Article
Rehabilitation
Kurt Kroenke, Timothy A. Miksch, Aaron C. Spaulding, Gina L. Mazza, Christopher C. DeStephano, Shehzad K. Niazi, Allie J. Canoy Illies, Mohamad Bydon, Paull Novotny, Anshit Goyal, Minji K. Lee
Summary: This overview addresses key factors and practical decisions related to the use of patient-reported outcome (PRO) measures, as well as highlights clinical decision support issues.
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION
(2022)
Article
Rheumatology
Helen Twohig, Caroline Mitchell, Christian Mallen, Sara Muller
Summary: This study developed and psychometrically evaluated a patient-reported outcome measure (PROM) for polymyalgia rheumatica (PMR). The PROM, named PMR-Impact Scale (PMR-IS), consists of four domains (symptoms, function, psychological and emotional well-being, and steroid side effects). The PMR-IS showed good construct validity and test-retest reliability, but further work is needed to establish its responsiveness and interpretability parameters.
Article
Oncology
Ezekiel Weis, Jing Jiang, Alison H. Skalet, Carol L. Shields, R. Trafford Crump
Summary: The psychometric properties of a new patient-reported outcome instrument for uveal melanoma patients who have undergone brachytherapy were evaluated using classical test theory and item response theory. A cross-sectional study with a convenience sample of 439 participants from ocular oncology treatment centers identified three domains: Symptom Impairment, Worry, and Discomfort. The instrument showed good acceptability, reliability, and discrimination, making it suitable for post-treatment management.
Article
Rheumatology
Susan Bridgewater, Michael A. Shepherd, Jill Dawson, Pamela Richards, Christine Silverthorne, Mwidimi Ndosi, Celia Almeida, Rachel J. Black, Jonathan T. L. Cheah, Emma Dures, Nilasha Ghosh, Elizabeth A. Hoon, Suellen Lyne, Iris Navarro-Millan, Diyu Pearce-Fisher, Carlee Ruediger, Joanna Tieu, Kevin Yip, Sarah L. Mackie, Susan Goodman, Catherine Hill, Joanna C. Robson
Summary: This study aimed to explore the impact of glucocorticoid therapy on health-related quality of life (HRQoL) in patients with rheumatic diseases and develop a treatment-specific patient-reported outcome measure (PROM) for use in clinical trials and practice.
Article
Medicine, General & Internal
Beata Tarnacka, Bogumil Korczynski, Justyna Frasunska
Summary: This study evaluates the influence of robotic-assisted gait training (RAGT) and dynamic parapodium training (DPT) on improving gait motor functions in spinal cord injury (SCI) patients. The results showed that patients who received RAGT had more significant improvements in gait motor scores and walking index compared to those who received DPT. Therefore, RAGT can be considered as an effective treatment option for SCI patients in the subacute phase.
Article
Rehabilitation
Andrew J. Bodine, Allen W. Heinemann, Julia Carpenter, Sally M. Taylor, Piper Hansen, Richard L. Lieber, James Sliwa
Summary: The study aimed to develop and evaluate a measure of clinician-observed and patient-performed self-care function for inpatient rehabilitation. By using confirmatory factor analysis and multidimensional item response theory, researchers found that the new self-care measure demonstrated better sensitivity and measurement properties compared to traditional methods.
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION
(2021)
Article
Rheumatology
Katja Reuter, Atul Deodhar, Souzi Makri, Michael Zimmer, Francis Berenbaum, Elena Nikiphorou
Summary: This study utilized Twitter data to show how the COVID-19 pandemic affected individuals with rheumatic and musculoskeletal diseases. The findings highlighted negative impacts on health behavior, healthcare access, mental health, and work participation among patients.
Article
Dermatology
Anne F. Klassen, Charlene Rae, Maureen O'Malley, Trisia Breitkopf, Leah Algu, Jasmine Mansouri, Claire R. Brown, Yi Wang, Shari R. Lipner
Summary: This study designed and tested a rigorously developed PROM, the NAIL-Q, to measure nail appearance, health-related quality of life, and treatment outcomes. It can be used in clinical practice to inform patient care and include the patient perspective in research.
CLINICAL COSMETIC AND INVESTIGATIONAL DERMATOLOGY
(2023)
Article
Rehabilitation
Adrian M. Svingos, Stacy J. Suskauer, Beth S. Slomine, Hsuan Wei Chen, Michael E. Ellis-Stockley, Rob J. Forsyth
Summary: This study aimed to determine the distribution of items on the Cognitive and Linguistic Scale (CALS) and explore the relationship between Rasch-derived Cognitive Ability Estimates and outcome trajectory parameters. The study concluded that the Cognitive Ability Estimates derived from the CALS may serve as an ideal outcome measure for evaluating interventions in pediatric rehabilitation settings for acquired brain injury.
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION
(2022)
Article
Medicine, General & Internal
Anna Dowling, Ellen Slungaard, Nicola R. Heneghan
Summary: A study on flight-related neck pain among military aircrew found that it has a significant and persistent impact on physical, occupational, psychological, and social aspects. Specific attention should be given to occupational, psychological, and social factors in addition to physical symptoms when managing neck pain in military aircrew.
Article
Genetics & Heredity
Sophie Cleanthous, Ann-Christin Mork, Antoine Regnault, Stefan Cano, Henry J. Kaminski, Thomas Morel
Summary: The research team developed a novel patient-reported outcome (PRO) instrument for MG symptoms using mixed methods psychometrics (MMP), which has the potential to assess the severity of MG symptoms from the patient perspective. This PRO tool may be used to measure treatment benefit in clinical trials and monitor symptom severity in clinical practice, providing detailed assessments of muscle weakness and fatigue symptoms important to individuals with MG.
ORPHANET JOURNAL OF RARE DISEASES
(2021)
Article
Clinical Neurology
Marta Olive-Gadea, David Cano, Marc Rodrigo-Gisbert, Marian Muchada, Estefania Montiel, Maria Baladas, Ester Sanchez-Gavilan, Carolina Paredes, Alvaro Garcia-Tornel, Marta Rubiera, Manuel Requena, Marc Ribo, Carlos A. Molina
Summary: Patient-reported outcome measures (PROMs) provide valuable information for assessing the long-term outcomes of stroke patients. This study used a mobile app to evaluate PROMs in patients with minor stroke or transient ischemic attack and found a correlation between patient-reported outcomes and clinician-assessed outcomes, although some differences were observed.
Article
Rehabilitation
Daniel Deutscher, Michael A. Kallen, Deanna Hayes, Mark W. Werneke, Jerome E. Mioduski, Carole A. Tucker, Karon F. Cook
Summary: The study calibrated the LEFS items into a regional lower extremity physical function item bank, assessed reliability and validity under different administration modes, and found that LEPF scores were reliable, valid, and efficient for assessing perceived physical function of patients with musculoskeletal impairments of the hip, knee, foot, and ankle. Further validation is needed to assess generalizability to other patient populations.
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION
(2021)
Article
Engineering, Biomedical
Emilie Leblong, Bastien Fraudet, Louise Devigne, Marie Babel, Francois Pasteau, Benoit Nicolas, Philippe Gallien
Summary: This study highlights the effectiveness of a robotic driver assistance module in reducing collisions and improving safety while driving a powered wheelchair, without compromising speed. The findings suggest the potential benefit of this device for a wider population, especially those with driving difficulties, to travel independently and safely.
JOURNAL OF NEUROENGINEERING AND REHABILITATION
(2021)
Article
Clinical Neurology
Hong Pan, Shamay S. M. Ng, Tai Wa Liu, Joshua Tsoh, Thomson W. L. Wong
Summary: This study aimed to culturally adapt and examine the psychometric properties of the Chinese (Cantonese) version of the Upper Extremity Functional Index (C-UEFI) in people with chronic stroke. The results showed that the C-UEFI demonstrated good test-retest reliability and excellent internal consistency. It is reliable and valid for assessing functional recovery of upper extremity activity in Chinese people with chronic stroke.
FRONTIERS IN NEUROLOGY
(2023)