Mining Online Social Network Data for Biomedical Research: A Comparison of Clinicians’ and Patients’ Perceptions About Amyotrophic Lateral Sclerosis Treatments

Use of an Online Community to Develop Patient-Reported Outcome Instruments: The Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ)

(2011) Paul Wicks et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Patient-reported Outcomes as a Source of Evidence in Off-Label Prescribing: Analysis of Data From PatientsLikeMe

(2011) Jeana Frost et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm

(2011) Paul Wicks et al.   NATURE BIOTECHNOLOGY

ALSUntangled No. 8: Low dose naltrexone for ALS

(2010)   Amyotrophic Lateral Sclerosis

Sharing Health Data for Better Outcomes on PatientsLikeMe

(2010) Paul Wicks et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Assessment of self-selection bias in a pediatric unilateral hearing loss study

(2010) Judith E.C. Lieu et al.   OTOLARYNGOLOGY-HEAD AND NECK SURGERY

Display of Health Risk Behaviors on MySpace by Adolescents

(2009) Megan A. Moreno et al.   ARCHIVES OF PEDIATRICS & ADOLESCENT MEDICINE

Measuring function in advanced ALS: validation of ALSFRS-EX extension items

(2009) P. Wicks et al.   EUROPEAN JOURNAL OF NEUROLOGY

Can web 2.0 reboot clinical trials?

(2009) Malorye Allison   NATURE BIOTECHNOLOGY

Practice Parameter update: The care of the patient with amyotrophic lateral sclerosis: Multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidence-based review): Report of the Quality Standards Subcommittee of the American Academy of Neurology

(2009) R. G. Miller et al.   NEUROLOGY

Amyotrophic lateral sclerosis

(2009) Lokesh C Wijesekera et al.   Orphanet Journal of Rare Diseases