Article
Pediatrics
Jerome Lichtle, Emmanuel Devouche, Naomi Downes, Laurent Mottron, Emilie Cappe
Summary: This study validates the acceptability and reliability of the PedsQL 4.0 questionnaire in French children aged 2 to 4 years. The results show good acceptability and internal consistency of the questionnaire. Factor analysis reveals an alternative 2-factor structure. The total score and emotional scale score are recommended for use in French children aged 2 to 4 years.
EUROPEAN JOURNAL OF PEDIATRICS
(2023)
Article
Psychology, Multidisciplinary
Bonney Reed, Kelly E. Rea, Robyn Lewis Claar, Miranda A. L. van Tilburg, Rona L. Levy
Summary: This study explores the impact of self-esteem and passive coping strategies on health-related quality of life in pediatric patients with inflammatory bowel disease. Results show that self-esteem is positively associated with HRQOL but negatively associated with passive coping. Self-esteem indirectly affects HRQOL through passive coping, particularly catastrophizing.
FRONTIERS IN PSYCHOLOGY
(2021)
Review
Multidisciplinary Sciences
Matthew Smyth, Kevan Jacobson
Summary: The study utilized PedsQL(TM) to assess the quality of life of children and adolescents with different disease cohorts, revealing lower QoL scores in IBD patients, especially those with active disease.
Editorial Material
Gastroenterology & Hepatology
Chung Sang Tse, Melissa G. Hunt, Lily A. Brown, James D. Lewis
Summary: The diagnosis of IBD brings about significant changes in the lives of most adults. Despite advancements in treatment options, medical and surgical intervention alone may not be enough to completely restore health and prevent long-term disability due to the incurable nature of IBD.
INFLAMMATORY BOWEL DISEASES
(2023)
Article
Gastroenterology & Hepatology
Casper Steenholdt, Ruben Due Lorentsen, Pernille Norgaard Petersen, Jorn Brynskov
Summary: Improvement in health-related quality of life (QoL) and fatigue is observed in patients with inflammatory bowel disease (IBD) receiving vedolizumab therapy. The improvement in QoL is rapid, while the improvement in fatigue is slow.
JOURNAL OF GASTROENTEROLOGY AND HEPATOLOGY
(2023)
Article
Nutrition & Dietetics
Selina R. Cox, Wladyslawa Czuber-Dochan, Catherine L. Wall, Hazel Clarke, Candice Drysdale, Miranda C. Lomer, James O. Lindsay, Kevin Whelan
Summary: This study aimed to investigate the effectiveness and acceptability of a web resource in enhancing food-related quality of life in newly diagnosed inflammatory bowel disease patients. The results showed that FR-QoL increased more in the web resource group, and IBD distress reduced, while the control group showed opposite results.
Review
Medicine, General & Internal
Pauline Wils, Benedicte Caron, Ferdinando D'Amico, Silvio Danese, Laurent Peyrin-Biroulet
Summary: This review provides a comprehensive overview of the multifactorial etiology implicated in the chronic abdominal pain of IBD patients and highlights the necessity of pharmacological and non-pharmacological approaches for treatment. Integrating psychological support in care models of IBD can reduce disease burden and healthcare costs.
JOURNAL OF CLINICAL MEDICINE
(2022)
Article
Medicine, General & Internal
Bun Kim, Jisuk Chae, Eun Hye Kim, Hyuk In Yang, Jae Hee Cheon, Tae Il Kim, Won Ho Kim, Justin Y. Jeon, Soo Jung Park
Summary: This study found that the physical activity levels of patients with inflammatory bowel disease are positively correlated with their quality of life. More leisure activities and non-sweat-inducing exercise contribute to improving the quality of life in these patients.
Review
Nutrition & Dietetics
Dominika Glabska, Aleksandra Kolota, Katarzyna Lachowicz, Dominika Skolmowska, Malgorzata Stachon, Dominika Guzek
Summary: Inflammatory bowel diseases (IBDs) and irritable bowel syndrome (IBS) are associated with decreased quality of life and mental health problems. Vitamin D supplementation is considered to be effective in improving mental health in affected individuals. Studies have shown a positive effect of vitamin D supplementation on the mental health of IBD and IBS patients, but further research is needed for confirmation.
Article
Medicine, General & Internal
Abdulaziz A. Alahmari, Sarah H. AlShawaf, Huda A. Meshikhes, Bedour A. Aleid, Raghad M. Aldossari, Marwa M. Shafey, Ahmed A. Aladsani, Abdulazeem A. Al-ibraheem, Nawal M. AlRubia, Saleh A. AlQahtani
Summary: This study investigated the quality of life in children and adolescents aged 7-18 years with inflammatory bowel disease in the Eastern Province of Saudi Arabia, and identified factors that influence it. The study found that inflammatory bowel disease has a significant impact on the emotional functioning of children, and corticosteroid utilization is associated with poorer quality of life.
INTERNATIONAL JOURNAL OF GENERAL MEDICINE
(2022)
Article
Health Care Sciences & Services
Rachel O'Loughlin, Harriet Hiscock, Tianxin Pan, Nancy Devlin, Kim Dalziel
Summary: This study aimed to investigate the relationships between physical health problems, borderline or clinical levels of mental health symptoms, and children's health-related quality of life (HRQoL). The findings revealed that mental health symptoms were significantly associated with lower HRQoL in children, with a larger impact than physical health problems. Furthermore, the study highlighted the importance of addressing mental health symptoms in children, especially those with physical-mental multimorbidity, who are at higher risk of poorer HRQoL.
QUALITY OF LIFE RESEARCH
(2022)
Article
Public, Environmental & Occupational Health
Kristina Aluzaite, Kay Greveson, Shomron Ben-Horin, Rupert Leong, Ola Haj, Michael Schultz
Summary: The study investigated challenges faced by patients with inflammatory bowel disease (IBD) during travel, their information-seeking behavior and associated factors. A significant percentage of participants sought medical advice or were hospitalized overseas, with common barriers including concerns about toilet facilities, cleanliness, and access to medical care. Although a majority sought travel advice, some did not obtain travel insurance coverage for their IBD, which was associated with lack of advice or difficulty in obtaining insurance. Participants traveling for work were more likely to face medical issues overseas and not obtain proper travel insurance.
JOURNAL OF TRAVEL MEDICINE
(2021)
Article
Psychology, Biological
Andre Schulz, Sina-Katharina Welsch, Sarah Etringer, Greta Hansen, Lea Milbert, Jochen Schneider, Gennaro Taddei, Raquel Gomez Bravo, Charilaos Lygidakis, Zoe van Dyck, Annika Lutz, Paul Wilmes, Claus Vogele
Summary: This study investigates whether IBD and IBS patients have altered perception of 'natural' gastric distensions. The results show that IBD patients drink significantly more water until satiation than IBS patients, suggesting relative gastric hypersensitivity in IBS and relative hyposensitivity in IBD patients.
PHYSIOLOGY & BEHAVIOR
(2023)
Article
Urology & Nephrology
Rufaida Mazahir, Kanav Anand, P. K. Pruthi
Summary: This study compared the quality of life (QOL) of children with idiopathic nephrotic syndrome (INS) to healthy controls and assessed the impact of sub-types on domain scores. The findings showed that children with NS had lower scores in physical, social, and school domains, with school functioning being the most affected. Other factors influencing QOL included steroid-resistant disease and use of immunosuppressants.
CLINICAL AND EXPERIMENTAL NEPHROLOGY
(2022)
Article
Public, Environmental & Occupational Health
Weijun Chen, Lidan Sun, Xinyu He, Ziqiao Li, Chai Ji, Fangfang Li, Jiyang Shen, Tianxin Pan, Xuejing Jin, Yusang Dong, Lidan Hu, Chaochun Zou, Guannan Bai
Summary: The study aimed to assess the health-related quality of life (HRQoL) of children with Williams syndrome (WS) and their caregivers in China and identify the factors influencing their HRQoL. Results showed that the HRQoL of children with WS and their caregivers was significantly lower, with household income and financial burden being important factors. The study calls for attention to the health status and well-being of children with WS and their families, and supports to alleviate psychosocial distress and financial burden.
FRONTIERS IN PUBLIC HEALTH
(2023)