Review
Pediatrics
Helen H. Pearson, Gemma Bryan, Catherine Kayum, Faith Gibson, Anne-Sophie Darlington
Summary: This article explores the values and preferences of parents of children with poor-prognosis cancer when making treatment decisions. The results show that parent decision-making is influenced by hope for a cure, fear of their child dying, and uncertainty. Factors such as the opinions of others, the child's wishes, and faith/religion can also influence decision-making processes. Parents value having enough time, being a good parent, and being involved in the decision-making process. However, different values and preferences can lead to conflicts and trade-offs in decision-making.
Article
Pediatrics
Hadley Stevens Smith, Bart S. S. Ferket, Bruce D. D. Gelb, Lucia Hindorff, Kathleen D. D. Ferar, Mary E. E. Norton, Nuriye Sahin-Hodoglugil, Anne Slavotinek, Kristen Hasmiller Lich, Jonathan S. S. Berg, Heidi V. V. Russell
Summary: This study examined the actions taken by parents of children who received genomic sequencing (GS) results. The findings indicated that most parents discussed the results with clinicians and followed their recommendations. However, GS results did not result in a significant increase in the amount of care received by the children.
Article
Pediatrics
Erin Roby, Elizabeth B. Miller, Daniel S. Shaw, Pamela Morris, Anne Gill, Debra L. Bogen, Johana Rosas, Caitlin F. Canfield, Katherine A. Hails, Helena Wippick, Julia Honoroff, Carolyn B. Cates, Adriana Weisleder, Kelly A. Chadwick, Caroline D. Raak, Alan L. Mendelsohn
Summary: This study examined the impact of the Smart Beginnings (SB) intervention model on early parent-child activities and interactions, finding that the treatment group showed more positive parent-child interactions and cognitive stimulation at 6 months.
Article
Development Studies
Marleen S. Schutter, Christina C. Hicks, Jacob Phelps, Clara Belmont
Summary: This study examines the relationship between ecosystem services preferences and values, revealing a disconnection between the two. Exploring people's reasons for prioritising ecosystem services can improve understanding of underlying values, contribute to reconciling conflicts, and clarify impacts on communities.
Article
Biochemical Research Methods
Jiansi Gao, Michael R. May, Bruce Rannala, Brian R. Moore
Summary: Phylodynamic methods are crucial for studying the history of disease outbreaks. Inference under discrete-geographic phylodynamic models is sensitive to our prior beliefs about the model parameters. PrioriTree is an interactive utility that helps researchers identify and accommodate prior sensitivity in such inferences.
Article
Medicine, General & Internal
Hannah K. Bassett, Jimmy Beck, Ryan J. Coller, Brian Flaherty, Kristin A. Tiedt, Kevin Hummel, Michael J. Tchou, Kristopher Kapphahn, Lauren Walker, Alan R. Schroeder
Summary: The study explores parents' preferences and experiences regarding the transparency of their child's health care costs during hospitalization. Most parents want to discuss their child's costs, but actual discussions rarely occur, indicating a significant opportunity for improvement in family-centered care.
Article
Green & Sustainable Science & Technology
Armindo Frias, Erza Raskova, Alvaro Costa, Joao Cabral
Summary: Studying a mathematical model of tourist decision-making can help better meet their needs and preferences, optimize resource allocation. By integrating individual preferences into an IT tool, extra support is provided and better choices are facilitated.
Article
Otorhinolaryngology
Lauren E. Claus, Janine M. Amos, Anne R. Links, Mary Catherine Beach, Emily F. Boss
Summary: This study characterized the information-sharing and verbal engagement between clinicians and parents during pediatric adenotonsillectomy consultations. The findings showed that clinicians' information-sharing was associated with greater parent knowledge about the treatment, while parent active engagement and knowledge were independently associated with less decisional conflict.
OTOLARYNGOLOGY-HEAD AND NECK SURGERY
(2023)
Article
Public, Environmental & Occupational Health
Daniel M. Hausman
Summary: This essay discusses the drawbacks and uncertainties of using preference elicitation to value health states, and distinguishes preference elicitation as a fallible method of measuring well-being from public consultation as an element of public deliberation. It argues for valuing health states based on their impact on activity limitations and suffering, as determined by public deliberation, instead of valuing them based on their impact on well-being as measured by preferences.
SOCIAL SCIENCE & MEDICINE
(2023)
Article
Computer Science, Artificial Intelligence
Diego Garcia-Zamora, Alvaro Labella, Rosa M. Rodriguez, Luis Martinez
Summary: This paper studies the impact of simulating experts' non-linear preferences on Consensus Reaching Processes. By remapping experts' preferences using non-linear deformations, it can help address the difficulty in reaching consensus in large-scale group decision-making situations with extreme opinions.
INTERNATIONAL JOURNAL OF INTELLIGENT SYSTEMS
(2021)
Article
Health Care Sciences & Services
M. Hassan Murad, Stephanie M. Chang, Celia Fiordalisi, Jennifer S. Lin, Timothy J. Wilt, Amy Y. Tsou, Brian Leas, Shazia Siddique, Andrew R. Zullo, Ethan M. Balk, Carolyn M. Rutter, Karen Robinson, Craig Coleman, Olivia Costa, Mark Helfand, Elizabeth Stoeger, Meera Viswanathan
Summary: The study group identified five strategies for supplementing systematic review findings when evidence on benefits or harms is expected to be, or found to be, insufficient, which may improve the utility of reports for decision makers. Adoption of these strategies depends on feasibility, timeline, funding, and expertise of the systematic reviewers.
JOURNAL OF CLINICAL EPIDEMIOLOGY
(2021)
Review
Oncology
Preston J. Ngo, Sonya Cressman, Silvia Behar-Harpaz, Deme J. Karikios, Karen Canfell, Marianne F. Weber
Summary: Lung cancer screening with LDCT has been proven to lead to early diagnosis and reduced mortality, but investment decisions rely on cost-effectiveness analyses. This study reviewed 26 cost-effectiveness analyses conducted between 2005 and 2021 and found variations in the application of utility values. Recommendations include justifying the choice of baseline utilities, modeling the impact of false positive scans, and appropriately sourcing and calculating utilities for lung cancer diagnosis.
Article
Multidisciplinary Sciences
Fei-Yang Huang, Michael P. F. Sutcliffe, Fabian Grabenhorst
Summary: The study investigates how economic value is derived from the biologically critical components of foods, such as their nutrients and sensory qualities. Results show that monkeys assign subjective values to specific nutrients and trade them against reward amounts, shifting their daily nutrient balance away from dietary reference points. This suggests a texture-sensing mechanism for nutrient values and identifies candidate neuronal mechanisms for nutrient-sensitive decision-making.
PROCEEDINGS OF THE NATIONAL ACADEMY OF SCIENCES OF THE UNITED STATES OF AMERICA
(2021)
Article
Medicine, General & Internal
Can Liu, Alessandra Grotta, Ayako Hiyoshi, Lisa Berg, Mikael Rostila
Summary: This sibling cohort study conducted in Sweden aims to examine the impact of parental death on school outcomes and found that parental death is associated with poorer school grades and a higher risk of being ineligible for upper secondary education.
Article
Medicine, General & Internal
Yu Wang, Peicong Zhai, Shan Jiang, Chaofan Li, Shunping Li
Summary: This study investigated the preferences of Chinese blood donors in Shandong for blood donation incentives. The results showed that donors preferred incentives including comprehensive health examination, family members as recipients, central government recognition, 30-minute travel time, and a gift valued at 60 Renminbi. This information can guide efforts to improve donor retention rates.
Article
Pediatrics
Tarun Aurora, Audrey Cole, Parul Rai, Paul Lavoie, Carrie Mcivor, Lisa M. Klesges, Guolian Kang, Janaka S. S. Liyanage, Heather M. Brandt, Jane S. Hankins
Summary: This study evaluated the effectiveness of a vaccine strategy bundle in increasing HPV vaccine initiation and completion rates in a specialty clinic setting. By implementing the bundle, which included staff education, provider incentives, offering vaccines in clinics, and verifying vaccine completion, the clinic successfully improved HPV vaccine initiation and completion rates among sickle cell disease patients.
JOURNAL OF PEDIATRICS
(2024)
Article
Pediatrics
Nienke M. Halbmeijer, Wes Onland, Jeroen Dudink, Filip Cools, Anne Debeer, Anton H. van Kaam, Manon J. N. L. Benders, Niek E. van der Aa
Summary: In ventilated infants born preterm, high dose systemic hydrocortisone initiated between 7 and 14 days after birth did not have a significant impact on brain development.
JOURNAL OF PEDIATRICS
(2024)
Article
Pediatrics
Katherine Melton, Jianfang Liu, Hossein Sadeghi, Maureen George, Arlene Smaldone
Summary: This study aims to identify predictors of change in lung function and body weight during health care transition in cystic fibrosis (CF) patients. The study findings highlight the importance of CF RISE program engagement and reducing gaps in care for improving the transition of adolescents and young adults with CF.
JOURNAL OF PEDIATRICS
(2024)
Article
Pediatrics
Laura A. Duckworth, Kimberly A. Sutton, Nurmohammad Shaikh, Jinli Wang, Carla Hall-Moore, Lori R. Holtz, Phillip I. Tarr, Ronald C. Rubenstein
Summary: The study tested the usefulness of various biomarkers as indicators of gut dysfunction in cystic fibrosis (CF) and investigated the repeatability of these measures in individuals over short periods and their correlation with clinical outcomes. The results showed that elevated levels of fLcn2 in individuals with CF may predict worsened pulmonary function.
JOURNAL OF PEDIATRICS
(2024)
Article
Pediatrics
Lindsey Haack, Nikkan Das, Arvind Hoskoppal, Mark Debrunner, Tarek Alsaied, Gaurav Arora
Summary: RAE on ECG has a low positive predictive value for RAE on echocardiogram in previously healthy young patients. The highest yield for RAE on echocardiogram was observed in patients who were <1 year of age, had RAE in the anterior precordial leads, or displayed right ventricular hypertrophy on ECG.
JOURNAL OF PEDIATRICS
(2024)
Article
Pediatrics
Michael A. Padula, Khatija Naing, Tara L. Wenger, Irfan Ahmad, Carl H. Coghill, K. Taylor Wild, S. Alex Rottgers, Cory M. Resnick, Jeffrey Goldstein, Zarmina Ehsan, Donna Watkins, Nicole Deptula, Kuan-Chi Lai, Janet Lioy, Semsa Gogcu, Christopher M. Cielo
Summary: This study describes the spectrum of disease and burden of care in infants with congenital micrognathia. The results show that these infants commonly require surgical intervention and tube feedings, and disparities based on race and among centers were identified.
JOURNAL OF PEDIATRICS
(2024)
Article
Pediatrics
Michael P. Fundora, Manvitha Kalicheti, Guantao Zhao, Kevin O. Maher, Nicoleta Serban
Summary: This study investigated the variation of outpatient opioid prescribing in postoperative pediatric cardiac patients across the US. The results showed that there were significant differences in opioid prescribing by race, ethnicity, sex, and region.
JOURNAL OF PEDIATRICS
(2024)
Article
Pediatrics
Jia Guo, Brooklyn J. Fraser, Leigh Blizzard, Michael D. Schmidt, Terence Dwyer, Alison J. Venn, Costan G. Magnussen
Summary: There is a correlation between childhood and adulthood cardiorespiratory fitness.
JOURNAL OF PEDIATRICS
(2024)
Article
Pediatrics
Nianzhou Xiao, Michelle Starr, Adrienne Stolfi, Gilad Hamdani, Shireen Hashmat, Stefan G. Kiessling, Christina Sethna, Mahmoud Kallash, Robyn Matloff, Robert Woroniecki, Keia Sanderson, Ikuyo Yamaguchi, Stephen D. Cha, Michael G. Semanik, Rahul Chanchlani, Joseph T. Flynn, Mark Mitsnefes
Summary: This multicenter study reports that most infants diagnosed with idiopathic hypertension in the NICU will discontinue antihypertensive treatment within 2 years of discharge. Antenatal steroid treatment is associated with a decreased likelihood of needing antihypertensive therapy for more than 1 year.
JOURNAL OF PEDIATRICS
(2024)
Editorial Material
Pediatrics
Kanwaljit Singh, John Concato, Jonathan M. Davis
JOURNAL OF PEDIATRICS
(2024)
Article
Pediatrics
Yaxing Meng, Harri Niinikoski, Suvi P. Rovio, Brooklyn J. Fraser, Feitong Wu, Antti Jula, Tapani Ronnemaa, Jorma S. A. Viikari, Olli T. Raitakari, Katja Pahkala, Costan G. Magnussen
Summary: This 26-year study shows a correlation between early-life non-HDL-C levels and future levels. Early dietary counseling can reduce the risk of high pediatric non-HDL-C, emphasizing the importance of early interventions in preventing cardiovascular risks.
JOURNAL OF PEDIATRICS
(2024)
Article
Pediatrics
Kelsey A. B. Gastineau, Rebecca Bell, Allison Hanes, Sandra Mckay, Eric Sigel, Filoteia Popescu, Evan C. Sommer, Shari Barkin
Summary: This study aimed to assess the self-reported counseling outcomes for a firearm safe storage counseling training program provided by the American Academy of Pediatrics. The results demonstrated significant improvement in counseling self-efficacy and frequency one month after the training.
JOURNAL OF PEDIATRICS
(2024)
Article
Pediatrics
Kathryn E. K. Berlin, William Scott, Sara Dawson, David Brousseau, Joanne M. Lagatta
Summary: This prospective cohort study aimed to investigate the impact of bronchopulmonary dysplasia (BPD) on the health-related quality of life (HRQL) of infants from NICU hospitalization to one year post-discharge. The study found that lower HRQL during NICU stay was associated with earlier gestational age, postnatal corticosteroid usage, outborn status, and gastrostomy tube placement. Lower HRQL at 3 and 12 months post-discharge was associated with readmissions, home oxygen use, parent-reported difficulty breathing, lower developmental scores, and not playing with other children. Most parents reported similar or improved HRQL after discharge, but parents of infants with respiratory symptoms experienced less improvement. Efforts to improve parent HRQL should focus on respiratory symptoms and social isolation.
JOURNAL OF PEDIATRICS
(2024)
Article
Pediatrics
Garett J. Griffith, Alan P. Wang, Robert I. Liem, Michael R. Carr, Tyler Corson, Kendra Ward
Summary: This study developed reference values for cardiorespiratory fitness in children aged 6-18 years without underlying heart disease, measured by peak oxygen uptake and treadmill time. Fitness levels increased with age in males but not females. Males generally exhibited higher fitness levels compared to females in the same age groups.
JOURNAL OF PEDIATRICS
(2024)
Article
Pediatrics
David S. Liu, Patricia Miller, Anna Rothenberg, Carley Vuillermin, Peter M. Waters, Andrea S. Bauer
Summary: This study aims to determine if children with elbow flexion contracture (EFC) caused by brachial plexus birth injury (BPBI) are more likely to develop shoulder contracture and undergo surgical treatment. A retrospective review was conducted on children under 2 years old with BPBI who presented to a single children's hospital. The results showed that patients with EFC had reduced shoulder range of motion and higher odds of shoulder contracture and surgical treatment. Prompt referral to a BPBI specialty clinic is recommended for evaluation and potential surgery.
JOURNAL OF PEDIATRICS
(2024)