Article
Health Care Sciences & Services
Adam B. Smith, Evi Tselenti, Dipak Kanabar, Lisa Miles
Summary: This qualitative study aimed to construct an observer-reported outcome measure (ObsRO) to evaluate fever distress in young children. By conducting a literature review, interviewing clinical experts and parents, and using cognitive interviews, a final set of 18 items were developed for the ObsRO. Further validation studies will be conducted to test the measurement properties of each item.
QUALITY OF LIFE RESEARCH
(2022)
Article
Ophthalmology
Antonia Morga, Christina X. Chamberlain, Oren Meyers, Caroline Roberts, Luis Gaspar, Jun Su
Summary: This study evaluated the experience of patients with GA secondary to dry AMD, and mapped items from the VISSA-10 PRO instrument to salient symptoms. The VISSA-10 instrument was shown to be content valid, clear, and comprehensible, with sufficient concept coverage to measure the experience of patients with GA.
OPHTHALMOLOGY AND THERAPY
(2023)
Article
Public, Environmental & Occupational Health
Finaba Berete, Johan Van der Heyden, Stefaan Demarest, Rana Charafeddine, Jean Tafforeau, Herman Van Oyen, Olivier Bruyere, Francoise Renard
Summary: The study revealed that self-reported mammography uptake among women aged 50-69 is influenced by both selection and reporting biases. Administrative and survey data are complementary in assessing mammography uptake.
EUROPEAN JOURNAL OF PUBLIC HEALTH
(2021)
Article
Endocrinology & Metabolism
Juliette Maurel, Rosine Guimbaud, Thierry Lecomte, Astrid Lievre, Vincent Hautefeuille, Philip Robinson, Laurent Francois, Catherine Lombard-Bohas, Julien Forestier, Laurent Milot, Fabien Subtil, Thomas Walter
Summary: The study found that patient-reported outcomes of carcinoid syndrome patients showed that the main domains affecting daily life were traveling and food restriction. The most common symptoms were diarrhea, imperiousness, fatigue, abdominal pain, and flushing episodes. The PRO-CSS score was not correlated with clinical assessments, and patients with a low PRO-CSS score generally had a higher tumor burden.
EUROPEAN JOURNAL OF ENDOCRINOLOGY
(2021)
Article
Health Care Sciences & Services
Neha Durgam, Ankur A. Dashputre, Olga Moshkovich, Ali Rezaie, Nicholas Martinez, Pedram Enayati, James Stansbury, George Joseph
Summary: The purpose of this study was to develop and validate a new PRO instrument, the SIBO Symptom Measure (SSM) daily diary. The SSM assesses symptom severity in SIBO patients, aiming to provide a PRO tool for endpoint measurement.
QUALITY OF LIFE RESEARCH
(2023)
Article
Psychology, Multidisciplinary
Gavin J. Hays, Adam L. Hendry, Mabel Tang, Jerome I. Rotgans
Summary: The objective of this study was to establish the reliability and validity of the Concept Retrieval Technique (CRT) for measuring conceptual knowledge. Through four studies, it was shown that the CRT is a reliable and valid procedure for measuring conceptual knowledge.
CURRENT PSYCHOLOGY
(2023)
Article
Psychiatry
Xiao Lin, Hongjun Tian, Lina Wang, Ranli Li, Xiaoyan Ma, Yun Sun, Ziyao Cai, Jing Ping, Langlang Chen, Chuanjun Zhuo, Haiping Yu
Summary: This study used an updated tool, the patient-reported impact of symptoms in schizophrenia scale (PRISS), translated into Chinese languages to assess the subjective experiences of schizophrenia patients. The results showed that the Chinese version of PRISS (CL-PRISS) can effectively assess the subjective experience of Chinese patients with schizophrenia.
FRONTIERS IN PSYCHIATRY
(2023)
Review
Health Care Sciences & Services
Mikko Uimonen, Ilari Kuitunen, Oskari Pakarinen, Matias Vaajala, Rasmus Liukkonen, Hannes Tukiainen, Ville Ponkilainen
Summary: This study examined the methodological basis behind the conclusions of PROM validation studies. The results revealed that PROM studies often had insufficient sample sizes and focused on a limited number of validity subfields, raising concerns about the deterministic conclusions regarding the validity of PROMs.
JOURNAL OF CLINICAL EPIDEMIOLOGY
(2023)
Article
Pediatrics
Tong Xu, Haiyue Zhang, Yuhai Zhang, Peng Yang, Zhe Yang, Xun Jiang, Lei Shang
Summary: The aim of this study was to develop a questionnaire that can be used to monitor and evaluate the disease control effectiveness and quality of life of children with asthma in China, and to conduct a preliminary evaluation of its reliability, validity, and discriminative ability. The questionnaire was created through a literature review and qualitative interviews, and was refined based on a series of investigations. The questionnaire showed good reliability, construct validity, and discriminative ability in children with asthma in China.
FRONTIERS IN PEDIATRICS
(2023)
Article
Obstetrics & Gynecology
Elke Hunsche, Martha Gauthier, Brooke Witherspoon, Viatcheslav Rakov, Sanjay K. Agarwal
Summary: This interview study aimed to capture patients' experiences and perceptions of endometriosis symptoms and their impacts on daily life. Open-ended questions and a concept-elicitation approach were used to assess the signs and symptoms of endometriosis and their impacts on quality of life.
INTERNATIONAL JOURNAL OF WOMENS HEALTH
(2023)
Article
Health Care Sciences & Services
Stacie Hudgens, Amy Howerter, Shannon Keith, Colby Evans, Corey Pelletier
Summary: A reliable and validated patient-reported instrument, the Treatment Acceptability Questionnaire (TAQ), has been developed to assess the expectations and preferences of psoriasis patients regarding their treatment. The TAQ can provide valuable insights for both patients and healthcare providers and facilitate shared decision making.
HEALTH AND QUALITY OF LIFE OUTCOMES
(2023)
Article
Pediatrics
Cesar Merino-Soto, Anthony Copez-Lonzoy, Filiberto Toledano-Toledano, Laura A. Nabors, Jorge Homero Rodrigez-Castro, Gregorio Hernandez-Salinas, Miguel Angel Nunez-Benitez
Summary: There is evidence suggesting that anonymity in investigating individual variables may enhance the objectivity of measuring certain psychosocial constructs. However, there is limited research on whether the same measurement instrument can be effectively used to assess two groups, one anonymous and the other revealing identities. This study aimed to compare the psychometric characteristics of a measure of depressive symptoms in two groups of adolescents based on whether they answered the instrument anonymously or identified.
Article
Health Care Sciences & Services
K. D. Valentine, Ha Vo, Floyd J. Fowler, Suzanne Brodney, Michael J. Barry, Karen R. Sepucha
Summary: The study conducted secondary data analysis across 8 studies of 11 surgical conditions with 3965 responses, identifying a short, partial credit, equally weighted version of the Shared Decision Making Process scale with favorable properties. Results showed that higher SDM Process scores were associated with higher decision quality, higher SURE scale scores, and lower decision regret. However, significant heterogeneity was present in all validity analyses.
MEDICAL DECISION MAKING
(2021)
Article
Gastroenterology & Hepatology
Sara Z. Kuiper, Merel L. Kimman, Robin R. Van Tol, Sophie F. Waardenburg, Sander M. J. Van Kuijk, Carmen D. Dirksen, Stephanie O. Breukink
Summary: In this study, the development and validation of the Dutch patient reported outcome measure-haemorrhoidal impact and satisfaction score (PROM-HISS) is described. The PROM-HISS showed good face and content validity, reliability, and construct validity. It is a reliable and valid instrument to evaluate symptoms of haemorrhoidal disease, impact on daily activities, and satisfaction with treatment.
COLORECTAL DISEASE
(2022)
Article
Neurosciences
Lucie Daniel-Watanabe, Martha McLaughlin, Siobhan Gormley, Oliver J. Robinson
Summary: This study aimed to develop a measure of negative cognitive biases that is both translational and sensitive to individual differences, and to determine which specific self-reported psychiatric symptoms are related to bias.
BIOLOGICAL PSYCHIATRY-COGNITIVE NEUROSCIENCE AND NEUROIMAGING
(2022)
Article
Urology & Nephrology
Scott Sibbel, Adam G. Walker, Carey Colson, Francesca Tentori, Steven M. Brunelli, Jennifer Flythe
CLINICAL JOURNAL OF THE AMERICAN SOCIETY OF NEPHROLOGY
(2019)
Editorial Material
Urology & Nephrology
Jennifer E. Flythe, Thomas H. Hostetter
CLINICAL JOURNAL OF THE AMERICAN SOCIETY OF NEPHROLOGY
(2019)
Editorial Material
Medicine, General & Internal
Jennifer E. Flythe
ANNALS OF INTERNAL MEDICINE
(2019)
Article
Urology & Nephrology
Magdalene M. Assimon, M. Alan Brookhart, Jennifer E. Flythe
JOURNAL OF THE AMERICAN SOCIETY OF NEPHROLOGY
(2019)
Article
Urology & Nephrology
Tara I-Hsin Chang, Sai Liu, Medha Airy, Jingbo Niu, Mintu P. Turakhia, Jennifer E. Flythe, Maria E. Montez-Rath, Wolfgang C. Winkelmayer
CLINICAL JOURNAL OF THE AMERICAN SOCIETY OF NEPHROLOGY
(2019)
Review
Urology & Nephrology
Jennifer E. Flythe, Nisha Bansal
SEMINARS IN DIALYSIS
(2019)
Article
Urology & Nephrology
Dhruti P. Chen, Jennifer E. Flythe
HEMODIALYSIS INTERNATIONAL
(2020)
Article
Urology & Nephrology
Magdalene M. Assimon, Patrick H. Pun, Lily Wang, Sana M. Al-Khatib, M. Alan Brookhart, David J. Weber, Wolfgang C. Winkelmayer, Jennifer E. Flythe
Summary: This study conducted two cohort studies using the United States Renal Data System to compare the cardiac safety of azithromycin with amoxicillin-based antibiotics and levofloxacin in the hemodialysis population. The results showed that azithromycin treatment was associated with a higher risk of sudden cardiac death compared to amoxicillin-based antibiotics, but a lower risk compared to levofloxacin.
KIDNEY INTERNATIONAL
(2022)
Article
Urology & Nephrology
Yuzhi Xi, David B. Richardson, Abhijit V. Kshirsagar, Jennifer E. Flythe, Eric A. Whitsel, Timothy J. Wade, Ana G. Rappold
Summary: This study aimed to investigate the association between short-term PM2.5 exposure and serum biomarkers. The results from a retrospective study showed that an increase in same-day PM2.5 exposure was associated with lower serum hemoglobin and albumin among patients receiving in-center hemodialysis.
Article
Urology & Nephrology
Rebekah P. P. Nash, Marci M. Loiselle, Jessica L. L. Stahl, Jamie L. Conklin, Terra L. Rose, Alissa Hutto, Donna M. Evon, Jennifer E. Flythe, Eileen J. Burker
Summary: PTG, resilience, and benefit finding seem to reduce the risk of PTSD, promote well-being, and reduce the risk of graft failure in KT recipients.
Article
Urology & Nephrology
Adeline Dorough, Julia H. Narendra, Caroline Wilkie, Akhil Hegde, Kawan Swain, Emily H. Chang, Terence Oliver, Jennifer E. Flythe
Summary: By collaborating with key stakeholders, the research team developed mixed media vascular access education materials that were well-received by patients and providers. Preliminary findings indicate that the materials are promising in improving patients' understanding of vascular access.
Article
Urology & Nephrology
Jennifer E. Flythe, Julia H. Narendra, Christina Yule, Surya Manivannan, Shannon Murphy, Shoou-Yih D. Lee, Tara S. Strigo, Sarah Peskoe, Jane F. Pendergast, L. Ebony Boulware, Jamie A. Green
Summary: This study implemented a quality improvement program to enhance pre-HD vascular access care, resulting in improved patient knowledge and self-efficacy. The findings suggest that interventions targeting patient and health system barriers can effectively improve patient engagement in vascular access care.
Article
Medicine, Research & Experimental
Matthew J. Tugman, Julia H. Narendra, Quefeng Li, Yueting Wang, Alan L. Hinderliter, Steven M. Brunelli, Jennifer E. Flythe
CONTEMPORARY CLINICAL TRIALS COMMUNICATIONS
(2019)
Article
Urology & Nephrology
Jennifer E. Flythe, Derek Forfang, Nieltje Gedney, David M. White, Caroline Wilkie, Kerri L. Cavanaugh, Raymond C. Harris, Mark Unruh, Grace Squillaci, Melissa West, Carol Mansfield, Cindy S. Soloe, Katherine Treiman, Dallas Wood, Frank P. Hurst, Carolyn Y. Neuland, Anindita Saha, Murray Sheldon, Michelle E. Tarver
Summary: This study aimed to capture patients' preferences for wearable dialysis devices and in-center hemodialysis through interviews and surveys. A 54-item web-based survey was developed to estimate the maximal acceptable risk for the described wearable device and willingness to wait for wearable devices with lower risk.