175th ENMC International Workshop: Mitochondrial protein synthesis in health and disease, 25–27th June 2010, Naarden, The Netherlands

Summary: This workshop aimed to develop recommendations for psychological interventions to support people living with slowly progressive neuromuscular disorders (NMD). The group recommends that psychological interventions should be embedded in the routine clinical care offered to people living with NMD based on evidence from randomised controlled trials, carefully conducted observational studies, and the coherence of these data with the experience of those living with NMD. The workshop included clinicians, researchers, people living with NMD and their relatives, who discussed key psychological challenges presented by NMD and ways to adapt therapies for cognitive impairments or neurodevelopmental differences that occur in some NMD.