Article
Nursing
Ira Suarilah, Chiu-Chu Lin
Summary: The study aimed to explore self-management of early-stage CKD patients and its influencing factors in Indonesia. Results showed that Indonesian patients had low health literacy but positive illness perception and self-efficacy, which significantly affected CKD self-management. Health literacy was found to influence all dimensions of self-management and improving it may help enhance self-management.
JOURNAL OF CLINICAL NURSING
(2022)
Editorial Material
Urology & Nephrology
Matthew P. M. Graham-Brown, Alice C. Smith, Sharlene A. Greenwood
Summary: Digital health interventions (DHIs) have the potential to improve access to healthcare, but their translation into clinical practice for patients with chronic kidney disease (CKD) poses challenges. Patients from lower socio-economic and educational backgrounds, minority ethnic groups, elderly patients, and those facing digital poverty are least likely to access and benefit from DHIs, despite being the ones who stand to gain the most. This article discusses the potential of DHIs to level the playing field for CKD patients and suggests strategies for inclusive and effective development, as well as supporting translation into practice.
CLINICAL KIDNEY JOURNAL
(2023)
Review
Computer Science, Information Systems
L. Verweel, A. Newman, W. Michaelchuk, T. Packham, R. Goldstein, D. Brooks
Summary: This article conducted a systematic review to determine the effect of digital interventions on digital health literacy for patients with chronic diseases. The results showed that digital interventions have a positive impact on the digital health literacy of patients with chronic diseases, but the evidence is limited and further research is needed.
INTERNATIONAL JOURNAL OF MEDICAL INFORMATICS
(2023)
Article
Public, Environmental & Occupational Health
Austin McMillan, Noah Tregobov, Jessica Shum, Ian Christie, Alizeh Akhtar, Iraj Poureslami, J. Mark FitzGerald
Summary: This study explored the responses of chronic airways disease patients to health literacy communication questions within disease self-management scenarios. The results showed that specialty care CAD patients displayed an understanding of key information to communicate across disease self-management topics.
PATIENT EDUCATION AND COUNSELING
(2022)
Article
Nursing
Nurul Akidah Lukman, Lisa Merry
Summary: The aim of this study was to explore and describe the self-care experiences of Indonesian immigrants living in Montreal, Canada with chronic illness, and to understand the influence of religion and support on these experiences. The results identified major themes including religion, being helpful to others, family support, transnational family support, community support, and the differences between Indonesia and Canada. Religion, culture, social factors, and family factors may impact how Indonesian immigrants engage in self-care.
JOURNAL OF ADVANCED NURSING
(2023)
Article
Health Care Sciences & Services
Thi Thuy Ha Dinh, Ann Bonner
Summary: This study investigates the associations of health literacy, social support, and self-efficacy with self-management in the context of multiple chronic diseases, and provides insights for healthcare providers to develop effective educational strategies.
BMC HEALTH SERVICES RESEARCH
(2023)
Article
Public, Environmental & Occupational Health
Ying Wu, Jing Wen, Xiaohui Wang, Qingyao Wang, Wen Wang, Xiangjia Wang, Jiang Xie, Li Cong
Summary: This study reveals that self-management among older patients with CNCDs is at a low level, and few of them use smart healthcare devices. Self-efficacy plays a partial intermediary role between e-health literacy and self-management in older patients with CNCDs.
Article
Cardiac & Cardiovascular Systems
Astrid K. Wahl, Richard H. Osborne, Marie H. Larsen, Marit H. Andersen, Ingrid A. Holter, Christine R. Borge
Summary: This study highlights the importance of psychological factors in determining the health literacy needs among people with COPD. The results showed that higher levels of psychological well-being and education were associated with higher levels of health literacy.
Article
Psychology, Multidisciplinary
Yan Liu, Hongdao Meng, Kyaien O. Conner, Mutian Qiao, Danping Liu
Summary: The study highlights the impact of health literacy and social support on loneliness among individuals with severe mental illnesses. Results show that health literacy is directly and indirectly associated with loneliness, with social support playing a mediating role. The findings suggest that psychoeducation for SMI patients and interventions focusing on improving social support may help reduce loneliness in this vulnerable population.
FRONTIERS IN PSYCHOLOGY
(2021)
Article
Medicine, General & Internal
Orsolya Papp-Zipernovszky, Marta Csabai, Peter J. Schulz, Janos T. Varga
Summary: The study aimed to measure the health literacy of COPD patients and their disease knowledge using multiple tests, revealing associations between different types of health literacy and a gap between functional health literacy and disease knowledge. S-TOFHLA was found to be a better tool in the medical context.
JOURNAL OF CLINICAL MEDICINE
(2021)
Review
Health Care Sciences & Services
Nikita Deshpande, Meng Wu, Colleen Kelly, Nicole Woodrick, Debra A. Werner, Anna Volerman, Valerie G. Press
Summary: This study assessed the efficacy of video-based educational tools for patients with chronic illnesses. Among the 112 studies reviewed, 59 were deemed eligible for inclusion. Video-based tools were found to be most effective in improving patient knowledge, but their impact on disease severity and health care use varied.
JOURNAL OF MEDICAL INTERNET RESEARCH
(2023)
Article
Education, Scientific Disciplines
D. Wuyts, A. Van Hecke, V Lemaire, I Vandepoel, V Duprez
Summary: The study aimed to develop a training program for nurses in self-management support, based on Self-Determination Theory and the 5A's-Model. Through literature review, current practice analysis, and problem and needs analysis, the training successfully met participants' needs by focusing on attitude, knowledge, skills, and reflection.
NURSE EDUCATION TODAY
(2021)
Article
Health Care Sciences & Services
Laura M. Curtis, Mary J. Kwasny, Lauren Opsasnick, Rachel M. O'Conor, Julia Yoshino-Benavente, Morgan Eifler, Alex D. Federman, Drew Altschul, Michael S. Wolf
Summary: A study found a negative relationship between age and health literacy over time, with older adults possibly experiencing declining health literacy as they age, especially when self-care demands increase. Clinicians are recommended to strengthen strategies to assess and respond to limited health literacy, particularly in patients aged 70 and older.
JOURNAL OF GENERAL INTERNAL MEDICINE
(2021)
Article
Oncology
Janet Papadakos, Jan Barnsley, Whitney Berta, Gillian Rowlands, Diana Samoil, Doris Howell
Summary: This study aims to examine the association between self-efficacy, health literacy, chemotherapy self-management behaviors, and health service utilization. The results show a significant link between self-efficacy and chemotherapy self-management scores, while health literacy is not significantly associated with any of the variables.
SUPPORTIVE CARE IN CANCER
(2022)
Article
Pediatrics
Saya Sekine, Kyoko Kobayashi, Ryota Ochiai, Takashi Higaki
Summary: This study developed a Japanese version of HLRS-Y and evaluated its content validity with the approval from the original authors. The Japanese version showed good content validity, with the I-CVI criteria being met for most items and the S-CVI/Ave value reaching 0.96. Future studies should focus on examining the factor validity, known group validity, and reliability of the scale.
FRONTIERS IN PEDIATRICS
(2022)
Article
Health Care Sciences & Services
Mieke Rijken, Rene Stussgen, Chantal Leemrijse, Mieke J. L. Bogerd, Joke C. Korevaar
Summary: The JA-CHRODIS Integrated Multimorbidity Care Model was piloted in the Netherlands to assess its suitability for improving care for people with multimorbidity. Prioritized elements of care included shared electronic health records, regular comprehensive assessments, self-management support, shared decision making, and care coordination. The model reflects the priorities and preferences for care of people with multimorbidity in the Netherlands, supporting its relevance for guiding the development of person-centred integrated care for people with multiple chronic conditions.
HEALTH EXPECTATIONS
(2021)
Review
Health Care Sciences & Services
Marieke van der Gaag, Monique Heijmans, Cristina Spoiala, Jany Rademakers
Summary: Patients with limited health literacy face difficulties in specific domains of self-management, particularly in medical management (especially adherence), communication, and knowledge. Other associations between health literacy and self-management are inconclusive.
Article
Health Care Sciences & Services
Mieke Rijken, James Close, Juliane Menting, Manon Lette, Annerieke Stoop, Nick Zonneveld, Simone R. de Bruin, Helen Lloyd, Monique Heijmans
Summary: This study evaluated the internal and construct validity of the Dutch version of the Person-Centred Coordinated Care Experience Questionnaire (P3CEQ) and found that it is a valid instrument for assessing the experience of person-centred coordinated care among people with chronic conditions in the Netherlands. The study also identified disparities in care experience based on gender, education level, health literacy, and patient activation.
HEALTH EXPECTATIONS
(2022)
Article
Multidisciplinary Sciences
Laxsini Murugesu, Monique Heijmans, Jany Rademakers, Mirjam P. Fransen
Summary: Insights into the challenges healthcare providers face in serving low health literate patients are lacking. This study explores the perceived challenges of healthcare providers and offers strategies for communication with low health literate patients. Survey results show that providers need more support in recognizing and discussing low health literacy, adapting communication, and assessing patient comprehension.
Article
Public, Environmental & Occupational Health
Marieke van der Gaag, Monique Heijmans, Marta Ballester, Carola Orrego, Ena Nino de Guzman, Lyudmil Ninov, Jany Rademakers
Summary: The study found that patients with limited health literacy prioritize satisfaction with healthcare, symptom management, and improving competences for self-management as outcomes of self-management. Building a strong patient-provider relationship is crucial for successful self-management.
FRONTIERS IN PUBLIC HEALTH
(2022)
Article
Pediatrics
Jany Rademakers, Marla T. H. Hahnraths, Onno C. P. van Schayck, Monique Heijmans
Summary: This study aimed to assess the impact of Dutch children's health literacy on their BMI, dietary behavior, and physical activity. The results revealed a significant positive association between children's health literacy and their engagement in physical activity.
Article
Genetics & Heredity
Yil Severijns, Maartje W. F. Heijmans, Christine E. M. de Die-Smulders, Emilia K. Bijlsma, Nicole Corsten-Janssen, Sara J. R. Joosten, Sander M. J. van Kuijk, Klaske D. Lichtenbelt, Cecile P. E. Ottenheim, Kyra E. Stuurman, Gita M. B. Tan-Sindhunata, Hein de Vries, Liesbeth A. D. M. van Osch
Summary: This study examines the effects of an online decision aid (DA) on the reproductive decision-making process of couples at risk of transmitting a genetic disease to their offspring. The results suggest that the use of this tool can reduce decisional conflict, increase knowledge, improve realistic expectations, enhance deliberation, and increase decisional self-efficacy.
JOURNAL OF GENETIC COUNSELING
(2023)
Article
Environmental Sciences
Monique Heijmans, Rune Poortvliet, Marieke Van der Gaag, Ana Gonzalez-Gonzalez, Jessica Beltran Puerta, Carlos Canelo-Aybar, Claudia Valli, Marta Ballester, Claudio Rocha, Montserrat Leon Garcia, Karla Salas-Gama, Chrysoula Kaloteraki, Marilina Santero, Ena Nino de Guzman, Cristina Spoiala, Pema Gurung, Saida Moaddine, Fabienne Willemen, Iza Cools, Julia Bleeker, Angelina Kancheva, Julia Ertl, Tajda Laure, Ivana Kancheva, Kevin Pacheco-Barrios, Jessica Zafra-Tanaka, Dimitris Mavridis, Areti Angeliki Veroniki, Stella Zevgiti, Georgios Seitidis, Pablo Alonso-Coello, Oliver Groene, Rosa Sunol, Carola Orrego
Summary: This study systematically describes the components and characteristics of interventions related to COPD self-management, using the COMPAR-EU taxonomy as a framework. The study found that there is a lot of room for improvement in the design and description of self-management interventions for COPD.
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH
(2022)
Review
Health Care Sciences & Services
Janneke Noordman, Maaike Meurs, Rune Poortvliet, Tamara Rusman, Carola Orrego-Villagran, Marta Ballester, Lyudmil Ninov, Ena Nino de Guzman, Pablo Alonso-Coello, Oliver Groene, Rosa Sunol, Monique Heijmans, Cordula Wagner
Summary: This study aims to identify and describe the contextual factors that have a significant impact on the successful implementation of self-management interventions for patients with type 2 diabetes, obesity, COPD, and/or heart failure. A qualitative review of reviews was conducted, revealing a wide range of factors on different levels, with a focus on patients, professionals, and interactions. There were fewer factors identified on the levels of intervention, organization, setting, and national level. There were no differences in the main themes of factors across the four diseases. Thus, it is crucial to consider multiple levels of contextual factors simultaneously for the successful implementation of self-management interventions.
Article
Health Care Sciences & Services
Juliane Menting, Femke van Schelven, Claire Aussems, Monique Heijmans, Hennie Boeije
Summary: This study aimed to investigate the changes in self-management behaviors during the COVID-19 pandemic and the factors contributing to these changes. The results showed that the majority of people with chronic diseases maintained stable self-management behaviors, while about 15% experienced improvements and 14% experienced deterioration. Factors such as gender, physical disability, mental health, daily stressors due to COVID-19 (patient level), changes in healthcare access (organization level), and social support (environment level) were significantly associated with changes in self-management.
BMC HEALTH SERVICES RESEARCH
(2023)
Article
Public, Environmental & Occupational Health
Rosa Sunol, Ana Isabel Gonzalez-Gonzalez, Claudia Valli, Marta Ballester, Laura Seils, Monique Heijmans, Rune Poortvliet, Marieke van der Gaag, Claudio Rocha, Montserrat Leon-Garcia, Karla Salas-Gama, Ena Nino de Guzman, Chrysoula Kaloteraki, Marilina Santero, Cristina Spoiala, Pema Gurung, Saida Moaddine, Fabienne Wilemen, Iza Cools, Julia Bleeker, Angelina Kancheva, Julia Ertl, Tajda Laure, Ivana Kancheva, Areti Angeliki Veroniki, Stella Zevgiti, Jessica Beltran, Carlos Canelo-Aybar, Jessica Hanae Zafra-Tanaka, Georgios Seitidis, Dimitris Mavridis, Oliver Groene, Pablo Alonso-Coello, Carola Orrego
Summary: The objective of this study was to conduct an evidence map on self-management interventions and patient-relevant outcomes for adults living with overweight/obesity. The majority of the research focused on clinical outcomes and behaviors adherence, while empowerment skills, quality of life, and satisfaction were less targeted. The most frequent techniques used were sharing information, goal setting, and self-monitoring training. The study highlights the need to widen the scope of research by focusing on outcomes important to patients, assessing emotional/social/share-decision support, exploring remote techniques, and including vulnerable populations.
PATIENT EDUCATION AND COUNSELING
(2023)
Article
Primary Health Care
Bart Knottnerus, Monique Heijmans, Jany Rademakers
Summary: This study investigated the difficulties faced by individuals with limited health literacy in acquiring information about COVID-19 and governmental measures, and made recommendations on the role of primary care in informing and supporting these patients.
Article
Surgery
Jany Rademakers, Marlon Rolink, Monique Heijmans
Summary: People with limited health literacy in the Netherlands require specific information on organ donation to make informed decisions. They need easy-to-understand information on choice options, eligibility, the role of partners/family, impact on quality of care, and the process of organ donation. Improved personal support and practical assistance for registration are suggested.
TRANSPLANT INTERNATIONAL
(2022)
Meeting Abstract
Health Care Sciences & Services
Ian Porter, Mieke Rijken, Oliver Groene, Rosa Sunol, Rachel Williams, Michael van den Berg, Jimmy Martin Delgado, Jon P. Evans, Marta Ballester, Janika Bloemeke, Chloe Thomas, Peter Groenewegen, Wienke Boerma, Monique Heijmans, Katherine De Bienassis, Candan Kendir, Niek Klazinga, Dolf De Boer, Jose M. Valderas
QUALITY OF LIFE RESEARCH
(2021)
Article
Public, Environmental & Occupational Health
Noora Jawad, Faisal F. Hakeem, Wael Sabbah
Summary: This study aims to examine socioeconomic and ethnic variations in the provision of health advice by dental professionals. The findings indicate the prominent roles of education level, ethnicity, and smoking status in the provision of health advice. The study emphasizes the need for targeted interventions to promote equity and cultural competence in delivering health advice in dental settings.
PATIENT EDUCATION AND COUNSELING
(2024)
Review
Public, Environmental & Occupational Health
Katherine Miles, Bernadette O'Neill, Shuangyu Li
Summary: This study conducted a meta-ethnography to identify and synthesize guidance for optimizing feedback interactions in undergraduate clinical communication simulations. The findings led to the development of a new Feedback Kidney Model, which can guide medical education and future research on feedback in promoting learning. Incorporating meta-cognitive training and utilizing the model can help improve students' learning and communication with patients through on-site face-to-face feedback.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Ellen Van de Velde, Ann Van Hecke, Kristof Eeckloo, Simon Malfait
Summary: This study investigates the suitability of experience-based co-design as a method for designing bedside handover in mental health care, and finds that it is a suitable method for enhancing patient involvement in nursing handovers in a general hospital's mental healthcare unit.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Yasmine Probst, Maddison Luscombe, Marta Hilfischer, Vivienne Guan, Lauren Houston
Summary: This study explores the interpretation of MS-targeted nutrition messages using semi-structured interviews. The findings reveal that dietary changes made by patients with MS after diagnosis are a coping mechanism to address uncertainty, fear of disease progression, and the risk of relapse. The admiration and skepticism towards extremist MS diets depend on individual vulnerability and support from healthcare professionals. The unique MS journey influences the interpretation of the messages, driven by engagement, practicality, and credibility.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Aisha T. Langford, Kerli Orellana, Nancy Buderer, Katerina Andreadis, Stephen K. Williams
Summary: This study examined the associations between digital health, sociodemographic factors, and medical conditions on patient-centered communication (PCC). The results suggested that age, education level, household income, and history of hypertension were related to the quality of PCC.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Danielle Huisman, Taylor Burrows, Louise Sweeney, Kirsty Bannister, Rona Moss-Morris
Summary: This study found limited information on symptoms during remission of inflammatory bowel disease (IBD) on readily searchable patient websites, which fails to adequately explain the persistence of symptoms during remission for patients.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Bethan Benwell, Maria Erofeeva, Catrin S. Rhys
Summary: This study examined how language choices made by call handlers affect the progress of complaint calls and the stance of the callers. The findings showed that displaying affiliation at relevant moments in the conversation helps advance the call and de-escalate the complaint, while the absence or misplacement of affiliation may lead to escalation. Early intervention in establishing affiliation with the caller's concerns and reasoning is crucial for de-escalation.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Sarah V. Hantzmon, Clemontina A. Davenport, Maya N. Das Gupta, Temi A. Adekunle, Sarah E. Gaither, Maren K. Olsen, Sandro O. Pinheiro, Kimberly S. Johnson, Hannah Mahoney, Allison Falls, Lauren Lloyd, Kathryn I. Pollak
Summary: This study examined the impact of racial differences on patient trust and distrust in physician-patient interactions through audio-recorded cardiologist-patient encounters. The results showed that Black patients had lower expressions of trust and a higher level of guardedness compared to White patients. It suggests that White clinicians can improve communication with Black patients to increase expressions of trust.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Caitlin S. Sayegh, Ellen Iverson, Karen K. Macdonell, Shinyi Wu, Marvin Belzer
Summary: This study applied a Supportive Accountability Model to examine youth's perception of remote human coaching and automated reminders for medication adherence. The findings indicated that both coaching and automated reminders were effective in improving adherence, with coaching being viewed as more potent and engaging. Phone calls enhanced the sense of supportive accountability, but texts were more convenient and flexible. Individual preferences varied.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Jennifer Necci Dineen, Mitchell Doucette, Mekaila Carey, Kerri M. Raissian
Summary: This paper aims to understand the facilitators and barriers perceived by general practice physicians in initiating anticipatory guidance around firearm safety. Qualitative interviews were conducted with 18 GPs to explore their perspectives. Barriers to providing secure firearm storage counseling include inadequate screening mechanisms, limited understanding of who is at risk for firearm injury, time pressures, concerns about patient receptivity, and a need for training. Structural issues need to be addressed before focusing on how to have conversations about firearm safety.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Henrike J. Westerink, Cato C. Bresser, Mirjam M. Garvelink, Cornelia F. van Udenkraan, Ouisam Zouitni, Hans A. J. Bart, Philip J. van der Wees, Paul B. van der Nat
Summary: This study aims to explore the perspectives and needs of healthcare professionals (HCPs) and patients regarding the use of outcome data in consultations. The findings indicate that HCPs do not routinely use aggregated outcome data in consultations due to various barriers. Patients, however, consider aggregated outcome data important but have different preferences based on their health conditions.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Bronwyn Newman, Mashreka Sarwar, Ashfaq Chauhan, Reema Harrison
Summary: Co-facilitation presents an opportunity to address inequity in codesign, and through our experiences in the CanEngage project, we have identified three mechanisms to promote equity.
PATIENT EDUCATION AND COUNSELING
(2024)
Review
Public, Environmental & Occupational Health
Andre Vaagan, Mette Haaland-Overby, Alison Axisa Eriksen, Kari Fredriksen, Vibeke Stenov, Cecilie Varsi, Brynja Ingadottir, Bryan Richard Cleal, Anita Royneberg Alvheim, Karl Fredrik Westermann, Hilde Stromme, Olof Birna Kristjansdottir
Summary: This study summarizes the recent evidence on the feasibility, acceptability, and effectiveness of videoconference group-based patient and caregiver education. The results suggest that this education approach is highly feasible and acceptable, and may improve health outcomes for participants. However, the evidence of effectiveness is limited and the quality of studies varies. Further research is needed to establish the effectiveness of this education approach for different patient and caregiver groups.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Momoka Igarashi, Takayuki Kawaguchi, Takuma Shiozawa, Sosei Yamaguchi
Summary: The study aims to identify conversation topics, who initiated the topics, and differences in topics with and without the use of a shared decision-making (SDM) tool in psychiatric outpatient consultations. The findings show that daily life issues, especially related to work, were the main topics discussed, and the SDM tool seems to facilitate discussion of patients' concerns.
PATIENT EDUCATION AND COUNSELING
(2024)
Article
Public, Environmental & Occupational Health
Qiwei Luna Wu, Grace Ellen Brannon
Summary: This study explores how patient-centered communication, media, and organizational factors influence patients' intentions to use telehealth. The findings suggest that positive healthcare experiences, organizational support, and quality media designs are associated with telehealth adoption.
PATIENT EDUCATION AND COUNSELING
(2024)
