Reporting Patient and Public Involvement Practice with Children and Young People in the Design and Conduct of Paediatric Health Research

作者

Jennifer Preston¹ , Emma Dalyrimple² , Giovanni Biglino³ , Victoria Harbottle⁴

1. Institute of Life Course and Medical Sciences, University of Liverpool
2. Institute of Child Health, University College London
3. Bristol Medical School, University of Bristol
4. Population Health Sciences Institute, University of Newcastle

会议/活动

International Clinical Trials Methododology Conference, October 2022 (Harrogate, United Kingdom)

海报摘要

The active involvement of patients and the public in the design and delivery of health research, rather than as 'subjects' of research has been encouraged (if not required for many years). Defining how this is realised in practice, especially where children and young people (CYP) are concerned is limited, partly due to the low level of reporting of Patient and Public Involvement (PPI) in general. This poster presents the findings from a review of reports held in the National Institute for Health and Care Research (NIHR) Journals Library that are completed by researchers about the processes of PPI with children and young people.

关键词

Patient and public involvement, Children and young people, Reporting, Impact, Paediatric clinical research

研究领域

Medicine

参考文献

1. Staniszewska S, Brett J, Simera I, Seers K, Mockford C, Goodlad S, Altman DG, Moher D, Barber R, Denegri S, Entwistle A, Littlejohns P, Morris C, Suleman R, Thomas V, Tysall C. GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. BMJ. 2017 Aug 2;358:j3453. doi: 10.1136/bmj.j3453. PMID: 28768629; PMCID: PMC5539518.
2. https://bit.ly/3fjxp97

基金

暂无数据

补充材料

暂无数据

附加信息

利益冲突

No competing interests were disclosed.

数据可用性声明

The datasets generated during and / or analyzed during the current study are available from the corresponding author on reasonable request.

知识共享许可协议

Copyright © 2022 Preston et al. This is an open access work distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.