Article
Pediatrics
Sinead Brady, Elvira Parravicini, Charlotte Wool
Summary: A virtual training course on perinatal/neonatal palliative care (PNPC) called "Next Level Perinatal Palliative Care Training" was developed and offered by an interdisciplinary team. The study aimed to evaluate the transfer of learning and practice from this virtual training course on PNPC.
FRONTIERS IN PEDIATRICS
(2023)
Article
Nursing
Susan Di Nonno Chin, Ann Marie Paraszczuk, Patricia Eckardt, Toby Bressler
Summary: The study showed that neonatal nurses with palliative care education and working in NICUs with relevant policies had more favorable attitudes towards palliative care. Policy and educational programs are important tools for promoting high-quality care for high-risk infants and their families.
MCN-THE AMERICAN JOURNAL OF MATERNAL-CHILD NURSING
(2021)
Article
Pediatrics
F. T. Mccarthy, A. Kenis, E. Parravicini
Summary: This manuscript presents guidelines and essential tools/strategies from the Neonatal Comfort Care Program at Columbia University Irving Medical Center, based on 15 years of experience, on providing care for families during the perinatal journey.
FRONTIERS IN PEDIATRICS
(2023)
Article
Management
Mei Feng, Qian Liu, Jie Hao, Dan Luo, Bing Xiang Yang, Sihong Yu, Jie Chen
Summary: The aim of this study was to explore the prevalence and predictors of perceived self-competence in palliative care among emergency care nurses. The findings revealed that variables such as marital status, lack of palliative care implementation in the emergency department, absence of palliative care training, and true cooperation were independent predictors of self-competence in palliative care. Improving work environments, providing training, advocating for policies, and supporting unmarried nurses were recommended interventions to enhance nurses' palliative care competence.
JOURNAL OF NURSING MANAGEMENT
(2022)
Article
Pediatrics
Vanessa N. Madrigal, Dalia M. Feltman, Steven R. Leuthner, Roxanne Kirsch, Rekha Hamilton, Deborah Dokken, Jennifer Needle, Renee Boss, Efrat Lelkes, Brian Carter, Eduardo Macias, Shazia Bhombal
Summary: This article discusses ethical issues related to neonates with congenital heart disease in clinical practice and emphasizes the importance of clinicians having a basic understanding of bioethics principles and practical applications. The study highlights the need for thorough understanding of individual cases, examination through classic principles of bioethics, and translation into practice.
Article
Nursing
Eunjeong Ko, Samantha Lowie, Ping Ni
Summary: This study aimed to explore the confidence in performing palliative care among ICU nurses in China and the factors related to nurses' level of confidence. The results showed that most ICU nurses had a relatively low level of confidence in carrying out palliative care. Factors such as positive attitudes towards palliative care communication, formal training, years of working experience as an ICU nurse, and working in an integrated ICU were associated with a higher level of confidence. Strengthening palliative care education and training, particularly in communication, is crucial to enhance ICU nurses' confidence.
NURSING IN CRITICAL CARE
(2023)
Review
Pediatrics
Abena N. Akyempon, Narendra Aladangady
Summary: The lack of well-structured guidelines or care pathways can lead to inadequate, inconsistent and fragmented palliative care for babies and their families. This article discusses a perinatal care pathway in a tertiary neonatal unit that provides comprehensive guidance from diagnosis to bereavement support for families. Planning palliative care with a family-centered and individualized approach is also emphasized.
BMJ PAEDIATRICS OPEN
(2021)
Article
Pediatrics
Charlotte Wool, Elvira Parravicini
Summary: This study aims to measure the implementation of quality indicators of Perinatal/Neonatal Palliative Care as reported by participants after a one-year training course. The results show a high frequency of QIs implementation by professionals who attended the training course, with colleagues implementing palliative care practices less frequently. Attending evidence-based education can increase clinicians' opportunities to translate quality PNPC care into clinical settings.
FRONTIERS IN PEDIATRICS
(2021)
Review
Pediatrics
Natasha S. Afonso, Margaret R. Ninemire, Sharada H. Gowda, Jaime L. Jump, Regina L. Lantin-Hermoso, Karen E. Johnson, Kriti Puri, Kyle D. Hope, Erin Kritz, Barbara-Jo Achuff, Lindsey Gurganious, Priya N. Bhat
Summary: Patients with perinatal and neonatal congenital heart disease have higher morbidity and mortality, often requiring chronic care and placing a burden on their families. The COVID-19 pandemic has added significant stressors, highlighting the need for early pediatric palliative care consultation for improved communication and coping. Despite barriers, integrating pediatric palliative care earlier is essential for providing high-quality interdisciplinary care to patients and families.
Article
Psychology, Multidisciplinary
Kadriye Sayin Kasar, Yasemin Yildirim, Ulku Bulut
Summary: The aim of the study was to determine the comfort level and influencing factors in caregivers of palliative care patients. The study found that there was a significant relationship between the total comfort score of the caregivers and the patient's performance status, the caregivers' age, their economic situation, the length of the caregiving period and receiving help in care.
OMEGA-JOURNAL OF DEATH AND DYING
(2023)
Article
Pediatrics
Yajing Zhong, Beth Perry Black, Victoria J. Kain, Yang Song
Summary: This study investigated the attitudes of neonatal nurses in mainland China towards palliative care for neonates, and identified facilitators and barriers. The study found that younger and older nurses had more positive attitudes towards palliative care, while middle-aged nurses had less positive attitudes. Nurses considered pain management to be as important as curative treatment, and involved parents in decision-making.
FRONTIERS IN PEDIATRICS
(2022)
Review
Pediatrics
Abdullah B. Shoaib, Marissa Vawter-Lee, Charu Venkatesan, Ayman F. Soliman
Summary: Muslims make up nearly a quarter of the global population, with significant populations in the United States, Canada, and Europe. As clinicians, it is important to understand the Islamic perspective on medical treatment, especially concerning end of life care, including neonatal and perinatal scenarios. This paper provides an overview of key Islamic principles and sources, explores the Islamic perspective on life-sustaining measures and quality of life, and emphasizes the importance of seeking guidance from local Islamic leaders.
FRONTIERS IN PEDIATRICS
(2023)
Article
Critical Care Medicine
Sreekanth R. Cheruku, Alexis Barina, Corey D. Kershaw, Kristina Goff, Joan Reisch, Linda S. Hynan, Farzin Ahmed, Donna Lee Armaignac, Love Patel, Katherine A. Belden, Margit Kaufman, Amy B. Christie, Neha Deo, Vikas Bansal, Karen Boman, Vishakha K. Kumar, Allan Walkey, Rahul Kashyap, Ognjen Gajic, Amanda A. Fox
Summary: This study, conducted in multiple centers, shows that palliative care consultation does not increase the likelihood of cardiopulmonary resuscitation (CPR) being performed at the end of life for patients with COVID-19. However, it is associated with an increased utilization of comfort care. These findings suggest that utilizing palliative care consultation at the end of life may better align the needs and values of patients with the care they receive.
Review
Health Care Sciences & Services
Aline Oliveira Silveira, Monika Wernet, Larissa Fernandes Franco, Patricia Luciana Moreira Dias, Zaida Charepe
Summary: This study maps the scientific evidence on parents' hope in perinatal and neonatal palliative care contexts. It found that women's perspectives in pregnancy and perinatal palliative care are crucial. The experience of parental hope involves dealing with uncertainty in information and diagnosis, with interaction with health professionals being a determining factor. Hope is identified as a determinant of coping, linked to autonomy and parenthood. Cognitive and affiliative dimensions are the predominant dimensions of hope.
BMC PALLIATIVE CARE
(2023)
Article
Public, Environmental & Occupational Health
Wendy English, Jackie Robinson, Merryn Gott
Summary: This study used interviews with patients and family members to explore their perceptions of rapport in interactions with health professionals and developed a conceptual definition of rapport based on their experiences. The importance score for this study is 8 out of 10.
PATIENT EDUCATION AND COUNSELING
(2023)
