Article
Oncology
Michelle Yin, Kai Gu, Hui Cai, Xiao-Ou Shu
Summary: Pain is a leading cause of disability among breast cancer survivors and is associated with poor quality of life. Managing pain is important for improving the quality of life of breast cancer survivors.
Article
Oncology
Shannen R. van der Kruk, Kate M. Gunn, Ilse Mesters, Brigid M. Lynch, Jeff K. Vallance, Terry Boyle
Summary: This study aimed to investigate the longitudinal associations between demographic, clinical, and lifestyle factors, and changes in patient-reported outcomes (PROs) in cancer survivors 6-9 years post-diagnosis in Western Australia. The results showed that a notable proportion of participants reported a negative minimal clinically important difference (MCID) in fatigue, depression, and health-related quality of life (HRQOL). Non-Caucasian individuals and those who had non-Hodgkin lymphoma (NHL) were associated with negative changes over time, while being obese and having received radiotherapy were related to improved outcomes.
SUPPORTIVE CARE IN CANCER
(2021)
Article
Hematology
Nosha Farhadfar, Michael T. Weaver, Zeina Al-Mansour, Jean C. Yi, Heather S. L. Jim, Alison W. Loren, Navneet S. Majhail, Victoria Whalen, Joseph Uberti, John R. Wingard, Debra Lynch Kelly, Karen L. Syrjala
Summary: The self-efficacy level of hematopoietic cell transplantation (HCT) survivors is associated with factors such as fatigue, depression, quality of life, and cancer-related distress. Lower self-efficacy is linked to higher levels of symptoms and distress, as well as lower quality of life. Therefore, improving self-efficacy in survivors is crucial for enhancing their recovery.
TRANSPLANTATION AND CELLULAR THERAPY
(2022)
Article
Oncology
Sabine Oertelt-Prigione, Belle H. de Rooij, Floortje Mols, Simone Oerlemans, Olga Husson, Dounya Schoormans, John B. Haanen, Lonneke van de Poll-Franse
Summary: The study found that female cancer survivors experience more physical and emotional symptoms, while male survivors are more likely to suffer from fatigue, dyspnea, anxiety, and depression. There are differences in physical and cognitive functioning between genders, with female survivors experiencing larger losses. Additionally, male cancer survivors exhibit significant losses in role and social functioning.
EUROPEAN JOURNAL OF CANCER
(2021)
Article
Multidisciplinary Sciences
Zhongfang Yang, Zheng Zhu, Huan Wen, Shuyu Han, Lin Zhang, Yanfen Fu, Yan Hu, Bei Wu
Summary: The study identified 5 subgroups of people living with HIV based on symptom severity, with 3 subgroups having similar severity levels. Profiles 1 and 4 had the smallest sums, while Profiles 2 and 5 had the largest sums. It underscores the importance of providing group-specific symptom management interventions for PWH based on the identified profiles to improve their overall well-being.
SCIENTIFIC REPORTS
(2022)
Article
Health Care Sciences & Services
Katherine J. Taylor, Cecilie D. Amdal, Kristin Bjordal, Guro L. Astrup, Bente B. Herlofson, Frederic Duprez, Ricardo R. Gama, Alexandre Jacinto, Eva Hammerlid, Melissa Scricciolo, Femke Jansen, Irma M. Verdonck-de Leeuw, Giuseppe Fanetti, Orlando Guntinas-Lichius, Johanna Inhestern, Tatiana Dragan, Alexander Fabian, Andreas Boehm, Ulrike Woehner, Naomi Kiyota, Maximilian Krueger, Pierluigi Bonomo, Monica Pinto, Sandra Nuyts, Joaquim C. Silva, Carmen Stromberger, Francesco Tramacere, Ayman Bushnak, Pietro Perotti, Michaela Plath, Alberto Paderno, Noa Stempler, Maria Kouri, Susanne Singer
Summary: This study investigated the long-term problems of head and neck cancer survivors. The most frequent problems reported were dry mouth, difficulty swallowing/eating, hoarseness/difficulty speaking, and pain in the head and neck. The use of chemo-radiotherapy compared to surgery alone increased the odds of reporting dry mouth and difficulty swallowing/eating, but decreased the odds of hoarseness/difficulty speaking and pain in the head and neck. Patients diagnosed with UICC stage IV had increased odds of reporting hoarseness/difficulty speaking. Laryngeal cancer survivors had lower odds of reporting dry mouth compared to oropharynx cancer survivors, but higher odds of hoarseness/difficulty speaking.
Article
Multidisciplinary Sciences
Mostafa M. Khodeir, Hassan A. Shabana, Zafar Rasheed, Abdullah S. Alkhamiss, Mohamed Khodeir, Mohammad S. Alkhowailed, Sami Alharbi, Mansour Alsoghair, Suliman A. Alsagaby, Waleed Al Abdulmonem
Summary: Long-term symptoms after recovery from COVID-19 are common, including general fatigue, weakness, neurological symptoms like mood changes and insomnia, and sensory symptoms like loss of taste and smell. Further studies are needed to fully understand the recovery process from COVID-19.
Article
Oncology
Alejandro Gallego, Beatriz Martinez, Ismael Ghanem, Jose Miguel Cantero, Enrique Espinosa, Beatriz Castelo, Pilar Zamora, Leticia Ruiz-Gimenez, Andres Redondo, Jaime Feliu
Summary: Long-term cancer survivors (LTCS) in the Spanish population were studied through an observational descriptive study, revealing significant socioeconomic, labor, sexual, health, and psychological problems in this group, especially among older survivors. It is important to address common concerns of LTCS, which may persist even years after cancer treatment, and may require expert attention.
JOURNAL OF CANCER SURVIVORSHIP
(2021)
Article
Oncology
Thi Xuan Mai Tran, So-Youn Jung, Eun-Gyeong Lee, Heeyoun Cho, Na Yeon Kim, Sungkeun Shim, Ho Young Kim, Danbee Kang, Juhee Cho, Eunsook Lee, Yoon Jung Chang, Hyunsoon Cho
Summary: This study investigated the level of fear of cancer recurrence, its associated factors, and impact on quality of life in long-term breast cancer survivors. The results showed that even 10 years after diagnosis, long-term survivors still experienced a high level of fear of cancer recurrence. This fear was associated with an increased risk of depression and negatively impacted emotional functioning. Furthermore, a higher level of fear of cancer recurrence may impair overall health-related quality of life in long-term breast cancer survivors.
CANCER RESEARCH AND TREATMENT
(2022)
Article
Psychology, Multidisciplinary
Kristina Geue, Anja Mehnert-Theuerkauf, Isabelle Stroske, Hannah Brock, Michael Friedrich, Katja Leuteritz
Summary: This study aims to assess the long-term effects on life satisfaction and psychological distress of young adult cancer survivors by analyzing longitudinal data and cross-sectional topics. It is expected that data from at least 320 participants will be available for analysis after the completion of the sixth survey in 2021.
FRONTIERS IN PSYCHOLOGY
(2021)
Article
Oncology
Erika Rees-Punia, Alpa Patel, Joseph R. Nocera, Sicha Chantaprasopsuk, Wendy Demark-Wahnefried, Corinne R. Leach, Tenbroeck G. Smith, David Cella, Susan M. Gapstur
Summary: The study found that increasing MVPA and reducing sitting time are crucial for improving health in older adults, regardless of prior cancer diagnosis.
Article
Oncology
Irene Lassmann, Andreas Dinkel, Birgitt Marten-Mittag, Matthias Jahnen, Helga Schulwitz, Jurgen E. Gschwend, Kathleen Herkommer
Summary: The study found that a high proportion of long-term prostate cancer survivors experience benefit finding, with younger age at diagnosis, lower educational level, and higher perceived severity of the disease experience being predictive factors. Objective disease severity or family history of PCa was not uniquely associated with benefit finding, suggesting that survivors may find benefits regardless of clinical disease severity.
SUPPORTIVE CARE IN CANCER
(2021)
Article
Oncology
Anders Winther Molby Nielsen, Marie Lundorff, Hanne Melgaard Nielsen, Jan Alsner, Birgitte Vrou Offersen, Morten Horsholt Kristensen, Robert Zachariae
Summary: The study found that breast cancer survivors exhibit different symptom trajectories, with a substantial minority continuing to experience high symptom burden for several years post-treatment. Those in the high-burden symptom trajectory not only showed a high probability of burden across multiple symptoms, but also reported poorer physical and social functioning over time.
Article
Oncology
Esmee C. M. Kooijmans, Helena J. H. van der Pal, Saskia M. F. Pluijm, Margriet Van der Heiden-van der Loo, Leontien C. M. Kremer, Dorine Bresters, Eline Van Dulmen-den Broeder, Marry M. Van den Heuvel-Eibrink, Jacqueline J. Loonen, Marloes Louwerens, Sebastian J. C. Neggers, Cecile Ronckers, Wim J. E. Tissing, Andrica C. H. de Vries, Gertjan J. L. Kaspers, Arend Bokenkamp, Margreet A. Veening
Summary: This study investigated the occurrence of tubular dysfunction in childhood cancer survivors who received nephrotoxic therapy. The overall prevalence of electrolyte losses in survivors was not higher compared to controls, but some survivors had an increased risk of tubular dysfunction, especially those treated with specific chemotherapeutic agents. Therefore, these patients should be closely monitored during follow-up.
Article
Oncology
Anne-Laure Couderc, Anne-Deborah Bouhnik, Dominique Rey, Marc-Karim Bendiane, Laurent Greillier, Eillier Nouguerede, Ariane Pille, Coline Montegut, Frederique Rousseau, Patrick Villani, Julien Mancini
Summary: This study aimed to describe the quality of life of lung cancer survivors five years after diagnosis, comparing older survivors (aged 70 or above) with younger ones, and identifying factors associated with poorer long-term quality of life in both age groups. The results showed that physical and mental factors had a greater impact on the quality of life of older survivors, while younger survivors were more influenced by factors such as gender, cancer metastasis, neuropathic pain, and breathing difficulties.
Article
Multidisciplinary Sciences
Breanne Hobden, Mariko Carey, Rob Sanson-Fisher, Andrew Searles, Christopher Oldmeadow, Allison Boyes
Summary: The study illustrated the potential utility of a simple filter model in understanding patient outcomes and cost-effectiveness implications for depression interventions in primary care. Modervated scenarios showed that increasing detection rates had the second greatest increase in successful depression remission above baseline and the lowest incremental cost-effectiveness ratio, while increasing provider treatment response resulted in the greatest number of incremental successes above baseline but also had the greatest cost-effectiveness ratio.
Article
Oncology
Shiho Rose, Allison Boyes, Brian Kelly, Martine Cox, Kerrin Palazzi, Christine Paul
Summary: This study found a significant relationship between baseline lung cancer stigma and psychological distress at 6-month follow-up among newly diagnosed lung cancer patients. It suggests that stigma-related experiences may have a delayed impact on psychological distress. Routine lung cancer stigma assessments are recommended to identify those at risk of psychological distress.
Review
Public, Environmental & Occupational Health
Ruth White, Laura Bruggink, Chris Hayes, Allison Boyes, Chris Paul
Summary: This study reviewed the feasibility of behavioral interventions to support opioid tapering in chronic noncancer pain patients. Results showed relatively high patient acceptability towards behavioral interventions, but there are still challenges encountered in clinical practice.
TRANSLATIONAL BEHAVIORAL MEDICINE
(2021)
Article
Medicine, General & Internal
Carmen L. Galvez-Hernandez, Allison Boyes, Andrea Ortega-Mondragon, Andrea G. Romo-Gonzalez, Alejandro Mohar, Fernanda Mesa-Chavez, Luis Onate-Ocana, Cynthia Villarreal-Garza
Summary: Identifying and addressing the unmet needs of breast cancer patients, especially in vulnerable populations like Latinas, is crucial. This study aimed to identify the most common unmet needs among Mexican women with breast cancer and validate the SCNS-SF34. The results showed that the Health System and Providers Information were the highest unmet needs domain, followed by psychological needs, with sexuality being the only domain associated with clinical and sociodemographic characteristics.
REVISTA DE INVESTIGACION CLINICA-CLINICAL AND TRANSLATIONAL INVESTIGATION
(2021)
Review
Oncology
Ama Gyamfua Ampofo, Allison W. Boyes, Phinda G. Khumalo, Lisa Mackenzie
Summary: School-based education is effective in improving knowledge about cervical cancer and HPV infection, as well as increasing knowledge and intentions toward HPV vaccination. However, it has limited impact on risk perceptions and attitudes, although printed education materials focused on HPV-related content may have a positive effect on risk perceptions. School-based education does not significantly increase HPV vaccination uptake.
GYNECOLOGIC ONCOLOGY
(2022)
Article
Geriatrics & Gerontology
Elise Mansfield, Emilie C. Cameron, Allison W. Boyes, Mariko L. Carey, Balakrishnan Nair, Alix E. Hall, Rob W. Sanson-Fisher
Summary: This study examined the prevalence and type of unmet needs experienced by carers of people with dementia in Australia using a quantitative instrument. The results showed that a large proportion of carers reported unmet needs.
AGING & MENTAL HEALTH
(2023)
Article
Neurosciences
Elise Mansfield, Emilie Cameron, Mariko Carey, Allison Boyes, Balakrishnan Nair, Alix Hall, Rob Sanson-Fisher
Summary: A self-report tool (UNI-D) was developed to identify unmet needs of people with dementia living in the community, with 85% of participants identifying at least one unmet need. The most frequently endorsed needs included help with memory, finding dementia treatments, and seeing friends and family more often.
JOURNAL OF ALZHEIMERS DISEASE
(2022)
Article
Immunology
Ama Gyamfua Ampofo, Lisa Mackenzie, Allison W. Boyes
Summary: This study explores the intentions to participate in HPV vaccination among female high school students in Ghana. Results show that 64% of students agreed with at least one vaccination intention item, but 51% expressed uncertainty and 44% disagreed with at least one item. The vaccination uptake rate was 4.5%. Factors associated with higher vaccination intention scores include stronger beliefs in vaccine effectiveness and recommendations from parents, religious leaders, service providers, and vaccinated peers. Lower vaccination intention scores were associated with perceived barriers to vaccination.
Article
Public, Environmental & Occupational Health
Ama Gyamfua Ampofo, Allison W. Boyes, Shadrack Osei Asibey, Christopher Oldmeadow, Lisa J. Mackenzie
Summary: This study revealed that modifiable risk factors for cervical cancer and HPV infection tend to co-occur among adolescents. Two distinct classes of students were identified, with high-risk students more likely to be exposed to multiple risk factors. Students with higher knowledge and perceived susceptibility were more likely to belong to the high-risk classes, suggesting a need for more complex risk reduction interventions.
Article
Oncology
Ama Gyamfua Ampofo, Allison W. Boyes, Lisa J. Mackenzie
Summary: According to a survey of 2400 female senior school students from 17 schools in Ghana, the majority preferred to receive cervical cancer education from doctors, nurses, and credible health organizations, and preferred to receive education in hospitals. Almost all students endorsed multiple delivery mediums including television, one-on-one health consultation, and health information websites.
JOURNAL OF CANCER EDUCATION
(2023)
Article
Geriatrics & Gerontology
Mariko Carey, Elise Mansfield, Emilie Cameron, Allison Boyes, William Browne, Jason Dizon, Rob Sanson-Fisher
Summary: This study aimed to explore the proportion of people with dementia in the community who reported depressive symptoms and suicidal ideation. The results showed a high proportion of people with dementia experiencing depressive symptoms, suggesting the need for routine assessment and intervention.
Article
Health Care Sciences & Services
Kamala Dhakal, Changying Chen, Panpan Wang, Joanes Faustine Mboineki, Mikiyas Amare Getu, Allison Boyes, Chandrakala Sharma, Bijesh Raj Ghimire, Abish Adhikari, Bibhav Adhikari, Daya Laxmi Shrestha
Summary: This study aimed to test the linguistic and cultural validity of a Nepali language version of the SCNS-SF34 questionnaire among the Nepali population. The translated version showed high content validity in semantic, cultural, and conceptual aspects. It also demonstrated good reliability and clarity.
HEALTH AND QUALITY OF LIFE OUTCOMES
(2023)
Article
Cardiac & Cardiovascular Systems
Kristy Fakes, Trent Williams, Nicholas Collins, Andrew Boyle, Aaron L. Sverdlov, Allison Boyes, Rob Sanson-Fisher
Summary: This study examined patients' views and experiences of care in relation to cardiac catheterization and subsequent cardiovascular procedures. Gaps were identified between patients' expectations and actual care, including areas such as preparation, treatment decision-making, prognosis, and post-treatment follow-up.
EUROPEAN HEART JOURNAL-QUALITY OF CARE AND CLINICAL OUTCOMES
(2023)
Meeting Abstract
Oncology
Shiho Rose, Allison Boyes, Brian Kelly, Martine Cox, Kerrin Palazzi, Christine Paul
ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY
(2022)
Meeting Abstract
Oncology
Ama Gyamfua Ampofo, Allison Boyes, Shadrack Osei Asibey, Lisa Mackenzie
ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY
(2021)
