Quality of life in fatal disease: the flawed judgement of the social environment

Roadmap and standard operating procedures for biobanking and discovery of neurochemical markers in ALS

(2012) Markus Otto et al.   Amyotrophic Lateral Sclerosis

How do patients with rare diseases experience the medical encounter? Exploring role behavior and its impact on patient–physician interaction

(2012) Karolina Budych et al.   HEALTH POLICY

Evolution of Quality of Life, Mental Health, and Coping Strategies in Amyotrophic Lateral Sclerosis: A Pilot Study

(2012) Sébastien Montel et al.   JOURNAL OF PALLIATIVE MEDICINE

Why the way we are living may be bad for our mental well-being, and what we might choose to do about it: Responding to a 21st Century public health challenge

(2012) G. Henderson   PUBLIC HEALTH

The complexity of care in amyotrophic lateral sclerosis

(2011) Geraldine Foley   Amyotrophic Lateral Sclerosis

Family Understanding of Seriously-ill Patient Preferences for Family Involvement in Healthcare Decision Making

(2011) Rashmi K. Sharma et al.   JOURNAL OF GENERAL INTERNAL MEDICINE

Emotional adjustment in amyotrophic lateral sclerosis (ALS)

(2011) Dorothée Lulé et al.   JOURNAL OF NEUROLOGY

Amyotrophic lateral sclerosis

(2011) Matthew C Kiernan et al.   LANCET

Some difficult decisions in ALS/MND

(2010) David J. Oliver et al.   Amyotrophic Lateral Sclerosis

Existential well-being and spirituality of individuals with amyotrophic lateral sclerosis is related to psychological well-being of their caregivers

(2010) Francesco Pagnini et al.   Amyotrophic Lateral Sclerosis

Living with amyotrophic lateral sclerosis/motor neurone disease (ALS/MND): decision-making about ‘ongoing change and adaptation’

(2010) Susan J King et al.   JOURNAL OF CLINICAL NURSING

Coping with amyotrophic lateral sclerosis: an integrative view

(2010) T. Matuz et al.   JOURNAL OF NEUROLOGY NEUROSURGERY AND PSYCHIATRY

Depression and QOL in patients with ALS: how do self-ratings and ratings by relatives differ?

(2010) Torsten Grehl et al.   QUALITY OF LIFE RESEARCH

Well-being in patients with amyotrophic lateral sclerosis and their next of kin over time

(2009) A. G. Olsson et al.   ACTA NEUROLOGICA SCANDINAVICA

Consensus criteria for the diagnosis of frontotemporal cognitive and behavioural syndromes in amyotrophic lateral sclerosis

(2009) Michael J. Strong et al.   Amyotrophic Lateral Sclerosis

Trends and determinants of end-of-life practices in ALS in the Netherlands

(2009) M. Maessen et al.   NEUROLOGY

Practice Parameter update: The care of the patient with amyotrophic lateral sclerosis: Multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidence-based review): Report of the Quality Standards Subcommittee of the American Academy of Neurology

(2009) R. G. Miller et al.   NEUROLOGY

Palliative care and circumstances of dying in German ALS patients using non‐invasive ventilation

(2008) Peter Kühnlein et al.   Amyotrophic Lateral Sclerosis

Validity of the ALS-Depression-Inventory (ADI-12)— A new screening instrument for depressive disorders in patients with amyotrophic lateral sclerosis

(2008) Eva Maria Hammer et al.   JOURNAL OF AFFECTIVE DISORDERS