Article
Oncology
Emily E. van Seventer, Madeleine G. Fish, Kathryn Fosbenner, Katie Kanter, Amirkasra Mojtahed, Jill N. Allen, Lawrence Blaszkowsky, Jeffrey W. Clark, Jon Dubois, Joseph W. Franses, Bruce J. Giantonio, Lipika Goyal, Samuel J. Klempner, Eric J. Roeland, David P. Ryan, Colin D. Weekes, Therese Mulvey, Areej El-Jawahri, Nora Horick, Ryan B. Corcoran, Aparna R. Parikh, Ryan D. Nipp
Summary: This study found that baseline patient-reported outcomes (PROs) are associated with treatment response, healthcare utilization, and survival in patients with advanced gastrointestinal cancer. Specifically, physical symptoms and functional quality of life were correlated with disease progression and survival.
Article
Medicine, General & Internal
T. Munyombwe, T. B. Dondo, S. Aktaa, C. Wilkinson, M. Hall, B. Hurdus, G. Oliver, R. M. West, A. S. Hall, C. P. Gale
Summary: This study identified three distinct multimorbidity patterns in MI survivors, which were found to be inversely associated with HRQoL.
Review
Endocrinology & Metabolism
Per Karkov Cramon, Jakob Bue Bjorner, Mogens Groenvold, Victor Brun Boesen, Steen Joop Bonnema, Laszlo Hegedus, Ulla Feldt-Rasmussen, Ase Krogh Rasmussen, Torquil Watt
Summary: Patient-reported outcomes (PROs) are increasingly used in clinical practice to improve clinical care. However, successful implementation of PROs requires addressing barriers and challenges.
FRONTIERS IN ENDOCRINOLOGY
(2022)
Review
Dentistry, Oral Surgery & Medicine
Gotfredsen Klaus
Summary: Evidence-based dentistry involves using evidence from the literature, clinical expertise, and patient expectations to make decisions and assess treatment. Patient satisfaction can be evaluated using questionnaires or structured questions and includes affability, availability, and ability. Questionnaires such as the oral health impact profile (OHIP) or the dental impact on daily living (DIDL) can be used to assess patient perception and quality of life. Patient-reported outcome measures (PROMs) have shown to enhance patient engagement and should be integrated into clinical care.
PERIODONTOLOGY 2000
(2023)
Article
Public, Environmental & Occupational Health
Dalia Al-Abdulrazzaq, Doaa Khalifa, Taiba Alqaisi, Fatima Al-Juailla, Fouzeyah Othman, Sarah Qabazard, Hessa Al-Kandari
Summary: This study compares the health-related quality of life (HRQoL) of children and adolescents with type 1 diabetes (T1D) who were affected by COVID-19 and those who were not. The results show differences between parent-proxy reports and self-reports, with parents generally perceiving lower HRQoL for their children. COVID-19-affected children had lower HRQoL scores in certain areas, particularly in diabetes symptoms.
FRONTIERS IN PUBLIC HEALTH
(2022)
Article
Cardiac & Cardiovascular Systems
Brittany Humphries, Jafna L. Cox, Ratika Parkash, Lehana Thabane, Gary A. Foster, James MacKillop, Joanna Nemis-White, Laura Hamilton, Antonio Ciaccia, Shurjeel H. Choudhri, Feng Xie
Summary: The IMPACT-AF trial compared atrial fibrillation management with a computerized clinical decision support system to usual care in Nova Scotia, Canada. The study found that over 12 months, patients' health-related quality of life remained stable, with no significant differences in patient satisfaction or utility scores between the clinical decision support and control groups.
JOURNAL OF THE AMERICAN HEART ASSOCIATION
(2021)
Article
Gastroenterology & Hepatology
John E. Pandolfino, Dustin A. Carlson, Josie McGarva, Peter J. Kahrilas, Michael Vaezi, David Katzka, Tiffany H. Taft
Summary: The study developed a new Achalasia Patient-Reported Outcomes (APRO) Questionnaire, identified three subscales through investigation of patients with normal motility and achalasia, and found that symptom anxiety and hypervigilance moderate the relationship between APRO and quality of life.
ALIMENTARY PHARMACOLOGY & THERAPEUTICS
(2022)
Article
Oncology
Stephanie Alimena, Lauren Philp, Endel John Orav, Mackenzie W. Sullivan, Marcela Del Carmen, Annekathryn Goodman, Whitfield B. Growdon, Amy Bregar, Eric Eisenhauer, Rachel Clark Sisodia
Summary: While no obvious memory issues were discovered with serial administration of patient-reported outcome measures, rates of adverse emotional symptoms such as depression, tension, and worry decreased after chemotherapy. Chemotherapy can have some impact on patients' social lives. Further research with a larger cohort is needed to explore the phenomenon of chemotherapy-related cognitive impairment.
INTERNATIONAL JOURNAL OF GYNECOLOGICAL CANCER
(2022)
Review
Medicine, General & Internal
Sarah E. Hughes, Olalekan Lee Aiyegbusi, Daniel S. Lasserson, Philip Collis, Samantha Cruz Rivera, Christel McMullan, Grace M. Turner, Jon Glasby, Melanie Calvert
Summary: PROs are measures of a person's views on their health and quality of life, typically assessed through self-completed questionnaires known as PROMs. While they have potential in social care, their current use in this context is unclear.
Article
Cardiac & Cardiovascular Systems
Adrienne H. Kovacs, Gerald Lebovic, Stavroula Raptis, Samuel Blais, Christopher A. Caldarone, Nagib Dahdah, Frederic Dallaire, Christian Drolet, Jasmine Grewal, Camille L. Hancock Friesen, Edward Hickey, Gauri Rani Karur, Paul Khairy, Benedetta Leonardi, Michelle Keir, Brian W. McCrindle, Syed Najaf Nadeem, Ming-Yen Ng, Ashish H. Shah, Edythe B. Tham, Judith Therrien, Andrew E. Warren, Isabelle F. Vonder Muhll, Alexander Van de Bruaene, Kenichiro Yamamura, Michael E. Farkouh, Rachel M. Wald
Summary: This study explored the relationship between pulmonary regurgitation and quality of life and health status in adults with Tetralogy of Fallot (TOF), and found that with advancing age, patients reported more problems in mobility and pain or discomfort. Factors associated with superior patient-reported outcomes include race, syndrome, employment, and left ventricular function, while being asymptomatic was found to have the greatest impact on quality of life and health status.
JOURNAL OF THE AMERICAN COLLEGE OF CARDIOLOGY
(2023)
Article
Pediatrics
Benjamin Saul Raywood Allin, Charles Opondo, Timothy John Bradnock, Simon Edward Kenny, Jennifer J. Kurinczuk, Gregor M. Walker, Marian Knight
Summary: This study describes the core outcomes of Hirschsprung's disease (HD) in primary school-aged children in the UK and Ireland, revealing high rates of fecal incontinence, unplanned procedures, and low quality of life scores. It highlights the importance of clinicians addressing the bladder, bowel, and psychological problems experienced by children with HD.
ARCHIVES OF DISEASE IN CHILDHOOD
(2021)
Article
Oncology
Toni K. Choueiri, Piotr Tomczak, Se Hoon Park, Balaji Venugopal, Stefan Symeonides, Jaroslav Hajek, Thomas Ferguson, Yen-Hwa Chang, Jae Lyun Lee, Naomi Haas, Piotr Sawrycki, Naveed Sarwar, Marine Gross-Goupil, Antoine Thiery-Vuillemin, Mauricio Mahave, Go Kimura, Rodolfo F. Perini, Todd L. Saretsky, Rituparna Bhattacharya, Lei Xu, Thomas Powles
Summary: The study analysis shows that the use of pembrolizumab as adjuvant therapy for renal cell carcinoma patients does not lead to a decline in health-related quality of life. This finding supports the use of pembrolizumab treatment following nephrectomy.
Article
Oncology
Melisa Guelhan Inci, Rolf Richter, Kathrin Heise, Ricarda Dukatz, Hannah Woopen, Jalid Sehouli
Summary: The aim of this analysis was to evaluate the health-related quality of life (HR-QoL) in patients with ovarian cancer. The emotional, cognitive, and social functioning scales were lower in patients with ovarian cancer than in healthy females, while no significant differences were found in the physical functioning scale. Younger patients with ovarian cancer reported even lower HR-QoL for emotional, social, and cognitive functioning scales, as well as more fatigue and financial difficulties.
Article
Pediatrics
Shiyi Dai, Kaiying Yang, Tong Qiu, Jiangyuan Zhou, Xuepeng Zhang, Siyuan Chen, Lizhi Li, Yi Ji
Summary: This study aimed to determine the health-related quality of life (HRQOL) in children with Kaposiform hemangioendothelioma (KHE). The study found that children with KHE have a poor HRQOL, with activity dysfunction and KMP being risk factors for poor HRQOL. However, lesion size, lesion location, and education level of parents were not related to HRQOL.
FRONTIERS IN PEDIATRICS
(2022)
Article
Health Care Sciences & Services
Seth A. Berkowitz, Deepak Palakshappa, Hilary K. Seligman, Janel Hanmer
Summary: This study found that improvement in food security was associated with improvement in mental health, psychological distress, depressive symptoms, and health utility among food-insecure adults. However, there was no statistically significant improvement in physical health and self-rated health.
JOURNAL OF GENERAL INTERNAL MEDICINE
(2022)
Article
Medicine, Research & Experimental
Matthew E. Jung, Miranda Colletta, Rebecca Coalson, Bradley L. Schlaggar, Judith E. C. Lieu
Review
Medicine, Research & Experimental
Allison K. Ikeda, Anthony A. Prince, Jenny X. Chen, Judith E. C. Lieu, Jennifer J. Shin
Editorial Material
Otorhinolaryngology
Judith E. C. Lieu
JAMA OTOLARYNGOLOGY-HEAD & NECK SURGERY
(2017)
Review
Medicine, Research & Experimental
Carla V. Valenzuela, James C. Liu, Peter M. Vila, Laura Simon, Michelle Doering, Judith E. C. Lieu
Article
Medicine, Research & Experimental
Cathy Y. Yu, Donna B. Jeffe, Margaret A. Kenna, John A. Germiller, Judith E. C. Lieu
Summary: A new parent-proxy Preschool Hearing Environments and Reflection on Quality of Life (HEAR-QL) questionnaire was developed and evaluated for children 2 to 6 years old with any hearing loss. The questionnaire was reduced to 23 items with five underlying factors: Behavior and Attention, Hearing Environments, New Social Situations, Social Interactions, and Communication. The study found moderate-to-strong correlations between each Preschool HEAR-QL factor and previously validated measures, supporting its construct validity. Discriminant validity testing requires a larger sample of children with normal hearing.
Review
Medicine, Research & Experimental
Kelly M. Malloy, Judith E. C. Lieu, Brian P. Cervenka, Ellen S. Deutsch, Sonya Malekzadeh
Summary: Simulation-based boot camps have become important for novice residents to develop skills in managing medical emergencies. Regional boot camps provide opportunities for interaction among residents and faculty from various otolaryngology programs. The study assessed regional access to otolaryngology boot camps, identifying variations in participant numbers and finances but consistency in curriculum. The SUO Task Force recommends establishing common skill and teamwork objectives for each boot camp.
Article
Otorhinolaryngology
Chengetai Mahomva, Anne Kim, Judith E. C. Lieu, Donald M. Goldberg, Samantha Anne
Summary: "This study found a higher prevalence of SLD in patients with mild-moderate USNHL compared to the general population, with no significant difference between mild-moderate and severe-profound USNHL. There were no significant correlations between SLAT measures and PTA thresholds."
INTERNATIONAL JOURNAL OF PEDIATRIC OTORHINOLARYNGOLOGY
(2021)
Article
Otorhinolaryngology
Steven K. Brennan, David Molter, Maithilee Menezes, Katherine Dunsky, David Leonard, Judith Lieu, Keiko Hirose, Guy Hazan, Amjad Horani, Thomas Ferkol, Steven L. Brody
Summary: This study tested a simple screening tool to detect PCD in children with chronic otitis media and chronic rhinosinusitis. While no new cases of PCD were detected, standardized screening questions can help in identifying patients who require further evaluation for PCD or primary immunodeficiency.
INTERNATIONAL JOURNAL OF PEDIATRIC OTORHINOLARYNGOLOGY
(2021)
Review
Otorhinolaryngology
Suat Kilic, Malek H. Bouzaher, Michael S. Cohen, Judith E. C. Lieu, Margaret Kenna, Samantha Anne
Summary: Children with bilateral sensorineural hearing loss should undergo a comprehensive medical evaluation to determine the underlying cause and guide treatment. This evaluation includes history, physical examination, imaging, genetic testing, and specialist referrals. The results can help identify the cause of the hearing loss, determine treatment options, and provide appropriate counseling and guidance.
LARYNGOSCOPE INVESTIGATIVE OTOLARYNGOLOGY
(2021)
Article
Otorhinolaryngology
Delaney Carpenter, William Dougherty, Sampat Sindhar, Tzzy-Nong Friesen, Judith Lieu, Bradley W. Kesser
Summary: The study aimed to determine whether children with unilateral sensorineural hearing loss (USNHL) and unilateral conductive hearing loss (UCHL) experience higher levels of fatigue compared to normal hearing children. The results showed that children with USNHL reported greater levels of fatigue than normal hearing children and children with UCHL.
INTERNATIONAL JOURNAL OF PEDIATRIC OTORHINOLARYNGOLOGY
(2022)
Article
Medicine, Research & Experimental
Kim H. E. Bakkum, Emma M. Teunissen, Arno M. Janssen, Judith E. C. Lieu, Myrthe K. S. Hol
Summary: Fatigue and hearing-related quality of life may be affected in children with unilateral hearing loss (UHL). Hearing aids may have an impact on reducing fatigue in children.
Article
Medicine, Research & Experimental
Amy L. Zhang, Rebecca Z. Lin, Emma K. Landes, Amy E. Ensing, Henok Getahun, Judith E. C. Lieu
Summary: This study aimed to investigate the fatigue levels of children with hearing loss (HL) and obstructive sleep apnea (OSA), and found that children with HL or OSA experience higher fatigue and lower quality of life compared to controls.
Article
Medicine, Research & Experimental
Yupeng Liu, Dante J. Nicotera, Aseeyah A. Islam, Kate Dunsky, Judith E. C. Lieu
Summary: This study found a high success rate of medical management for pediatric retropharyngeal abscess. Patient characteristics and clinical features were not significant predictors of surgical outcomes, but CT findings such as rim enhancement were strongly associated with positive surgical drainage.
Article
Medicine, Research & Experimental
Dante J. Nicotera, Aseeyah A. Islam, Yupeng Liu, Kate Dunsky, Judith E. C. Lieu
Summary: This study investigated disparities in presentation and outcomes of retropharyngeal abscess (RPA) among pediatric patients. The findings revealed that Black patients were less likely to undergo surgical management, received fewer pre-admission antibiotics, and had larger abscess area on CT imaging. Additionally, they experienced longer length of stay and time between admission and surgery.
Article
Otorhinolaryngology
Deepa Suneel, Lisa S. Davidson, Judith Lieu
COCHLEAR IMPLANTS INTERNATIONAL
(2020)
