Article
Health Care Sciences & Services
Krista M. Ekberg, Chelsea Torres, Leonard A. Jason
Summary: The study reveals discrepancies between parent-child reports of ME/CFS symptomatology and HRQOL measures, regardless of whether the children have ME/CFS symptoms or are in the control group. Further research is needed to explore these differences.
QUALITY OF LIFE RESEARCH
(2021)
Article
Psychiatry
Afsaneh Akhani, Mahmood Dehghani, Banafsheh Gharraee, Mitra Hakim Shooshtari
Summary: The study investigated the effectiveness of structured individual and group parent training sessions among Iranian families with children diagnosed with autism. The results showed significant improvement in autism symptoms and functional emotional development in the experimental group compared to the control group.
ASIAN JOURNAL OF PSYCHIATRY
(2021)
Article
Psychology, Developmental
Melanie Palmer, Joanne Tarver, Virginia Carter Leno, Juan Paris Perez, Margot Frayne, Vicky Slonims, Andrew Pickles, Stephen Scott, Tony Charman, Emily Simonoff
Summary: Emotional and behavioral problems are common in young autistic children. There are discrepancies between parents and teachers in reporting these problems. Parenting stress and verbal ability are associated with more parent-reported problems. Autistic children with minimal verbal ability display more challenging behaviors.
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS
(2023)
Article
Pharmacology & Pharmacy
Johan Lonnbro, Lina Holmqvist, Elisabeth Persson, Per Thysell, N. David Aberg, Susanna M. Wallerstedt
Summary: Overall, there was a high level of agreement among assessors regarding the quality of drug treatment at admission and discharge, but a lower agreement on the association between drug treatment and hospital admission. In cases where hospital admission was possibly attributable to a prescribing error, assessors had poor agreement. Therefore, involving specialist physicians is recommended for more reliable assessments on both drug treatment quality and its impact on hospital admission.
BRITISH JOURNAL OF CLINICAL PHARMACOLOGY
(2021)
Article
Clinical Neurology
Amy L. Zhang, Donna B. Jeffe, Judith E. C. Lieu
Summary: The Hearing Environments-domain of the Preschool HEAR-QL can differentiate between children with and without hearing loss. Children with normal hearing had higher scores than children with hearing loss on both Total HEAR-QL and Hearing Environment-domain scores.
OTOLOGY & NEUROTOLOGY
(2022)
Article
Psychology, Developmental
Indira Singh, Monika Rani Asnani, Abigail Harrison
Summary: The aim of this study is to assess the level of agreement between adolescents' self-assessment and parent-proxy reports on health-related quality of life (HRQOL) in Jamaican adolescents with chronic illness. The study found that parent-proxies overestimated adolescents' QOL compared to adolescents' report regardless of whether the adolescent was living with a chronic illness or not. Health care providers should elicit feedback from the adolescent wherever possible and proxy reports should be used as complementary information rather than primary source.
JOURNAL OF ADOLESCENT HEALTH
(2023)
Article
Neurosciences
Ashleigh M. Johnson, Carolyn A. McCarty, Lyscha A. Marcynyszyn, Douglas F. Zatzick, Sara P. D. Chrisman, Frederick P. Rivara
Summary: The study aimed to compare child- and parent-report ratings on various assessment tools among children with persistent post-concussive symptoms. Results showed that children tended to report more symptoms but better functioning compared to parents, with greater differences observed in females and the 16-18 age group.
Article
Multidisciplinary Sciences
Frank Spichiger, Thomas Volken, Philip Larkin, Andre Anton Meichtry, Andrea Koppitz
Summary: This study examines the inter-rating reliability of a palliative care assessment tool for frontline staff in Swiss nursing homes. The results indicate that the tool has poor reliability on individual items and requires further improvement.
Article
Clinical Neurology
Amy L. Zhang, Brandon Malik Wahba, Judith E. C. Lieu
Summary: The study found that parents of children with mild hearing loss perceived their children's quality of life to be better than the children themselves did, while children with moderate-to-severe hearing loss had similar perceptions.
OTOLOGY & NEUROTOLOGY
(2021)
Article
Geriatrics & Gerontology
Charlotte Kelly, Claire Hulme, Liz Graham, Alison Ellwood, Ismail Patel, Bonnie Cundill, Amanda Farrin, Madeline Goodwin, Karen Hull, Jill Fisher, Anne Forster
Summary: The study found a certain degree of inconsistency between care staff proxies and residents' self-assessment of their health-related quality of life. Although completion rates were higher for care staff proxies, uncertainty remains due to difficulties in obtaining data from residents or making accurate proxy judgments for residents with dementia.
Article
Oncology
Richard Huan Xu, Dong Dong
Summary: This study examined the difference between self- and proxy-reported health-related quality of life (HRQoL) in Chinese lymphoma survivors and its association with sociodemographic and health characteristics. The results showed that self-reported patients had higher physical, role, and emotional functioning, but lower cognitive and social functioning compared to proxy-reported patients. However, the difference in HRQoL between self- and proxy-reported patients was not significant among different subtypes of lymphoma.
Article
Medicine, General & Internal
Johanna K. Andersson, Raffaella Pozzi Mucelli, Margit Dueholm, Susanne Fridsten, Aristeidis Grigoriadis, Stefano Guerriero, Francesco Paolo Leone, Lil Valentin, Thierry Van den Bosch, Nikolaos Voulgarakis, Kristina Gemzell-Danielsson, Elisabeth Epstein
Summary: This study aims to compare the inter-rater agreement of transvaginal ultrasonography (TVS) and magnetic resonance imaging (MRI) in diagnosing adenomyosis and assessing imaging features. The results showed that TVS had higher agreement in diagnosing adenomyosis, while MRI had higher agreement in assessing specific features.
Article
Health Care Sciences & Services
Quoc Duyet Tran, Haydar Demirhan, Anil Dolgun
Summary: Bayesian approaches are proposed in this study for the estimation of inter-rater agreement measures, to include prior information on raters' assessment behavior and impose order restrictions on scores. These approaches improve accuracy and mitigate anomalies, with theoretical and practical implications discussed for Bayesian estimation of five agreement measures with three different weights using an agreement table with grey zones. Monte Carlo simulation study evaluates classification accuracy of Bayesian and classical approaches, providing recommendations for selecting the highest performing agreement measure and weight combination based on table structure and sample size.
STATISTICAL METHODS IN MEDICAL RESEARCH
(2021)
Article
Multidisciplinary Sciences
Menelaos Konstantinidis, Lisa. W. Le, Xin Gao
Summary: This study evaluated the performance of four commonly used inter-rater agreement statistics in the context of multiple raters. The expected values of all four statistics were equal when the outcome prevalence was symmetric, but only the expected values of the three Kappa statistics were equal when the outcome prevalence was asymmetric. Fleiss' Kappa yielded a higher variance in the symmetric case, while Gwet's AC1 yielded a lower variance in the asymmetric case. The authors suggest favoring Gwet's AC1 statistic when the population-level prevalence of outcomes is unknown, and conducting transformations between statistics for direct comparisons between inter-rater agreement measures.
Article
Psychology, Developmental
Stefania Werneck Procopio, Maisa Costa Tavares, Camila Faria Carrada, Flavia Almeida Ribeiro Scalioni, Rosangela Almeida Ribeiro, Saul Martins Paiva
Summary: This study investigated the perceptions of parents/caregivers about the impact of oral conditions on the oral health-related quality of life (OHRQoL) of children/adolescents with autism spectrum disorder (ASD). The results showed that dental caries experience had a negative impact on the OHRQoL of children/adolescents with ASD. However, there were no significant differences between the perceptions of parents/caregivers of children/adolescents with ASD and those without ASD.
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS
(2023)
Letter
Cardiac & Cardiovascular Systems
Sarah de Ferranti, R. Christopher Sheldrick, John B. Wong
Article
Cardiac & Cardiovascular Systems
Sarah D. de Ferranti, Angie Mae Rodday, Michael M. Mendelson, John B. Wong, Laurel K. Leslie, R. Christopher Sheldrick
Article
Health Care Sciences & Services
R. Christopher Sheldrick, Dominic J. Breuer, Razan Hassan, Kee Chan, Deborah E. Polk, James Benneyan
IMPLEMENTATION SCIENCE
(2016)
Article
Psychology, Developmental
Holly C. Gooding, R. Christopher Sheldrick, Laurel K. Leslie, Supriya Shah, Sarah D. de Ferranti, Thomas I. Mackie
JOURNAL OF ADOLESCENT HEALTH
(2016)
Article
Behavioral Sciences
Louisa A. Salisbury, Jonathan D. Nyce, Charles D. Hannum, R. Christopher Sheldrick, Ellen C. Perrin
JOURNAL OF DEVELOPMENTAL AND BEHAVIORAL PEDIATRICS
(2018)
Article
Psychology, Developmental
R. Christopher Sheldrick, Melissa P. Maye, Alice S. Carter
JOURNAL OF THE AMERICAN ACADEMY OF CHILD AND ADOLESCENT PSYCHIATRY
(2017)
Article
Health Care Sciences & Services
Thomas I. Mackie, Radley C. Sheldrick, Sarah D. de Ferranti, Tully Saunders, Erick G. Rojas, Laurel K. Leslie
Editorial Material
Pediatrics
Arvin Garg, Christopher Sheldrick, Paul H. Dworkin
ACADEMIC PEDIATRICS
(2018)
Editorial Material
Pediatrics
Sarabeth Broder-Fingert, Christopher R. Sheldrick, Michael Silverstein
Article
Psychology, Developmental
R. Christopher Sheldrick, Elizabeth Frenette, Juan Diego Vera, Thomas I. Mackie, Frances Martinez-Pedraza, Noah Hoch, Abbey Eisenhower, Angel Fettig, Alice S. Carter
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS
(2019)
Article
Psychology, Developmental
Sarabeth Broder Fingert, Alice Carter, Karen Pierce, Wendy L. Stone, Amy Wetherby, Chris Scheldrick, Christopher Smith, Elizabeth Bacon, Stephen N. James, Lisa Ibanez, Emily Feinberg
Article
Pediatrics
Sheryl L. Levy, Elena Hill, Kathryn Mattern, Kevin McKay, R. Christopher Sheldrick, Ellen C. Perrin
CLINICAL PEDIATRICS
(2017)
Review
Pediatrics
R. Christopher Sheldrick, Daryl Garfinkel
ACADEMIC PEDIATRICS
(2017)
Article
Psychology, Developmental
Ivy Giserman Kiss, Melanie S. Feldman, R. Christopher Sheldrick, Alice S. Carter
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS
(2017)
Article
Psychology, Developmental
R. Christopher Sheldrick, Alice S. Carter
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS
(2018)