期刊
PALLIATIVE MEDICINE
卷 24, 期 6, 页码 573-593出版社
SAGE PUBLICATIONS LTD
DOI: 10.1177/0269216310371412
关键词
caregivers; home care services; palliative care; review; terminally ill
类别
资金
- Social Sciences and Humanities Research Council of Canada
- Canadian Institutes of Health Research
- British Academy
- Michael Smith Foundation for Health Research
The changing context of palliative care over the last decade highlights the importance of recent research on home-based family caregiving at the end of life. This article reports on a comprehensive review of quantitative research (1998-2008) in this area, utilizing a systematic approach targeting studies on family caregivers, home settings, and an identified palliative phase of care (n = 129). Methodological challenges were identified, including: small, non-random, convenience samples; reliance on descriptive and bivariate analyses; and a dearth of longitudinal research. Robust evidence regarding causal relationships between predictor variables and carer outcomes is lacking. Findings suggest the need for knowledge regarding: family caregiving for patients with non-malignant terminal conditions; whether needs and outcomes differ between family caregivers at the end of life and comparison groups; and caregiver outcomes in bereavement. Clear definitions of 'family caregiving', 'end of life', and 'needs' are required as well as greater application and testing of theoretical and conceptual explanations.
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