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Reporting Patient and Public Involvement Practice with Children and Young People in the Design and Conduct of Paediatric Health Research

PUBLISHED October 14, 2022 (DOI: https://doi.org/10.54985/peeref.2210p8728446)

NOT PEER REVIEWED

Authors

Jennifer Preston1 , Emma Dalyrimple2 , Giovanni Biglino3 , Victoria Harbottle4
  1. Institute of Life Course and Medical Sciences, University of Liverpool
  2. Institute of Child Health, University College London
  3. Bristol Medical School, University of Bristol
  4. Population Health Sciences Institute, University of Newcastle

Conference / event

International Clinical Trials Methododology Conference, October 2022 (Harrogate, United Kingdom)

Poster summary

The active involvement of patients and the public in the design and delivery of health research, rather than as 'subjects' of research has been encouraged (if not required for many years). Defining how this is realised in practice, especially where children and young people (CYP) are concerned is limited, partly due to the low level of reporting of Patient and Public Involvement (PPI) in general. This poster presents the findings from a review of reports held in the National Institute for Health and Care Research (NIHR) Journals Library that are completed by researchers about the processes of PPI with children and young people.

Keywords

Patient and public involvement, Children and young people, Reporting, Impact, Paediatric clinical research

Research areas

Medicine

References

  1. Staniszewska S, Brett J, Simera I, Seers K, Mockford C, Goodlad S, Altman DG, Moher D, Barber R, Denegri S, Entwistle A, Littlejohns P, Morris C, Suleman R, Thomas V, Tysall C. GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. BMJ. 2017 Aug 2;358:j3453. doi: 10.1136/bmj.j3453. PMID: 28768629; PMCID: PMC5539518.
  2. https://bit.ly/3fjxp97

Funding

No data provided

Supplemental files

No data provided

Additional information

Competing interests
No competing interests were disclosed.
Data availability statement
The datasets generated during and / or analyzed during the current study are available from the corresponding author on reasonable request.
Creative Commons license
Copyright © 2022 Preston et al. This is an open access work distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
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Cite
Preston, J., Dalyrimple, E., Biglino, G., Harbottle, V. Reporting Patient and Public Involvement Practice with Children and Young People in the Design and Conduct of Paediatric Health Research [not peer reviewed]. Peeref 2022 (poster).
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