support for research on virus transmission.
Article
Medicine, General & Internal
Eva Segelov, Christine Carrington, Sanchia Aranda, David Currow, John R. Zalcberg, Alexander G. Heriot, Linda Mileshkin, John Coutsouvelis, Jeremy L. Millar, Brian T. Collopy, Jon D. Emery, Phoebe Zhang, Simon Cooper, Carmel O'Kane, Janet Wale, Stephen J. Hancock, Anthony Sulkowski, John Bashford
Summary: Sponsored by the Australian Council on Healthcare Standards, a consensus-driven process using a modified Delphi methodology was conducted to determine a set of clinical indicators for cancer service provision in Australia. After a series of meetings and deliberations, a final set of 16 indicators was established by a multidisciplinary steering group and stakeholder group. This inaugural cancer clinical indicator set aims to drive continual improvement in cancer care provision across Australia and internationally.
MEDICAL JOURNAL OF AUSTRALIA
(2021)
Article
Health Care Sciences & Services
Wael Y. Khawagi, Douglas Steinke, Matthew J. Carr, Alison K. Wright, Darren M. Ashcroft, Anthony Avery, Richard Neil Keers
Summary: This study found potential hazardous prescribing and inadequate medication monitoring in patients with mental illness in primary care. Significant variation between practices was also identified. Patients aged 35-44, females, and those receiving more than 10 repeat prescriptions were at greater risk of triggering a prescribing indicator.
BMJ QUALITY & SAFETY
(2022)
Article
Transplantation
Simon Sawhney, Tom Blakeman, Dimitra Blana, Dwayne Boyers, Nick Fluck, Mintu Nath, Shona Methven, Magdalena Rzewuska, Corri Black
Summary: Inequities in kidney care exist even in high-income countries, with area-level deprivation having a greater impact in the earlier stages of the disease.
NEPHROLOGY DIALYSIS TRANSPLANTATION
(2023)
Article
Public, Environmental & Occupational Health
Camilla Sortso, Jorgen Lauridsen, Martha Emneus, Anders Green, Peter Bjodstrup Jensen
SCANDINAVIAN JOURNAL OF PUBLIC HEALTH
(2018)
Article
Oncology
Mathias Meijer, Lau Caspar Thygesen, Anders Green, Martha Emneus, Klaus Brasso, Peter Iversen, Eero Pukkala, Kristian Bolin, Knut Stavem, Annette K. Ersboll
Article
Endocrinology & Metabolism
Adrian Vlad, Viorel Serban, Anders Green, Soren Moller, Mihaela Vlad, Bogdan Timar, Alexandra Sima
JOURNAL OF CLINICAL RESEARCH IN PEDIATRIC ENDOCRINOLOGY
(2018)
Article
Endocrinology & Metabolism
Christopher C. Patterson, Valma Harjutsalo, Joachim Rosenbauer, Andreas Neu, Ondrej Cinek, Torild Skrivarhaug, Birgit Rami-Merhar, Gyula Soltesz, Jannet Svensson, Roger C. Parslow, Conxa Castell, Eugen J. Schoenle, Polly J. Bingley, Gisela Dahlquist, Przemyslawa K. Jarosz-Chobot, Dale Marciulionyte, Edna F. Roche, Ulrike Rothe, Natasa Bratina, Constantin Ionescu-Tirgoviste, Ilse Weets, Mirjana Kocova, Valentino Cherubini, Natasa Rojnic Putarek, Carine E. Debeaufort, Mira Samardzic, Anders Green
Article
Oncology
Jacob Molstrom, Mark Gronne, Anders Green, Vivi Bakholdt, Jens Ahm Sorensen
EUROPEAN JOURNAL OF CANCER
(2019)
Article
Genetics & Heredity
Katrine Saldern Aagaard, Anette Drohse Kjeldsen, Pernille Mathiesen Torring, Anders Green
ORPHANET JOURNAL OF RARE DISEASES
(2018)
Article
Psychiatry
Maria Brink, Anders Green, Anders Bo Bojesen, J. Steve Lamberti, Yeates Conwell, Kjeld Andersen
SCHIZOPHRENIA RESEARCH
(2019)
Article
Gastroenterology & Hepatology
Steffen Bank, Mette Julsgaard, Osama Karim Abed, Johan Burisch, Jacob Broder Brodersen, Natalia Konstantinovich Pedersen, Anja Gouliaev, Rullah Ajan, Ditlev Nytoft Rasmussen, Camilla Honore Grauslund, Stine Roug, Julie Galsgaard, David Sprogoe Hoyer Finsen, Karoline Lindby, Jeanette Sorensen, Lone Larsen, Malene Rohr Andersen, Ivan Brandslund, Mads Thomassen, Anders Green, Anders Bo Bojesen, Signe Bek Sorensen, Ulla Vogel, Vibeke Andersen, Ann Christina Bergmann, Paal Skytt Andersen, Shaista Rashid, Britta Ornfelt Lund, Britt Kaiser Rasmussen, Sara Avlund, Marie Odum Nielsen, Eva Karolina Nilsdotter Bramstang, Anja Poulsen, Ditte Rudbeck-Resdal, Luise Aamann, Maria Joanna Alexandraki, Ali Foroutani, Line Molzen, Anders Hatrop, Charlotte Siggaard Rittig, Elisabeth Stenbog, Nora Elisabeth Hedback, Rasmus Gaardskaer Nielsen, Frank Vinholt Schiodt, Katrine Carlsen, Ram Benny Dessau, Hans Jurgen Hoffmann, Bjorn Andersen Nexo, Jacob Sode
ALIMENTARY PHARMACOLOGY & THERAPEUTICS
(2019)
Article
Oncology
Thora M. Kjaerulff, Annette K. Ersboll, Anders Green, Martha Emneus, Klaus Brasso, Peter Iversen, Eero Pukkala, Kristian Bolin, Lau C. Thygesen
CANCER EPIDEMIOLOGY BIOMARKERS & PREVENTION
(2019)
Article
Oncology
Majken M. Bronserud, Maria Iachina, Anders Green, Mogens Groenvold, Liv Dorflinger, Erik Jakobsen
Article
Oncology
Majken M. Bronserud, Maria Iachina, Anders Green, Mogens Groenvold, Erik Jakobsen
Article
Endocrinology & Metabolism
Ida Bogh Andersen, Claus Lohman Brasen, Hashmatullah Nasimi, Maria Stougard, Mette Bliddal, Anders Green, Anne Schmedes, Ivan Brandslund, Jonna Skov Madsen
BMJ OPEN DIABETES RESEARCH & CARE
(2020)
Article
Public, Environmental & Occupational Health
Vibeke Andersen, Andreas Kristian Pedersen, Soeren Moeller, Anders Green
Summary: Parents with CIDs increase the risk of their offspring developing the same CID as well as other specific CIDs. Future studies should focus on the etiology underlying these findings to support the development of new strategies for prevention, treatment, and cure.
CLINICAL EPIDEMIOLOGY
(2021)
Article
Endocrinology & Metabolism
Anders Green, Simone M. Hede, Christopher C. Patterson, Sarah H. Wild, Giuseppina Imperatore, Gojka Roglic, David Beran
Summary: Global estimates for incident and prevalent cases of type 1 diabetes in 2017 were found to be 234,710 and 9,004,610 respectively, with high-income countries accounting for a significant portion. Asia had the largest number of cases, reflecting its population size. Sensitivity analyses showed estimates could deviate by up to 15%.
Meeting Abstract
Health Care Sciences & Services
Majken Broenserud, Maria Iachina, Anders Green, Mogens Gronvold, Erik Jakobsen
QUALITY OF LIFE RESEARCH
(2018)