Article
Infectious Diseases
Stefan Cox, Maud Vleeming, Wesley Giorgi, Geert-Jan Dinant, Jochen Cals, Eefje de Bont
Summary: This study investigated experiences, expectations, motivations, and perspectives of female UTI patients in general practice. It found that patients have a lack of knowledge and that experienced and inexperienced patients consult GPs for different reasons. Preventing misconceptions is especially important in the inexperienced patient group.
Article
Medicine, General & Internal
Sarah Mitchell, Isabel Leach, Nicola Turner, C. R. Mayland
Summary: This research aims to provide new understanding of patient perspectives regarding the experience of having their palliative care needs identified and its impact on their healthcare. Qualitative interviews will be conducted with 10-12 adults with advanced serious illness who have been identified as needing palliative care. The findings will have important implications for clinical practice and policy.
Article
Health Care Sciences & Services
Abby Maybee, Samantha Winemaker, Michelle Howard, Hsien Seow, Alexandra Farag, Hun-Je Park, Denise Marshall, Jose Pereira
Summary: This qualitative descriptive study of community-based palliative care physicians found that personal motivators were drivers in their practice style of takeover versus consultative palliative care models, leading to differences in daily care processes and outcomes.
PALLIATIVE MEDICINE
(2022)
Article
Economics
Roxanne Gal, Raphaeele Charest-Morin, Jorrit-Jan Verlaan, Charles G. Fisher, Hester Wessels, Helena M. Verkooijen, Anne L. Versteeg
Summary: This study evaluated the expectations of patients with spinal metastases who underwent surgery and/or radiation therapy. It revealed that patients had low expectations for treatment outcomes and were well-informed about potential complications. However, their expectations regarding pain relief and improved daily functioning were not fully met post-treatment, highlighting the need for improved patient-physician communication.
Article
Health Care Sciences & Services
Marijanne Engel, Lia van Zuylen, Andree van der Ark, Agnes van der Heide
Summary: A study in the Netherlands explored the role and responsibilities of 16 palliative care nurse champions, finding that their main task is to disseminate information about palliative care to colleagues, while feeling a low responsibility for organizational tasks and inter-organizational collaboration. Nurses in hospital and home care have diverse views on palliative care, and comprehensively fulfilling the role of a palliative care nurse champion poses a challenge.
BMC PALLIATIVE CARE
(2021)
Article
Pediatrics
Lucy Coombes, Debbie Braybrook, Anna Roach, Hannah Scott, Daney Hardardottir, Katherine Bristowe, Clare Ellis-Smith, Myra Bluebond-Langner, Lorna K. Fraser, Julia Downing, Bobbie Farsides, Fliss E. M. Murtagh, Richard Harding
Summary: This study aims to identify the symptoms, concerns, and care priorities of children with life-limiting conditions and their families. The results show that children experience symptoms such as pain and seizures, and have emotional, social, and existential concerns. The study emphasizes the importance of pursuing normal childhood activities. The findings suggest the need for a holistic, child-centred approach to care, as well as improvements in the accessibility, co-ordination, and availability of health services.
EUROPEAN JOURNAL OF PEDIATRICS
(2022)
Article
Health Care Sciences & Services
Hannah J. Fairlamb, Fliss E. M. Murtagh
Summary: The study explored health professional perceptions and practices regarding specialist palliative care for patients with end-stage cardiac and respiratory diseases in the UK. Participants reported challenges such as variable disease trajectories, lack of advance care planning discussions, and poor interdepartmental education, which hindered timely referral to palliative care services. Better integration of advance care planning, early patient education, and interdepartmental working are seen as solutions to improve specialist palliative care for these patients.
BMC PALLIATIVE CARE
(2021)
Article
Public, Environmental & Occupational Health
Sandra L. L. Neate, William Bevens, Pia L. L. Jelinek, Kathleen M. M. Gray, T. J. Weiland, Nupur Nag, Steve Simpson-Yap, George A. A. Jelinek, M. Yu, Jeanette C. C. Reece
Summary: This study explores participants' motivations, expectations, and experiences of the MS Online Course (MSOC) through qualitative analysis. The results show that participants are motivated to help others through research, help themselves by improving knowledge, and find ways to better manage their multiple sclerosis (MS). Expectations include obtaining reliable information and further understanding lifestyle modification. Participants' experiences include confirmation of existing knowledge, obtaining new knowledge, and early implementation of lifestyle behavior changes.
FRONTIERS IN PUBLIC HEALTH
(2022)
Article
Management
Sandra Jonsson, Helena Stavreski, Tuija Muhonen
Summary: The study found that preceptorship of nursing students can be an integral part of recruitment and retention of nurses, and combining their development could benefit both sides. Nursing managers need to develop organizational practices to facilitate the integration of preceptorship with recruitment and retention of nurses, thereby improving the quality of the work environment.
JOURNAL OF NURSING MANAGEMENT
(2021)
Article
Nursing
M. Eriksson-Liebon, S. Roos, I. Hellstrom
Summary: Patients' experiences of involvement in their care in the emergency department are related to their sense of control, with expectations of respect and participation in care dialogues. Factors such as attention, information, and participation impact patients' involvement during the ED visit.
JOURNAL OF CLINICAL NURSING
(2021)
Article
Health Care Sciences & Services
Isabel Burner-Fritsch, Anna Bolzani, Katerina Hriskova, Stefanie Kolmhuber, Claudia Bausewein, Farina Hodiamont
Summary: The Palli-MONITOR study aimed to develop and test electronic patient-reported outcome measures in specialized palliative home care. Challenges identified include potential problems for patients with deteriorating health, the burden of reflecting on their palliative situation, and concerns about the future implementation of electronic measurement tools in clinical care routine. Organizational and structural challenges include the potential undermining of the established emergency call system and issues related to patient use.
PALLIATIVE MEDICINE
(2023)
Article
Nursing
Anne-Floor Q. Dijxhoorn, Yanouk Heijnen, Yvette M. van der Linden, Carlo Leget, Natasja J. H. Raijmakers, Linda Brom
Summary: This exploratory qualitative study examines the perceived emotional impact of providing palliative care among nursing assistants in Dutch nursing homes, their coping strategies, and associated needs. The study findings suggest that nursing assistants should be better supported in coping with the emotional impact of providing palliative care. They use different coping strategies, including emotional processing activities, their attitude towards death and work, and gaining experience. There is a need for more education in palliative care and organized peer group meetings.
JOURNAL OF ADVANCED NURSING
(2023)
Article
Health Care Sciences & Services
Maarten Vermorgen, Isabel Vandenbogaerde, Chantal Van Audenhove, Peter Hudson, Luc Deliens, Joachim Cohen, Aline De Vleminck
Summary: This study investigated how family carers of people with a life-limiting chronic illness perceive collaboration with healthcare professionals in the last phase of life. Results revealed that family carers experience many possibilities, but also perceive missed opportunities for effective collaboration in palliative care.
PALLIATIVE MEDICINE
(2021)
Article
Public, Environmental & Occupational Health
John Robert Bautista, Yan Zhang, Jacek Gwizdka
Summary: US physicians and nurses are motivated to correct health misinformation on social media both personally and professionally. However, they face various barriers such as lack of positive outcomes, harassment, and a lack of institutional support. To overcome these barriers, they recommend that health care professionals should receive misinformation and social media training.
JMIR PUBLIC HEALTH AND SURVEILLANCE
(2021)
Article
Health Care Sciences & Services
M. Torensma, B. D. Onwuteaka-Philipsen, X. de Voogd, D. L. Willems, J. L. Suurmond
Summary: Researchers' efforts to address responsiveness of palliative care to patients with a migration background and other underserved populations are influenced by individual factors and institutional factors. Training in responsiveness for researchers in the field of palliative care is recommended, along with training for healthcare professionals involved in research projects to increase enrolment of patients with a migration background and other underrepresented populations. Researchers, research institutions, and funding agencies are encouraged to allow flexibility in research practices and set a standard for responsive research practice.
BMC PALLIATIVE CARE
(2021)
Article
Health Care Sciences & Services
Joanne Bayly, Andy Bradshaw, Lucy Fettes, Muhammed Omarjee, Helena Talbot-Rice, Catherine Walshe, Katherine E. Sleeman, Sabrina Bajwah, Lesley Dunleavy, Mevhibe Hocaoglu, Adejoke Oluyase, Ian Garner, Rachel L. Cripps, Nancy Preston, Lorna K. Fraser, Fliss E. M. Murtagh, Irene J. Higginson, Matthew Maddocks
Summary: This study found that rehabilitation services in palliative care during the Covid-19 pandemic mostly shifted to remote provision, with many team members being on sick leave, redeployed, or furloughed. Free text responses were categorized into four themes showing how rehabilitation services adapted and reconfigured to the challenges posed by Covid-19, affecting both clinicians' and patients' capacity to participate in rehabilitation programs.
PALLIATIVE MEDICINE
(2022)
Article
Respiratory System
Malgorzata Krajnik, Nilay Hepgul, Andrew Wilcock, Ewa Jassem, Tomasz Bandurski, Silvia Tanzi, Steffen T. Simon, Irene J. Higginson, Caroline J. Jolley
Summary: Respiratory medicine and palliative care physicians have different approaches in managing chronic breathlessness, with PC physicians more likely to use opioids and benzodiazepines, while RM physicians focus more on exercise training. Physicians who have read non-cancer palliative care guidelines tend to adopt certain treatment methods more frequently.
BMC PULMONARY MEDICINE
(2022)
Article
Primary Health Care
Javiera Leniz, Martin Gulliford, Irene J. Higginson, Sabrina Bajwah, Deokhee Yi, Wei Gao, Katherine E. Sleeman
Summary: This study aimed to explore factors associated with hospital admissions among people dying with dementia. The study found that patients with more GP contacts had a higher risk of multiple hospital admissions, while higher continuity of care and identification of palliative care needs were associated with a lower frequency of these admissions.
BRITISH JOURNAL OF GENERAL PRACTICE
(2022)
Editorial Material
Critical Care Medicine
J. Randall Curtis, Irene J. Higginson, Douglas B. White
INTENSIVE CARE MEDICINE
(2022)
Article
Health Care Sciences & Services
Bridget M. Johnston, Barbara Daveson, Charles Normand, Karen Ryan, Melinda Smith, Regina McQuillan, Irene Higginson, Lucy Selman, Katy Tobin
Summary: This study evaluated the preferences of older patients for elements of palliative care services and found that they prioritize minimizing the burden on unpaid caregivers, easy access to services, and high quality of life. This provides evidence for prioritizing and evaluating service elements in palliative care delivery models.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2022)
Article
Health Care Sciences & Services
Eve Namisango, Katherine Bristowe, Fliss E. M. Murtagh, Julia Downing, Richard A. Powell, Mackuline Atieno, Melanie Abas, Zipporah Ali, Emmanuel B. K. Luyirika, Michelle Meiring, Faith N. Mwangi-Powell, Irene J. Higginson, Richard Harding
Summary: This study evaluates the face and content validity, comprehensiveness, comprehensibility, acceptability, and feasibility of the Children's Palliative Care Outcome Scale (C-POS). The results show that C-POS captures the core symptoms and concerns that matter to children and their families. It is considered feasible, comprehensible, and acceptable for use in clinical settings. However, further development and improvement are needed.
PALLIATIVE MEDICINE
(2022)
Article
Medicine, General & Internal
Javiera Leniz, Lesley A. Henson, Jean Potter, Wei Gao, Tom Newsom-Davis, Zia Ul-Haq, Amanda Lucas, Irene J. Higginson, Katherine E. Sleeman
Summary: The study found that increased contacts with community nurses were associated with fewer hospital admissions in the last 30 days and fewer emergency department visits in the last 2 weeks for people with end-of-life cancer. However, increased contacts with general practitioners were associated with a higher risk of more hospital admissions in the last 90 days and more emergency department visits in the last 2 weeks. Therefore, expanding community nursing could potentially reduce acute hospital use at the end of life.
Article
Health Care Sciences & Services
Irene J. Higginson, Mevhibe B. Hocaoglu, Lorna K. Fraser, Matthew Maddocks, Katherine E. Sleeman, Adejoke O. Oluyase, Rachel L. Chambers, Nancy Preston, Lesley Dunleavy, Andy Bradshaw, Sabrina Bajwah, Fliss E. M. Murtagh, Catherine Walshe
Summary: This study provides important evidence on symptom control and palliative care for severe COVID-19 cases. Symptoms of COVID-19 improved during palliative care, with breathlessness, agitation, and multimorbidity being associated with shorter survival.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2022)
Article
Respiratory System
Deokhee Yi, Charles C. Reilly, Gao Wei, Irene J. Higginson
Summary: This study found that breathlessness services were cost-effective compared to usual care, resulting in cost savings and improved quality of life. Additionally, tailoring service attributes to individual preferences increased the uptake of these services.
Article
Health Care Sciences & Services
Tushti Bhardwaj, Rachel L. Chambers, Harry Watson, Irene J. Srividya, Irene J. Higginson, Mevhibe B. Hocaoglu
Summary: This study aimed to translate and culturally adapt the Integrated Palliative Care Outcome Scale (IPOS) into Hindi. Through a standardized methodology, the Hindi IPOS was developed and found to have face and content validity for clinical practice and research. The availability of the Hindi IPOS has implications beyond Indian palliative care settings, as it provides millions of Hindi speakers with a tool to communicate their palliative care needs in their mother tongue.
PALLIATIVE MEDICINE
(2023)
Letter
Respiratory System
Natasha Lovell, Simon N. Etkind, Joanna M. Davies, Wendy Prentice, Irene J. Higginson, Katherine E. Sleeman
EUROPEAN RESPIRATORY JOURNAL
(2023)
Article
Health Care Sciences & Services
Javiera Leniz, Joanna M. Davies, Anna E. Bone, Mevhibe Hocaoglu, Julia Verne, Stephen Barclay, Fliss E. M. Murtagh, Lorna K. Fraser, Irene J. Higginson, Katherine E. Sleeman
Summary: The number and proportion of home deaths in the UK increased during the Covid-19 pandemic, with evidence of socioeconomic inequality. The increase in home deaths was lowest for people living in the most deprived areas, showing a deprivation gradient. Further research is needed to understand the reasons for this change and if the inequality has been sustained. Overall rating: 7 points.
PALLIATIVE MEDICINE
(2023)
Review
Respiratory System
Claire M. Nolan, Lisa Jane Brighton, Yihan Mo, Joanne Bayly, Irene J. Higginson, William D. -C. Man, Matthew Maddocks
Summary: This systematic review examined the effect of meditative movement on breathlessness, quality of life, exercise capacity, functional performance, and psychological symptoms in advanced disease. The results showed that meditative movement did not improve breathlessness, quality of life, or exercise capacity in people with advanced COPD or cancer.
EUROPEAN RESPIRATORY REVIEW
(2023)
Article
Respiratory System
Charles C. Reilly, Matthew Maddocks, Trudie Chalder, Katherine Bristowe, Irene J. Higginson
Summary: SELF-BREATHE is a digital breathlessness intervention that aims to improve the lives of people with chronic breathlessness. This study found that SELF-BREATHE was feasible to deliver and acceptable to patients, with users reporting improved breathlessness during daily life.
Article
Health Care Sciences & Services
Hannah May Scott, Lucy Coombes, Debbie Braybrook, Anna Roach, Daney Hardardottir, Katherine Bristowe, Clare Ellis-Smith, Irene Higginson, Wei Gao, Myra Bluebond-Langner, Bobbie Farsides, Fliss E. M. Murtagh, Lorna K. Fraser, Richard Harding
Summary: The COVID-19 pandemic and lockdowns have had a negative impact on children and young people with life-limiting or life-threatening conditions and their families, resulting in loss of social support, disruption of vital services, and increased psychological distress.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2022)
