期刊
PUBLIC HEALTH GENOMICS
卷 14, 期 1, 页码 9-16出版社
KARGER
DOI: 10.1159/000272898
关键词
Genetic screening; Health care rationing; Health policy; Public health
资金
- Quebec Agence d'evaluation des technologies et des modes d'intervention en sante (AETMIS)
- CIHR
With the ever-widening gap between what is technologically possible and services available, jurisdictions around the world are faced with complex decisions regarding the introduction and expansion of genetic screening programs. A series of literature reviews and consultations with stakeholders and experts led to the development of a decision support guide for genetic screening policy-making. This involved establishing a preliminary list of core criteria synthesized from the growing literature on genetic screening, which was then transformed through a series of consultations into a more elaborate decision guide. Although certain perennial challenges in genetic screening policy-making remain, the decision support guide aims to promote a fair and evidence-informed process that makes explicit the ethical dilemmas often inherent to such policy decisions. Copyright (C) 2009 S. Karger AG, Basel
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