Article
Surgery
David Fischkoff, Kenneth Prager, Joyeeta Dastidar, Lydia Dugdale, Gerald Neuberg, Samantha Nemeth, Katherine Fischkoff
Summary: The issue of proceeding with medical intervention over a patient's objection is common but lacks ethical guidelines. A retrospective study on consultations for treatment over objection found that logistical barriers and imminent harm to the patient were key factors in determining whether to proceed against the objection.
JOURNAL OF THE AMERICAN COLLEGE OF SURGEONS
(2021)
Article
Health Care Sciences & Services
Atsushi Kogetsu, Kazuto Kato
Summary: Online communication in medical research, including recruitment, informed consent, and data communication, provides numerous benefits, particularly for genome research and rare disease research. However, ethical challenges arising from or exacerbated by online communication must be addressed. This article presents an overview of these ethical issues and offers practical guidance for the ethical implementation of ICT in medical research.
JOURNAL OF MEDICAL INTERNET RESEARCH
(2022)
Review
Health Care Sciences & Services
Oana-Maria Isaila, Sorin Hostiuc
Summary: Respecting the consent and confidentiality of inmate patients is crucial in establishing trust and ensuring compliance in a prison environment. This article focuses on special cases such as hunger strikes, violent acts, HIV testing, COVID-19 measures, and drug use, and highlights the importance of properly addressing informed consent and confidentiality based on individual circumstances to obtain compliance and prevent malpractice claims.
Editorial Material
Cardiac & Cardiovascular Systems
Gregory B. Lim
Summary: Extravascular implantable cardioverter-defibrillators are safe and effective in detecting and terminating ventricular arrhythmias induced at the time of implantation.
NATURE REVIEWS CARDIOLOGY
(2022)
Article
Neurosciences
Tobias Haeusermann, Winston Chiong
Summary: New treatment modalities such as psychedelics, ketamine, and neuromodulatory technologies are being welcomed as potential therapeutic agents for mental illness. However, their use also raises ethical questions related to informed consent, clinical response expectancy, and distributive justice. This overview discusses and introduces these issues.
NEUROPSYCHOPHARMACOLOGY
(2023)
Article
Multidisciplinary Sciences
Annette Braunack-Mayer, Lucy Carolan, Jackie Street, Tam Ha, Belinda Fabrianesi, Stacy Carter
Summary: This study examines how the health and higher education sectors in Australia are addressing the ethical challenges of using big data. Through qualitative interviews with key stakeholders, it was found that although there are differences in perspectives between the two sectors, both recognize the benefits of data usage and the importance of privacy, transparency, and consent. The health sector focuses on legislative and regulatory instruments, while the higher education sector emphasizes individual duties.
Review
Medicine, General & Internal
Karina W. Davidson, Carol M. Mangione, Michael J. Barry, Wanda K. Nicholson, Michael D. Cabana, Aaron B. Caughey, Esa M. Davis, Katrina E. Donahue, Chyke A. Doubeni, Martha Kubik, Li Li, Gbenga Ogedegbe, Lori Pbert, Michael Silverstein, James Stevermer, Chien-Wen Tseng, John B. Wong
Summary: This article summarizes the ethical and scientific principles of shared decision-making, emphasizes the importance of patient involvement in care, and reaffirms the role of shared decision-making in patient-centered preventive care decisions.
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION
(2022)
Article
Medicine, General & Internal
Kelly Thai, Kate H. Tsiandoulas, Elizabeth A. Stephenson, Dolly Menna-Dack, Randi Zlotnik Shaul, James A. Anderson, Alexis R. Shinewald, Augustina Ampofo, Melissa D. McCradden
Summary: Understanding the perspectives of children and youths regarding the use of AI in healthcare is crucial for developing ethical guidelines. This qualitative study found that participants had positive views of AI and expressed a strong interest in being involved in AI research and decision-making in clinical care.
Article
Clinical Neurology
Winston Chiong, Benjamin David Tolchin, Richard J. Bonnie, Katharina M. Busl, Salvador Cruz-Flores, Leon G. Epstein, Ericka P. Greene, Judy Illes, Matthew Kirschen, Daniel G. Larriviere, Sneha Mantri, Michael A. Rubin, Barney J. Stern, Lynne P. Taylor
Summary: Alzheimer's disease is a feared and stigmatized condition that has a significant impact on patients, families, and society as a whole. There is an urgent need for further research in effective treatments for AD, and patients require more support from clinicians and communities, with trust being a fundamental aspect of this support.
Article
Geriatrics & Gerontology
Aoife Poth, Susanne Penger, Maren Knebel, Tanja Mueller, Johannes Pantel, Frank Oswald, Julia Haberstroh
Summary: With an aging society and increasing incidence of age-related diseases, the issue of informed consent becomes more prevalent. Persons with dementia often have their capacity to consent questioned without proper assessment, depriving them of their right to make autonomous decisions. The EmMa project aimed to address this issue by developing and testing supportive measures to enhance the informed consent process for persons with dementia. The results showed that while the enhanced consent procedures did not affect capacity to consent, they did improve understanding of information in persons with dementia. The conclusion suggests that a more targeted and careful approach is needed to empower persons with dementia in clinical settings.
AGING & MENTAL HEALTH
(2023)
Review
Ethics
Anke Erdmann, Christoph Rehmann-Sutter, Claudia Bozzaro
Summary: Precision medicine development is driven by new technologies, with both potential benefits and ethical risks. While patients and professionals generally have a positive attitude towards precision medicine, they also express concerns about accuracy and privacy issues. National legislation has reduced some risks, but there is a need for more attention on issues such as equitable access and patient autonomy.
BMC MEDICAL ETHICS
(2021)
Article
Biochemistry & Molecular Biology
Vera Frankova, Riona O. Driscoll, Marleen E. Jansen, J. Gerard Loeber, Viktor Kozich, James Bonham, Patricia Borde, Ian Brincat, David Cheillan, Eugenie Dekkers, Ralph Fingerhut, Iva Bilandzija Kus, Panagiotis Girginoudis, Urh Groselj, David Hougaard, Maria Knapkova, Giancarlo la Marca, Ieva Malniece, Michaela Iuliana Nanu, Uta Nennstiel, Nataliia Olkhovych, Mariusz Oltarzewski, Rolf D. Pettersen, Gabor Racz, Karit Reinson, Damilya Salimbayeva, Jurgita Songailiene, Laura Vilarinho, Marios Vogazianos, Rolf H. Zetterstrom, Maximilian Zeyda
Summary: Newborn screening is crucial for public healthcare systems, and providing information about screening to parents is recognized as an essential part of the process. A survey across Europe showed that most countries have legal frameworks or guidelines for informing parents about screening, although the proportion of countries requiring prenatal information is low.
EUROPEAN JOURNAL OF HUMAN GENETICS
(2021)
Article
Medicine, General & Internal
Stephen Senn, Iain Chalmers
Summary: This article discusses the ethical issues surrounding the allocation of unproven interventions and denial of best proven interventions to patients in controlled trials, emphasizing that patients should not be intentionally deprived of known beneficial care in these trials and should be on an equal footing with patients receiving usual care.
JOURNAL OF THE ROYAL SOCIETY OF MEDICINE
(2021)
Article
Medicine, General & Internal
Mario Herrera-Perez, David Gonzalez-Martin, Emilio J. Sanz, Jose L. Pais-Brito
Summary: With the aging of society, it is increasingly common to deal with ethical dilemmas that involve decision making in the elderly patient with a hip fracture. The study found that elderly patients may lose their principle of autonomy during their hospitalization and ageism may lead to surgical delay and increased mortality rate.
JOURNAL OF CLINICAL MEDICINE
(2022)
Article
Health Care Sciences & Services
Dipika Jain
Summary: In the wake of the COVID-19 pandemic, digital healthcare has gained global interest and investment. However, in India, implementation challenges for digital healthcare exist due to insufficient laws and regulations addressing telehealth, data protection, patient privacy, and informed consent. This paper analyzes the legal, structural, and ethical concerns surrounding digital health in India and provides policy recommendations to overcome these problems.
Editorial Material
Cardiac & Cardiovascular Systems
Alexander M. Clark, David R. Thompson
EUROPEAN JOURNAL OF CARDIOVASCULAR NURSING
(2023)
Article
Cardiac & Cardiovascular Systems
Leonie Klompstra, Charlotta Lans, Emil Mercke, Anna Stromberg, Tiny Jaarsma
Summary: The purpose of this study was to compare the 6 min walk distance (6MWD) obtained at a 30 m track with the guidance of healthcare professionals vs. the 6MWD obtained by participants themselves using an app. A total of 37 participants performed both tests. The results showed a high overall agreement and reliability between the two methods of measuring 6MWD, indicating that using an app is a feasible and valid approach.
EUROPEAN JOURNAL OF CARDIOVASCULAR NURSING
(2023)
Article
Nursing
Rachel Hampton, Carrie E. Outten, Lara Street, Sheila Miranda, Binu Koirala, Patricia M. Davidson, David N. Hager
Summary: This study describes the strategy, efficacy, and preferred mechanisms of training used to rapidly enhance the critical care skills of intermediate care nursing staff during the COVID-19 pandemic. The training included paired staffing models, interdisciplinary education, skills training days, and self-directed learning. Survey results showed that nurses' confidence in new critical care competencies increased steadily, and they had a preference for peer education models.
Article
Cardiac & Cardiovascular Systems
David R. Thompson, Susanne S. Pedersen
Editorial Material
Nursing
Alexander M. Clark, David R. Thompson
JOURNAL OF ADVANCED NURSING
(2023)
Article
Nursing
Hae-Ra Han, Ji Won Lee, Martha Abshire Saylor, Jeanine M. Parisi, Erika Hornstein, Vidisha Agarwalla, Anushka Jajodia, Qiwei Li, Mike Weikert, Patricia M. Davidson, Sarah L. Szanton
Summary: This study aimed to examine the integration of human-centred design into a nursing school's research processes on individuals with multiple chronic conditions. The findings showed a limited experience with human-centred design among the respondents, but it was helpful in engaging various stakeholders, particularly in intervention development.
Review
Nursing
Suratsawadee Kruahong, Thitipong Tankumpuan, Kathleen Kelly, Patricia M. Davidson, Premgamon Kuntajak
Summary: This study analyzed the concept of community empowerment and highlighted its importance in health promotion. It found that community empowerment can help communities define priorities, make choices, develop strategies, and improve health while reducing health inequalities. Advanced practice nurses can effectively use community empowerment to address health disparities and promote community health.
JOURNAL OF ADVANCED NURSING
(2023)
Article
Public, Environmental & Occupational Health
Simon R. Knowles, Pragalathan Apputhurai, Zoe Jenkins, Emmet O'flaherty, Francesco Ierino, Robyn Langham, Chantal F. Ski, David R. Thompson, David J. Castle
Summary: Chronic kidney disease (CKD) has a negative impact on psychological well-being and quality of life (QoL). This study examined the mediating role of self-efficacy, coping styles, and psychological distress on the relationship between illness perceptions and QoL in CKD patients. The findings suggest that psychological interventions targeting the mediating psychological processes associated with illness perceptions and psychological distress are likely to enhance QoL in CKD patients. The explained variance was 63.8%.
PSYCHOLOGY HEALTH & MEDICINE
(2023)
Article
Demography
Sara Shishehgar, Leila Gholizadeh, Michelle DiGiacomo, Patricia Mary Davidson
Summary: The issue of asylum seekers is highly debated in Australia, with Iranian women making up the largest number of asylum seekers. Many of these women have bridging visas without secure residency status, leading to difficulties in integration and psychological well-being. This qualitative study aimed to understand the psychosocial effects of insecure residency among Iranian asylum-seeker women in Australia.
JOURNAL OF INTERNATIONAL MIGRATION AND INTEGRATION
(2023)
Article
Nursing
Paul De Raeve, Patricia M. Davidson, Jochen Bergs, Michelle Patch, Susan M. Jack, Adriana Castro-Ayala, Andreas Xyrichis, Wendy Preston
Summary: This study investigates the current advanced practice nursing frameworks and developments in Europe. It reveals significant variations in the definition, recognition, regulation, and education of advanced practice nurses across European countries. Further research is needed to understand the reasons behind these variations and explore the impact of a standardized regulatory framework on the growth of advanced practice nursing in Europe.
JOURNAL OF ADVANCED NURSING
(2023)
Review
Nursing
Saleema Allana, Colleen Norris, Armish Hussain, Alex Clark
Summary: This study aims to map the current usage of heart failure (HF) telehealth interventions in vulnerable populations using a structured checklist and to conduct an intersectionality-based analysis. A total of 22 studies were included and analyzed, revealing that the research on HF telehealth interventions for vulnerable populations lacks appropriate theoretical foundations. The principles of intersectionality were mostly applied in the problem identification and intervention development and implementation stages, with less emphasis on the evaluation stage.
JOURNAL OF ADVANCED NURSING
(2023)
Editorial Material
Nursing
Binu Koirala, Susan Harvey, Robert C. Bollinger, Patricia M. Davidson
JOURNAL OF ADVANCED NURSING
(2023)
Article
Multidisciplinary Sciences
Colleen E. Kennelly, Anh T. P. Nguyen, Natasha Yasmin Sheikhan, Gillian Strudwick, Chantal F. Ski, David R. Thompson, Mary Bartram, Sophie Soklaridis, Susan L. Rossell, David Castle, Lisa D. Hawke
Summary: This study explores the experiences of mental health, quality of life, and coping among people living with long COVID. The findings illustrate the immense impact of long COVID on mental health and quality of life, regardless of pre-existing mental health conditions. Therefore, attention to the perspectives of people with lived experience of long COVID is necessary to inform future directions for research and clinical practice.
Article
Health Policy & Services
Paul de Raeve, Andreas Xyrichis, Francesco Bolzonella, Jochen Bergs, Patricia M. Davidson
Summary: The European Federation of Nurses (EFN) conducted a mapping exercise on the challenges and solutions related to violence against nurses. The results revealed that violent incidents against nurses are often under-reported due to various reasons such as fear of victimization and discouragement from employers. The perpetrators of violence include not only patients and their families but also health professionals of different ranks. Violent incidents have a significant adverse effect on nurses' health and job retention.
POLICY POLITICS & NURSING PRACTICE
(2023)
Review
Primary Health Care
Lauren Ball, Bryce Brickley, Lauren T. Williams, Jenny Advocat, Elizabeth Rieger, Raeann Ng, Nilakshi Gunatillaka, Alexander M. Clark, Elizabeth Sturgiss
Summary: This study aimed to assess the effectiveness, feasibility, and acceptability of behavior change tools used by family doctors working with priority patients. The results showed that many tested tools were effective in facilitating behavior change and were easy to use, enhancing the perceived quality of care. There is an opportunity to further develop existing tools to assist family doctors in supporting priority patients towards healthier lifestyles.
BRITISH JOURNAL OF GENERAL PRACTICE
(2023)