A painful inheritance—patient perspectives on living with polycystic kidney disease: thematic synthesis of qualitative research

Blood Pressure in Early Autosomal Dominant Polycystic Kidney Disease

(2015)   NEW ENGLAND JOURNAL OF MEDICINE

ESRD From Autosomal Dominant Polycystic Kidney Disease in the United States, 2001-2010

(2014) Scott Reule et al.   AMERICAN JOURNAL OF KIDNEY DISEASES

A ‘lost life’: coming to terms with haemodialysis

(2014) Susan Monaro et al.   JOURNAL OF CLINICAL NURSING

Knowledge deficit of patients with stage 1-4 CKD: A focus group study

(2014) Pamela A Lopez-Vargas et al.   NEPHROLOGY

Epidemiology of patients in England and Wales with autosomal dominant polycystic kidney disease and end-stage renal failure

(2014) Catriona Shaw et al.   NEPHROLOGY DIALYSIS TRANSPLANTATION

Renal replacement therapy for autosomal dominant polycystic kidney disease (ADPKD) in Europe: prevalence and survival--an analysis of data from the ERA-EDTA Registry

(2014) E. M. Spithoven et al.   NEPHROLOGY DIALYSIS TRANSPLANTATION

Angiotensin Blockade in Late Autosomal Dominant Polycystic Kidney Disease

(2014) Vicente E. Torres et al.   NEW ENGLAND JOURNAL OF MEDICINE

Peer volunteers in an integrative pain management program for frail older adults with chronic pain: study protocol for a randomized controlled trial

(2014) Mimi Tse et al.   Trials

Patient-Reported Outcomes in Clinical Trials of CKD-Related Therapies: Report of a Symposium Sponsored by the National Kidney Foundation and the US Food and Drug Administration

(2013) Ronald D. Perrone et al.   AMERICAN JOURNAL OF KIDNEY DISEASES

Health-Related Quality of Life in Patients With Autosomal Dominant Polycystic Kidney Disease and CKD Stages 1-4: A Cross-sectional Study

(2013) Dana C. Miskulin et al.   AMERICAN JOURNAL OF KIDNEY DISEASES

Changing Referral Characteristics of Patients with Autosomal Dominant Polycystic Kidney Disease

(2013) Imed Helal et al.   AMERICAN JOURNAL OF MEDICINE

Psychosocial interventions for managing pain in older adults: outcomes and clinical implications † †This paper is based, in part, on the John D. Loeser Award Lecture given by F.J.K. at the International Association for the Study of Pain meeting in Milan, Italy, August 2012.

(2013) F.J. Keefe et al.   BRITISH JOURNAL OF ANAESTHESIA

Psychological approaches to chronic pain management: evidence and challenges

(2013) C Eccleston et al.   BRITISH JOURNAL OF ANAESTHESIA

Effects of an Individually Tailored Web-Based Chronic Pain Management Program on Pain Severity, Psychological Health, and Functioning

(2013) Dana C Nevedal et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

Cystic kidney diseases

(2013) M. Jankowska et al.   NEPHROLOGY DIALYSIS TRANSPLANTATION

Quality of life of patients with ADPKD—Toranomon PKD QOL study: cross-sectional study

(2013) Tatsuya Suwabe et al.   BMC Nephrology

Enhancing transparency in reporting the synthesis of qualitative research: ENTREQ

(2012) Allison Tong et al.   BMC Medical Research Methodology

Communicating inherited genetic risk between parent and child: A meta-thematic synthesis

(2012) Emma Rowland et al.   INTERNATIONAL JOURNAL OF NURSING STUDIES

A randomized controlled evaluation of an online chronic pain self management program

(2012) Linda S. Ruehlman et al.   PAIN

Evaluation and Management of Pain in Autosomal Dominant Polycystic Kidney Disease

(2010) Marie C. Hogan et al.   ADVANCES IN CHRONIC KIDNEY DISEASE

Management of ESRD in Patients With Autosomal Dominant Polycystic Kidney Disease

(2010) Ahsan Alam et al.   ADVANCES IN CHRONIC KIDNEY DISEASE

Medication Adherence Behavior and Priorities Among Older Adults With CKD: A Semistructured Interview Study

(2010) Dena E. Rifkin et al.   AMERICAN JOURNAL OF KIDNEY DISEASES

What Were You Thinking?: Individuals at Risk for Huntington Disease Talk About Having Children

(2010) Kimberly A. Quaid et al.   Journal of Genetic Counseling

Voicing the lifeworld: Parental accounts of responsibility in genetic consultations for polycystic kidney disease

(2010) Angus Clarke et al.   SOCIAL SCIENCE & MEDICINE

Quality of Life in Autosomal Dominant Polycystic Kidney Disease Patients not yet on Dialysis

(2009) D. Rizk et al.   Clinical Journal of the American Society of Nephrology

“An Evil Heritage”: Interview Study of Pain and Autosomal Dominant Polycystic Kidney Disease

(2009) Susanne Heiwe et al.   Pain Management Nursing

Methods for the thematic synthesis of qualitative research in systematic reviews

(2008) James Thomas et al.   BMC Medical Research Methodology